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getting harder to stay positive

Marsha Mulvey
Posts: 597
Joined: May 2010

Last Tuesday was my first scan since Jan. 31. Friday I got the results and they're not good. I will start with the spots in my bones, which have been stable for about a year - and still are. I guess that's the good news. The tumors in my liver have significantly increased in size. Unfortunately, the largest 5 or 6 have grown to 2-3 times their previous size. The smaller ones have stayed about the same or increased at a slower rate. No new tumors are currently evident.

This is not the first time that things have taken a turn for the worse, but I must admit that it hit me harder this time. I think I was having a false sense of security because the Navelbine, Herceptin, and Zometa were creating good results and I was coping well with the side effects and feeling pretty good. It seems though that these drugs have run their course for me. After much discussion with my onc, his recommendation on a treatment plan, and my own homework, it looks like my next plan of attack will be Xeloda for the traditional chemo, Tykerb as the targeted therapy for HER2+, and I'll be continuing Zometa once every 4 weeks.

These drugs must be ordered (in pill form) from a specialty drug company and I won't be able to start until late this week or even next week. Knowing how quickly this cancer grows, I'm "chomping at the bit" to get started. After 59 weekly infusions, I'm not looking forward to swallowing so many pills - but it's what I have to do!

So...all I ask of you is to please keep me in your thoughts and prayers. I'll keep you posted as I embark of this newest leg of my journey. Thanks for being here. Continued prayers for all. Marsha

deeb111
Posts: 139
Joined: May 2011

Im so sorry to hear this I will say Aprayer for you and I will say this as hard as it is reach deep down inside and pull up all the strength u have and beat the living daylights out of this disease evict it as i say hang in there and i hope u feel better soon

Deeb111

New Flower
Posts: 4140
Joined: Aug 2009

Dear Marsha,
I am very sorry that your medications stopped working, The good news you and your oncologist have developed a new plan and you will be able to start soon. Your doctor always has selected effective medications for you , hopefully this new treatments will be very effective. Cancer is very sneaky, but you and your doc much smarter and combat them.
I always keep you in my thoughts and prayers.
Sending you a big hug
New Flower

aisling8's picture
aisling8
Posts: 1325
Joined: Feb 2010

you'd mentioned having a scan and was wondering about your results. I hope you've figured out many of us keep you in our thoughts and prayers daily. The results are discouraging, but I like what New Flower has to say about you and your doctor being smarter than the cancer.

I send you lots of positive energy to help carry you forward till you're generating your own. And you will. It takes a while to process all this.

Thinking of you,
xoxo
Victoria

Chickadee1955's picture
Chickadee1955
Posts: 333
Joined: Apr 2010

Marsha,

You'll be in my thoughts and prayers for strength and progress.

Chickadee

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

We are all with you on this leg of your journey Marsha. I am sending you lots of hugs, strength and prayers.

Hugs, Debby

Kylez's picture
Kylez
Posts: 3765
Joined: May 2009

You keep staying positive Marsha! I think that a lot of times, our attitude contributes so much to how we will do with any treatment.

Lean on us when you need to, as, we all love you and are here for you anytime.

Prayers for you,

Kylez

aysemari's picture
aysemari
Posts: 1590
Joined: Dec 2009

Where is that darn magic wand? An anti-cancer dance? A magic potion?

This sucks, I feel so helpless when I read post of this nature. I hope you
can draw strength from somewhere, us, family, a hobby - to continue your
fight. And squeeze as much as you can out of life. I am sending you truck
loads of good thoughts and wishes.

And of course a big hug!
Ayse

Angie2U's picture
Angie2U
Posts: 2993
Joined: Sep 2009

So sorry Marsha. Please stay strong and come here to vent, get encouragement and support.

Praying for you,

Angie

sbmly53
Posts: 1484
Joined: Jan 2010

I am so sorry that your news is not so good. Please draw strength for the love and sisterhood and know that you are loved and cared for and always will be.

Prayers and big bear hugs,

Sue

linpsu's picture
linpsu
Posts: 727
Joined: Mar 2010

Oh Marsha, I'm so sorry to hear your news. Know that we are with you every step of the way, dear sister.
Hugs,
Linda

MAJW
Posts: 2515
Joined: May 2009

Disease sucks B I G time! Know that you are being kept in many prayers....won't tell you to stay strong, keep positive...just do what ever you have to do to get through the day...what ever it takes...

