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Hairy Cell Leukemia

Posts: 2
Joined: May 2011

My dh was diagnosed with HCL almost two months ago and he will start chemo soon if his counts are appropriate.

We have three children (8, 5, & 4) and I know I should be strong, but I feel so weak and fragile inside. I have to keep it together for the kids and I don't want to scare him, but I am very scared! I am so confused that I cannot even articulate my feelings, concerns, etc. I knew we would face hardship, I never dreamed it would be so soon.

Thank you for listening.

marqimark's picture
Posts: 242
Joined: Jun 2011

My battle with colon cancer has been tough physically. First my mom got it now me.

My wife had a hard time but has bounced back now that I am NED.

I hope that we can help with our prayers and encouragement.

Please vent, I think it helps. And you have every right to be upset, scared, nervous and angry.


Posts: 1
Joined: Jun 2012

My husband was diagnosed with HCL over 14 years ago had his first treatment with 2CDA was only ok for a few months than it came back but we had a shitty doctor. Again he was treated with 2CDA but did not go well only because the hospital and doctor had NO CLUE....Now 3 years ago it was back but now we went to University of Pennsylvania in Philadelphia and again was treated with the 2CDA...So far he is doing ok...The KING and top doctor for HCL is Dr. Saven in LaJolla CA at Scripps Clinic he did the clinical trial on HCL with the 2CDA and know it all...Best of Luck you will be just fine..

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