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Bronchoalveolar Carcinoma
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May 24, 2011 - 1:21 pm
I am wondering if anyone has been diagnosed with BAC recently....I had adenocarcinoma both lungs with BAC features 5 years ago...I had wedge recection with chemo and Tarceva following....BAC progressing slowly but am now having a more difficult time....I wonder if this sounds familiar to anyone...thanks |
Joined: Aug 2006
I was also diagnosed with adenocarcinoma with BAC features in 2006. Mine was found very early and seemed to be confined to the middle right lobe which they removed. They told me that BAC often reappears in either lung, but it grows very slowly. Since I was 1-A, they did not offer me chemo or Tarceva, though they mentioned I may be having one or the other in the future. Right now there are 11 spots they keep an eye on (some on the right and some on the left), but according to my thoracic surgeon and my pulmonologist, none are growing or behaving like cancer. In other words, for now I am on watchful waiting. My surgeon says he will not stop seeing me for at least 8 years just in case...
I am having a time with coughing. The pulmonologist says it is probably allergies and asthma, so I am on several meds for that. Of course, I always worry that it is the cancer showing up when I start having a coughing spell, but the doctors keep telling me that my lungs are currently stable as far as that goes. I'm glad of the good news, but today was a bad day for breathing anyhow.
Have you been back to your oncologist for his or her read on things?
Joined: May 2011
I go back every 6 months to Memorial Sloan in NYC....mine is also progressing slowly...lower lobes of both lungs and upper left lobe....I also have coughing fits....I told them I have never had a cough in my life but pulmonologist tells me my lungs are clear....CT scan shows all kinds of haziness, ground glass like materials etc....I was also diagnosed with pneumonia which I don't think I had....my oncologist says it is progressing but no treatment for at this time....I did go through major chemo which knocked 3 adenocarcinoma tumors out of my right lung....but did not help the BAC....as you know....it is resistant to traditional chemotherapy...and surgery is really the only way to eradicate it.....I also am having a more difficult time breathing and also attribute some of it to the weather....good to talk to you....usually when I say what I have I just get a blank stare... :)
Joined: Aug 2006
While yesterday I was coughing hard, today has been easier. I decided last night that I should get out my personal vaporizer and see if that would thin down things so I could breath a bit better. That plus all the usual meds seemed to help a lot.
My pulmonologist says that allergies are really bad this year. I'm sure those things don't help.
Joined: May 2011
I do Advair 2X day with rescue inhaler as needed....but my oncologist said none of those things really will help....he mentioned a bunch of other meds along the same line but what's the point....for me to just sit or breathe calmly for a few minutes does the trick...what meds do you take on a regular basis....if any....again....good to talk to you....
Joined: Aug 2006
I have a son on Advair. He did very well on it, but when I tried to take it, it made my mouth and anything I put in it (read food in general) taste horrible. I'm one of the few who can't take it, so it seems. We tried several other similar drugs that caused similar problems. Finally, this year we tried Symbicort 160 and that seemed to do the trick. I had a respiratory infection (maybe pneumonia??) around Christmas. I've taken doxicycline for that (no effect) and then Levaquin (seemed to work mostly but they made me