Jun 22, 2011 - 10:07 pm
Some background: I was diagnosed with GBM last October, had a 99+% resection, had standard radiation/Temador, and just finished my 6th round of 5/23 Temador and had a clean MRI last month. Unfortunately, I had my first seizure a few weeks ago and I am now on Keppra (1000 mg/day). I am still going to work, though I am really tired during the day. Throughout the entire process I have been getting mild headaches and have been getting them a little more frequently recently.
Here is my question: What are people's experiences with headaches (post-surgery/radiation) and GBM ? When and how do they get so bad that your oncologist starts to get worried? (mine are not worried right now)