Head is clearing but my feet are swelling...

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plh4gail
plh4gail Member Posts: 1,238 Member
in Colorectal Cancer #1
Okay...I'm about 1 month from my last chemo. It was 6 Folfiri but prior to that I had 6 Folfox which my onc stopped because of side effects. Now that I have not had chemo for about a month, my brain is waking up. But my feet are beginning to have some swelling. (Is my smarts going downhill?...kidding) They did not do this before and it worries me. Did any of you have something similar happen after chemo? Nasty drug...

Thanks ever so much, Gail

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  • Unknown
    Unknown
    #2
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  • pete43lost_at_sea
    pete43lost_at_sea Member Posts: 3,900 Member
    #3
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    sounds bad
    dear gail,

    did you see the post about leveraging peripheral neuropathy treatments from diabetics ?

    i am going veganish to loose weight, try to fix pn, and help immune system.

    what supplements are you trying for pn ?

    blood supply is supposed to help, so exercise is supposed to be good.

    i had lots of fluid after chemo, its supposed to be a hangover from the steroids i think.

    hugs,
    pete
  • ron50
    ron50 Member Posts: 1,723 Member
    #4
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    I have suffered badly
    From odema(feet and ankles swelling)for me it means trouble because it indicates that I am losing protein from my urine. You can lose 150mg a day. I lose up to 3 gram a day thru scarred kidney filters. The protein is what keeps blood in your veins. Remove the protein and the blood leaks out and causes swelling. Far more common and less of a problem is fluid retention. If you see your gp a simple urine test can rule out protein loss and he may give you some mild diuretics for fluid retention but best get it checked. I have regular tests.Rates way up there for ways to spend your sunday,,,peeing in a bottle for a 24hr urine collection...not. All the best Ron.
  • smokeyjoe
    smokeyjoe Member Posts: 1,425 Member
    #5
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    ron50 said:

    I have suffered badly
    From odema(feet and ankles swelling)for me it means trouble because it indicates that I am losing protein from my urine. You can lose 150mg a day. I lose up to 3 gram a day thru scarred kidney filters. The protein is what keeps blood in your veins. Remove the protein and the blood leaks out and causes swelling. Far more common and less of a problem is fluid retention. If you see your gp a simple urine test can rule out protein loss and he may give you some mild diuretics for fluid retention but best get it checked. I have regular tests.Rates way up there for ways to spend your sunday,,,peeing in a bottle for a 24hr urine collection...not. All the best Ron.

    Gail, I would go see your
    Gail, I would go see your doctor to rule out possibility of blood clots, they can do this with ultrasound. I would do this pronto, I had two blood clots travel to my lungs and am on blood thinners. I would go and see doc. to rule this out!! Leena
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    #6
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    I have so many questions....
    Thanks guys for your input...The swelling gets worse as the day goes on, but it isn't a great deal of it just enough to know it's there. I really don't think it's clots (hopin), there's no redness, warmth or pain like that. Just feels like discomfort and tightness in my toes and ankles. Also no shortness of breath or breathing problems.

    I think I was so happy to be off chemo and for this little annoyance to pop up took me off guard and was wondering what you all have experienced. I do have an appointment with my onc on the 23rd. If the appt is in the morning he wont see the swelling as its worst in the evening. I'm having a hard enough time getting him to order post chemo CT and PET.

    Ok here is another thing....after chemo onc said I did not need CT (guess he had his xray glasses on). He said I was all good and cancer was gone. (WHAT?)He said no need for CT. Then what about a PET? I have never had one! He said I did not need one....now I was diagnosed with a colonoscopy. My CEA has ALWAYS been normal. My chest, abdomen, pelvis CT showed NO tumor or lymphs! (this when I had a 5cm circumferencial rectal mass and 6/12 lymph nodes.) So how do they know how far up the nodes were involved without a PET? I think he's going to let me slip through the cracks. There are 2 other onc in this little country town that I would not go to either. I thought I liked and trusted mine, but this CT and PET thing worries me.

    Anyway....I was originally asking about the swelling and got off topic on tests.

    Gail
  • PGLGreg
    PGLGreg Member Posts: 731
    #7
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    plh4gail said:

    I have so many questions....
    Thanks guys for your input...The swelling gets worse as the day goes on, but it isn't a great deal of it just enough to know it's there. I really don't think it's clots (hopin), there's no redness, warmth or pain like that. Just feels like discomfort and tightness in my toes and ankles. Also no shortness of breath or breathing problems.

    I think I was so happy to be off chemo and for this little annoyance to pop up took me off guard and was wondering what you all have experienced. I do have an appointment with my onc on the 23rd. If the appt is in the morning he wont see the swelling as its worst in the evening. I'm having a hard enough time getting him to order post chemo CT and PET.

