I have been searching the internet for a few months to find out about pancreatic cancer survivors and what is the longest a survivor has lived?
I myself had surgery last year for pancreatic cancer and after my surgery was told by the surgeon to get follow ups every three or four months based on the posibility that my cancer would return.
I did some research and what I found was not very good news, then today I found this website and there was some discussion about the very subject I am interested in, but it seems to be very scarce and selective.
The good news that I found however is that there is some survivors out there, and I read some of their stories that sort of gave me a sense of hope but then again pancreatic cancer is the number four killer in the cancer catagories.
It was predicted that this year alone about 44 thousand new patients in the United States would be diagnosed with pancreatic cancer, and that there has been not much funding for pancreatic cancer research in the past 40 years as the disease is on the rise.
So my worst fears continue, I would say that at times I am a nervous wreck I am aware that everyone has a different body chemistry and there are those few that might fair better than others in recovery and perhaps even becoming cancer free.
Considering that most pancreatic cancer patients dont live past their first year after diagnoses, and less than 12% are alive after 5 years so pancreatic cancer patients have a very low survival rate life expectancy.
On a percentage rate I wonder how many pancreatic cancer patients actually survive and if anyone such as the American Cancer Society keep track of such statistics?
I mean finding a blog with pancreatic cancer survivors is good news and I am happy for them, but to me it is like maybe going back forty years ago and asking how many survivors of the 1906 San Francisco Earthquake or Titanic survivors are out there if you get my point.
OK today is June 26 and I found out that the pancreatic cancer discussion thread is on the rare cancer or other cancers thread.
As I looked into most of the post made by a very few survivors, seems that their post were entered at a stagnate rate spread out through several years, so that seems pretty grim to me.
What I cant figure out is why would pancreatic cancer be classified as a rare cancer or other cancer when more than 40 thousand Americans are diagnosed with this disease every year?
I dont think this disease is being taken serious other than once you get it your fate is pretty much sealed, if for some reason one recovers or lives a few years long is nothing more than a miracle.
The bottom line is that there are hardly any survivors out there to keep an active discussion going, I am curious because after my surgery and as the surgeon told me about my follow ups getting ct scans every three months because there was a 30% chance that my cancer would come back.
I guess what he really was trying to tell me was that my cancer will be back, but he was saying it in a nice way.