Hopefully knowing how many care will be of some small comfort..
Hush, Nancy

susie09's picture
susie09
Posts: 2933
Joined: Jul 2009

Sweet Marsha, I am sending you all of the strength, hugs and prayers that I can.

You are so positive on here to everyone else and always offer support.

Now, accept it from your pink sisters and keep on fighting! And, please keep posting updates!

♠♣ Susie ♠♣

poplolly's picture
poplolly
Posts: 346
Joined: Apr 2011

Marsha,

You may not feel like swimming any fancy strokes right now, so just keep on dog-paddling until you get your second wind.

carkris's picture
carkris
Posts: 4529
Joined: Aug 2009

I am sorry to hear that you have to change chemo and that the tumors have grown,so glad the zometa is working. Yay. and praying that the new chemo is super effective. I will pray for effective chemo, and strength for you Hugs!

DianeBC's picture
DianeBC
Posts: 3888
Joined: Jun 2009

Praying for you and always keeping you in my thoughts Marsha. Keep posting to update us.

Hugs and prayers,

Diane

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

I'm so sorry Marsha that you are changing chemos. I wish you the best of luck on it and I will be praying for you!

sea60's picture
sea60
Posts: 2601
Joined: May 2010

I am praying for you and hoping that this treatment will be effective. That's good that the spots on the bones haven't spread. I just dream that tomorrow they can come up with a wonder drug to knock this out! I hate it!

Sending you hugs of comfort,

Sylvia

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Marsha, I wish I had some magic wand to wave or even some magic words to write to you. I am very glad for the news about your bones, but, so sad about your liver. I wish I could kick cancer to the curb and make it stay there, away from everyone forever!!!!!

I know that you must be upset and feel disheartened, but, please, please try to think positive.

Leave the praying to us. All of the pink sisters will pray as hard as they can for you!

Sue :(

butterflylvr's picture
butterflylvr
Posts: 944
Joined: Apr 2011

I always feel so helpless when I read posts of this nature. Stay strong Marsha you've already proven your a fighter. God Bless you and my prayers are with you in your time of need.

Hugs,
Lorrie

Double Whammy's picture
Double Whammy
Posts: 2338
Joined: Jun 2010

Dear Marsha-

I have no idea what to suggest to help you stay positive. What I have to offer is my hopes,prayers, and my own positive vibes that this new cadre of drugs will do the trick. I'm so sorry you have to keep starting over.

Suzanne

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

I am so sorry Marsha. I will be praying for you.

♥ Kristin ♥

camul's picture
camul
Posts: 2139
Joined: Dec 2010

I am sending prayers for both you and your doctor that the new chemo will work. I really do know how hard it is to stay positive with this news and the apprehension when starting a whole new protocol.
Sending you hugs, positive thoughts, and prayers that this combo will slow down the progression of this horrible disease.

~Carol

DebbyM's picture
DebbyM
Posts: 3294
Joined: Oct 2009

How are you doing Carol?

Noel's picture
Noel
Posts: 3101
Joined: Apr 2009

I pray for you Marsha, Carol and Meena daily!

Jean 0609's picture
Jean 0609
Posts: 2368
Joined: Jun 2010

Sending postive thoughts & prayers your way.

xoxo,
Jean

skipper54's picture
skipper54
Posts: 936
Joined: Feb 2011

Sending lots of hugs and prayers your way

dyaneb123's picture
dyaneb123
Posts: 951
Joined: May 2009

Marsha
I'm so sorry that you are going through this. It's what we all fear and loathe. No one wants to have to continue chemo like this, but you seem to be ready to tackle it and I
know we will all be here to support you on this new leg of the journey. Keep us posted on how things are going.
Hugs
Dee

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

I'm sending big cyber hugs and prayers to you Marsha.

Hugs, Lex

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

I'm sending big cyber hugs and prayers to you Marsha.

Hugs, Lex

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

.

Gabe N Abby Mom's picture
Gabe N Abby Mom
Posts: 2415
Joined: Sep 2010

Of course I'll keep you in my thoughts and prayers. I really like that you and the doc are working together as a team. And it sounds like you've come up with a promising new mix. Let us know how you're doing once you get those pills.

