Flunking radiation

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grams2jc
grams2jc Member Posts: 756
So it is looking like I may not be a rad grad on 6/30 as earlier planned. Was told on Monday when I saw my RO that I am to have nothing touch my skin but the breeze from a fan and that he will check me on Thursday when I am supposed to get my last regular treatment and markings for boosts to see if he is going to stop treatments for 5 days.

I am trying to be a grown up about it and realize that I don't want 3rd degree burns and all that goes with that, but I am sooooooooooo close to done! This ride started with a mammogram in mid October, hasn't stopped yet, and I want to get off!!!!!

Yes, he has a good reputation and is a highly regarded RO, yes I drive a 2 hour daily round trip to avoid the local ctr with the rep for overradiating people, and yes I understand that being angry is not getting me anywhere and is a contradiction to what I just said. But....BOY AM I TICKED!!!!!

I won't deny that stopping treatment for a few days was explained at the beginning, but I was led to believe it rarely if ever happened and we had so many options before it came to that that I never took it seriously. I wish they had told me that due to my fair skin, etc, etc, they were going to build in 10 extra days and if I didn't need them great, if I did my end date would be 7/10 or 7/15, then, like chemo when you are worried about your counts and trtmt is a question, I would not have focused so much on the earlier end date and just hoped for it while accepting a later date.

So, I have taken time off work again, thank God they are understanding, and have been sitting around 1/2 topless with my 1/2 flat chest totally gooped up and just hanging out. Yes, the skin peeled off, yes it is brilliant red, no it is not weeping or oozing or painful.

It just doesn't seem right that I took off 10 working days for a mastectomy, a total of 18 working days for chemo and could now be looking at 8 days or more for rads? I thought rads were supposed to be the "easy" part of cancer trtmt. (and yes I followed all instruction for skin care to the letter, including leaving each and every rad trtmt as a lopsided woman with no bra until the following morning, and every week I heard how much better I was doing than he thought I would and how good everything looked)

OK that's my rant, I just hope I can find the strength and gumption to go back for the boosts after he calls a halt. Right now that is a big question in my mind, yes I know the rational reasons to continue, I'm just not feeling very rational

Jennifer

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  • butterflylvr
    butterflylvr Member Posts: 944
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    Aww...Sweetie...
    I can understand how you feel. Your journey and mine started at the same time, today I saw my RO and he mapped out the area for me for my boosters next week. He also took me into an exam room just before I was heading back to change clothes. He told me that I went from sailing through all this to being burnt in a matter of days, that's how quick things can change. I am lucky though, Doc says he won't use that "fake skin" for my remaining two regular treatments. I asked him what exactly was the purpose for that skin and he said it pulls the radiation back up to the skin, so what ever dose my chest wall is getting this "fake skin" allows my top layer of skin to get just as strong a dosage. Well hello... no wonder I was turning so red. Thank goodness my boosts are targeting an area that can take more heat...

    I am sure Jennifer your boost zone is probably in a "hot spot" already and Doc feels your skin needs a rest. You are a strong woman, I too have missed minimal work. But when you r body says enough... you gotta listen. Just last night I found it hard keeping my eyes open while reading my book. I think finally I went to bed about 9:00. I sure felt better this morning..Hang in there sweetie it's almost over, I won't start my party without you.

    HUGS,
    Lorrie
  • renee616
    renee616 Member Posts: 181
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    Aww...Sweetie...
    I can understand how you feel. Your journey and mine started at the same time, today I saw my RO and he mapped out the area for me for my boosters next week. He also took me into an exam room just before I was heading back to change clothes. He told me that I went from sailing through all this to being burnt in a matter of days, that's how quick things can change. I am lucky though, Doc says he won't use that "fake skin" for my remaining two regular treatments. I asked him what exactly was the purpose for that skin and he said it pulls the radiation back up to the skin, so what ever dose my chest wall is getting this "fake skin" allows my top layer of skin to get just as strong a dosage. Well hello... no wonder I was turning so red. Thank goodness my boosts are targeting an area that can take more heat...

    I am sure Jennifer your boost zone is probably in a "hot spot" already and Doc feels your skin needs a rest. You are a strong woman, I too have missed minimal work. But when you r body says enough... you gotta listen. Just last night I found it hard keeping my eyes open while reading my book. I think finally I went to bed about 9:00. I sure felt better this morning..Hang in there sweetie it's almost over, I won't start my party without you.

    HUGS,
    Lorrie

    I know he just messed up your calendar!!
    I'm sorry Jennifer, I felt that way when my Onc pushed my chemo up to 4 weeks instead of every three, because of my side effects....I had everything planned out on the calendar! Although I know it was for the best & hes knows better than me, I was disapointed...Now I'm afraid to ask about lingering side effects from chemo for fear they will stop the rad treatments!!!
    Good luck & i hope you heal quickly!
    Renee
  • VickiSam
    VickiSam Member Posts: 9,079 Member
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    renee616 said:

    I know he just messed up your calendar!!
    I'm sorry Jennifer, I felt that way when my Onc pushed my chemo up to 4 weeks instead of every three, because of my side effects....I had everything planned out on the calendar! Although I know it was for the best & hes knows better than me, I was disapointed...Now I'm afraid to ask about lingering side effects from chemo for fear they will stop the rad treatments!!!
    Good luck & i hope you heal quickly!
    Renee

    Jennifer .. I am sorry, but I laughed out loud .. when I
    read the topic of your post. My heart goes out to each and every one of you Rad's Goddesses! Please take care of yourselves, as well as your bodies.

    It sucks big time .. when our treatments are prolonged because our bodies feel that it needs a break from all the chemicals going traveling thru our bodies.


    Strength, Courage and Healing ..

    Vicki Sam
  • carkris
    carkris Member Posts: 4,553 Member
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    VickiSam said:

    Jennifer .. I am sorry, but I laughed out loud .. when I
    read the topic of your post. My heart goes out to each and every one of you Rad's Goddesses! Please take care of yourselves, as well as your bodies.

    It sucks big time .. when our treatments are prolonged because our bodies feel that it needs a break from all the chemicals going traveling thru our bodies.


    Strength, Courage and Healing ..

    Vicki Sam

    believe it or not but this
    believe it or not but this will end up being a memory of "remember when" hang in there you will get there! totally understand just wanting to be DONE!
  • sinee
    sinee Member Posts: 196 Member
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    No Need to feel rational
    You are disappointed that is understandable for sure. It will all be ok, and you will make the decision that is right for you. You have come this far, the journey just took a detour. I also started this journey last October, and am now going through radiation, hoping the train stops and I can get off this ride. I am sure that right about now you feel like you have overpaid your ticket to ride...you can be disappointed and rant and rave if you want to. You have every right. You will find both the strength and gumption to go back for the boosts even if you take a much needed break right now. Keep us posted, and join us in The Radiation Room discussion board, lots of us are going through it and are helping each other get through it. Join us. Cindy
  • grams2jc
    grams2jc Member Posts: 756
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    Thanks!
    Thanks everybody. I really appreciate that you get it. Not only is my calender messed with, so is my sense of control .... again.

    Yes my skin is screaming for help, yes it needs a break, no I won't be given the final word until Thursday (today) at about 3, but the techs agree with me that he is going to call a halt. I'm thinking it will be better to break now for how ever many days he requires instead of starting the boosts and knowing that there are only 5 of them and having him stop me with 3 left or 2 left...that would really stink.

    At least he won't see me until after the final regular trtmt ... I can feel like I accomplished something before the break.

    The saga continues,

    Jennifer