Jun 21, 2011 - 2:22 pm
In March of this year, I had one and a half litres of fluid drained from my abdomen. I was diagnosed with Primary Peritoneal Cancerfrom an analysis of the fluid and my medical history but in May, when I had a laparoscopy to confirm the diagnosis, there didn't appear to be any there. My abdomen feels heavy (which is always does to be honest as I also have dense abdominal adhesions and my organs are stuck together)but now I've been told is that the ascites is managed by me. So, when I feel there is pressure, I'm constipated and nauseous, the nurses will do an ultrasound and drain it. The trouble is, I've had 5 bowel blockages before and for three of them, I didn't see it coming. I don't want to go down the 'nil by mouth for a week wondering if my bowel will ever work again' routine in some hospital bed again. What I would like is for my nurses to carry out ultrasounds to see if there is fluid there and then drain it for me. I've also been told that drainage poses its own risks (which I knew) and that they would like to see my abdomen pretty hard, uncomfortable and with signs of constipation before they do the deed. I feel this is a little bit of a back to front way of doing things because I know what a rigid abdomen feels like and I don't want to go down that road. Has anyone any ideas that might help? I would appreciate it.