Jun 11, 2011 - 8:53 pm
We're seeking contact with other parents of young adults dealing with this disease.
Our 19 year old son came home from first semester at college with odd symptoms. Biopsy in January: Inoperable GBM in left temporal lobe extending into the insular capsule and downward toward the brain stem that "appears aggressive." He had 42 days of Temodar and 33 fractionated doses of radiation. Follow up MRI showed tumor had grown by about 30%. We felt such shock that conventional treatment didn't have the expected effect. He recently completed his 4th cycle of Avastin and Irinotecan with follow up MRI this coming Monday and results appointment Wednesday. We can hardly put into words how we're feeling right now; it's hard to breath, let alone sleep.
Anyone else dealing with issues like these?