Jun 29, 2011 - 12:52 am
Could anyone please tell me what the long term effects are fromt demodar and radiation? My husband's doctor didnt' give us a choice as to not to do one or the other. We did get 2 opinions about the results and surgery but not about the treatment. We just assumed it was what any doc would have told us to do since they said it was the common treatment for this type of tumor. My husband appears to be doing well. He did confide in me this past weekend that he has some memory problems. I also noticed him balling his hands into a fist and releasing them, as if they were falling asleep or cramping. He doesn't like for me to question him about things. He says if something is wrong, he will tell me and not to ask. Any direction or information about this type of tumor is greatly appreciated. He is now taking 21day cycle of temodar. I have not noticed any effects from his radiation or chemo thus far. Is there ALWAYS a side effect? Is it just a matter of time? He had no 1p deletion but 19q deletion he did have.