Hugs,

Linda

VickiSam's picture
VickiSam
Posts: 8504
Joined: Aug 2009

prayers. Praying that your new chemo pill combo provides positive results for you! Stay strong dear WARRIORS, you are in our daily thoughts and prayers, dear Sister.

Strength, Courage and Hope.

Vicki Sam

missrenee's picture
missrenee
Posts: 2137
Joined: Apr 2010

tons of positive energy, good thoughts and prayers. Good news about the bones, but maybe the new drug combo can kick those liver mets into submission as well. Let's all imagine in our minds that as the new drug combo enters your body--boom--right to those spots just exploding them away.

I know it get tedious trying to "stay strong" but take those days when you just can't, go with them, then pick yourself up, and start fighting again. We're all with you, Marsha. Get some strength from us.

Hugs, Renee

Lighthouse_7's picture
Lighthouse_7
Posts: 1566
Joined: Jan 2010

Marsha,
I'm so sorry to hear this. Sending lots of positive thoughts and hope that you find the strength to get you through this.
We are all here and boy when we get together we can do wonders. Stay positive my dear and please keep us posted.
Hugs and Love,
Wanda

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Sending you prayers, encouragement and lots of support that your new treatment will work for you Marsha!

Hugs, Leeza

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Marsha, I am sending you prayers and lots of support and encouragement. Keep fighting and we will keep praying for you.

Hugs, Leeza

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Marsha, I am sending you prayers and lots of support and encouragement. Keep fighting and we will keep praying for you.

Hugs, Leeza

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

You will be in my prayers Marsha! Keep us updated as to how you are please.

Hugs, Lex

survivorbc09
Posts: 4378
Joined: Jun 2009

Praying the new chemo will be the answer for you Marsha.

Big hugs,

Jan

sparkle1
Posts: 222
Joined: Jun 2010

Marsha

So sorry to hear this news. My prayers and positive thoughts are with you. I know you are a fighter that will win this ugly fight.
Sparkle

Megan M's picture
Megan M
Posts: 3001
Joined: Dec 2009

Keep fighting Marsha! Praying for you!

Hugs, Megan

cahjah75's picture
cahjah75
Posts: 2623
Joined: Jun 2010

you are definitely in my thoughts and prayers. I'm so sorry the other chemo treatments have not stopped the growth of your liver tumors. Keep faith and don't give up hope.
{{hugs}} Char

Ritzy's picture
Ritzy
Posts: 4384
Joined: Aug 2009

Just saying hi Marsha and letting you know that you are in my thoughts and prayers.

Sue :)

sal314
Posts: 633
Joined: Jul 2010

to hear this news. But you MUST keep positive.

Just wanted to mention that if you haven't looked into TheraSphere Radiation therapy for your liver mets yet, you should. If you google TheraSphere Therapy, it will lead you to their website.

Though it's not a "cure"...it has had promising results and could give you more time. There are several people I know from the Esophageal Cancer board that have had it and it made a huge difference in their quality and quantity of life.

Blessings,
Sally

meena1's picture
meena1
Posts: 1005
Joined: Oct 2008

I agree with you. right now I am on the Xeloda pill and it seems to be working. but i feel so sick most of the time. I had a few good days, but i do not know how long they can prolong my life for. Sick of being sick. I hope that you get better news

CAchick's picture
CAchick
Posts: 277
Joined: May 2011

So sorry Cancer sister! You are added to my prayer list. I am so sorry you are having to do this. Life is not fair... I admire your bravery and courage. Keep talking on here, it helps (me anyway)...
(HUGS)

pinkflutterby's picture
pinkflutterby
Posts: 615
Joined: Jun 2009

Marsha, I am right there with you! My markers have jumped A LOT over the past few months, they are at an all time high of 696. Had a CT scan get the results on Tuesday, very worried! I can actually feel the lump in my breast again and that really scares me!!!

I will pray for you, try to stay positive, I really believe a positive attitude has a lot to do with it!!!

Alexis F's picture
Alexis F
Posts: 3604
Joined: May 2009

I hope the news gets better for both of you, Marsha and Meena. You are 2 amazing warriors and survivors!

Lex

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Marsha, you and Meena are on my prayer list! Prayers do work!

Hugs, Leeza

survivorbc09
Posts: 4378
Joined: Jun 2009

I'm so sorry Marsha. I can't begin to understand what you must be going thru.

Just know that I am always here for you and will be praying for you.

Hugs, Jan

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