    Ok here is another thing....after chemo onc said I did not need CT (guess he had his xray glasses on). He said I was all good and cancer was gone. (WHAT?)He said no need for CT. Then what about a PET? I have never had one! He said I did not need one....now I was diagnosed with a colonoscopy. My CEA has ALWAYS been normal. My chest, abdomen, pelvis CT showed NO tumor or lymphs! (this when I had a 5cm circumferencial rectal mass and 6/12 lymph nodes.) So how do they know how far up the nodes were involved without a PET? I think he's going to let me slip through the cracks. There are 2 other onc in this little country town that I would not go to either. I thought I liked and trusted mine, but this CT and PET thing worries me.

    Anyway....I was originally asking about the swelling and got off topic on tests.

    Gail

    My feet and ankles swelled
    My feet and ankles swelled up a few months after chemo (5fu). They stayed swollen for a month and a half, then the swelling went away and didn't return. I had been running a half hour mornings, and I bought larger running shoes and continued. My oncologist did some tests, but didn't find anything.

    I think you would not necessarily get a scan at the end of chemo. I had followup CT scans at yearly intervals. I never had a PET scan at all.

    --Greg
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    #8
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    PGLGreg said:

    My feet and ankles swelled
    My feet and ankles swelled up a few months after chemo (5fu). They stayed swollen for a month and a half, then the swelling went away and didn't return. I had been running a half hour mornings, and I bought larger running shoes and continued. My oncologist did some tests, but didn't find anything.

    I think you would not necessarily get a scan at the end of chemo. I had followup CT scans at yearly intervals. I never had a PET scan at all.

    --Greg

    Thank you Greg....that
    Thank you Greg....that sounds just about like me I think...with the swelling and the tests.

    Gail
  • Nana b
    Nana b Member Posts: 3,030 Member
    #9
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    plh4gail said:

    Thank you Greg....that
    Thank you Greg....that sounds just about like me I think...with the swelling and the tests.

    Gail

    Yep swelling feet and
    Yep swelling feet and hands....and numbness. I still think I have problems with my tendons, my the back of my heel hurts and my shoulder joints. And my wrists, too coincidental for all to be hurting at the same time, has to be chemo related or that dang drug that everyone is suing. Can't remember the name right now, but I posted it last week.
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    #10
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    plh4gail said:

    I have so many questions....
    Thanks guys for your input...The swelling gets worse as the day goes on, but it isn't a great deal of it just enough to know it's there. I really don't think it's clots (hopin), there's no redness, warmth or pain like that. Just feels like discomfort and tightness in my toes and ankles. Also no shortness of breath or breathing problems.

    I think I was so happy to be off chemo and for this little annoyance to pop up took me off guard and was wondering what you all have experienced. I do have an appointment with my onc on the 23rd. If the appt is in the morning he wont see the swelling as its worst in the evening. I'm having a hard enough time getting him to order post chemo CT and PET.

    Ok here is another thing....after chemo onc said I did not need CT (guess he had his xray glasses on). He said I was all good and cancer was gone. (WHAT?)He said no need for CT. Then what about a PET? I have never had one! He said I did not need one....now I was diagnosed with a colonoscopy. My CEA has ALWAYS been normal. My chest, abdomen, pelvis CT showed NO tumor or lymphs! (this when I had a 5cm circumferencial rectal mass and 6/12 lymph nodes.) So how do they know how far up the nodes were involved without a PET? I think he's going to let me slip through the cracks. There are 2 other onc in this little country town that I would not go to either. I thought I liked and trusted mine, but this CT and PET thing worries me.

    Anyway....I was originally asking about the swelling and got off topic on tests.

    Gail

    Gail
    Gail,
    Am I understanding that you have not had a CAT or PET since you finished chemo? I think you should demand to have one. What is the schedule your onc is looking at for CAT scans? He must have a schedule.

    Thinking of you.

    Aloha,
    Kathleen
  • ron50
    ron50 Member Posts: 1,723 Member
    #11
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    No pet for me
    But I had a ct before surgery and 6 monthly the first year then at yearly intervals for 5 years. Had a couple since when they had suspicions but all have been clear. Now out to 3 yearly scopes. Waiting on pathalogy on the piece they took out of my face this morning. He thinks he got it all,guess I will be on yearly skin checks now. Always something....Ron.
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    #12
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    I get that sometimes
    It turned out it's only water retention and a "water pill" does the trick.
    It's best to have it checked out because of all of the other possibilities that are out there.
    Otherwise, I feel swell
    -phil
  • Unknown
    Unknown
    #13
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    ron50 said:

    No pet for me
    But I had a ct before surgery and 6 monthly the first year then at yearly intervals for 5 years. Had a couple since when they had suspicions but all have been clear. Now out to 3 yearly scopes. Waiting on pathalogy on the piece they took out of my face this morning. He thinks he got it all,guess I will be on yearly skin checks now. Always something....Ron.

    This comment has been removed by the Moderator

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