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newly diagnosed and scared

happybently
Posts: 4
Joined: May 2011

My diagnosis has been to recent to digest. Six months ago 2 nodules were found one in each lung on a CT chest. We waited 6 months took a 2nd CT chest which showed the 2 nodules had grown. A week after that PET SCAN showed 2 more nodules, one in each lung. March the right side was operated on, thoroncotomy, sternal nodes biopsied, April left lung operated on section taken and one lobe removed. I am still short of breath and tired, light headed in pain. The path report said one nodule in each lung was grade 1 A adenomyosis bronchioaveolar cancer.
looking for support groups any ideas?

woodbinemurf
Posts: 3
Joined: Sep 2010

Inspire has a section for stage 1. I was also diagnosed 1a bac, with the upper right lobe removed in Sep 10. The shortness of breath will last for awhile, do the breathing exercises, and do your walking exercises. I was lucky in that I had VATS, so my recovery time was shorter. Hang in there!

catcon49's picture
catcon49
Posts: 388
Joined: Aug 2008

I'm a 3 year survivor stage 1a adenocarcinoma lung cancer not BAC though. But here I am 3 years later going to the gym 3 days a week, ZUMBA (aerobics) 3 days a week. Start slow, but you can recover. I don't know how much lung function you lost, but hopefully not too much. Stay strong. It is very scary, even more so in the begining. But as time passes some of the scariness goes away. I'm not sure it ever goes completely away. But now I mostly think about how fortunate I was to be dx soo early, especially at bedtime when I pray and thank God for allowing me to be a survivor. Good Luck. Keep us posted.

c

happybently
Posts: 4
Joined: May 2011

I am curious were you a smoker, I have not smoked. I am changing my stress management, I have stressed myself into migraines, an ulcer, insomnia etc all stress related, So I am teaching myself to knit, taking a class in meditation, joined a bible study and I am watching what goes in my mouth
Thank you for your comments

happybently
Posts: 4
Joined: May 2011

Thank you for your comments. I am trying to change the whole way that I deal with stress in my life. In the past I just had anxiety, migraines, an ulcer, insomnia and I can say it is all from me anxing to everything everyday. I am changing my diet, doing yoga, and will learn meditation.

lekkerone
Posts: 199
Joined: Jan 2011

I too had the VATS in Dec./10. There are days when I am not aware of having the surgery at all. I go to the gym 3 or 4 days a week and concentrate on the treadmill, rowing machine and have just started weights. I too thank God every day that I survived a diagnosis that terrified me. Actually, I didn't get the diagnosis until I had the surgery where it was found that the tumor was isolated and no nodes were involved. I think every time we have a scan we will be anxious.
Give yourself more time. You will be short of breath for awhile. Keep walking as much as you can and use the breathing device you got in the hospital. The pain should lessen but there is often (according to my surgeon) residual nerve and rib pain that can last for quite some time.

happybently
Posts: 4
Joined: May 2011

Hi
How often are you getting scans to check? Was chemo or radiation offered to you? I am changing my lifestyle a lot. Will learn meditation, knitting, joined a bible study. what do you do for support?

mamacita5's picture
mamacita5
Posts: 254
Joined: May 2010

I have found JOY in yoga! Make sure it is the gentle kind like Svaroopa yoga. One of the best things I have done for myself. Good luck with your treatments whatever they might be. Diagnosed April 2010 NSCLC 3a. Currently NED (no evidence of disease).

catcon49's picture
catcon49
Posts: 388
Joined: Aug 2008

I got a scan after 6 months that 6 months later a chest xray they alternated them for the first 2 1/2 years. This was because I also have the Breast/Ovarian gene mutation, so they were watching how much radiation I was getting. Now I don't have to go back for 1 1/2 years. I am thrilled, but still a little nervous that they aren't watching as close. My doctor told me I will always be monitored. Hope this helps

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