May 18, 2011 - 2:55 am
Ok - finished my RAI last week, had my scans, and went for results today. Here is what the doctor said: The scans showed no uptake in the neck etc. Which could be good - meaning the tumors are gone, but also could be very bad meaning the tumors/lymph nodes are resistant to uptake of Iodine. In which case he says there is nothing they can do for me.
When I asked him to explain further - he simply said we would recheck in 6 months by checking the thyroglobin markers? He wasnt extremely clear. But if its resistant to iodine then......he didnt exactly say......
I have to be rather forceful in getting proper treatment and follow up here - so....
1. Exactly what blood work should I be having - I want to do it every 6 - 8 weeks.
I think he needs a lesson in sensitivity...
All advice welcomed