Apr 12, 2011 - 4:09 pm
So it's been about 6 months since I finished chemo. About 6 weeks post-chemo, I started experiencing severe joint pain. Mainly in my hands & wrists, knees, and hips. I was on pretty heavy duty painkillers for a few months, and it started feeling better, so I was down to taking a combination of ibuprofen and tylenol to control the pain. Well, the pain has flared up again. Now it's not only extremely painful, but my hands are swelling up at random times, I'm having trouble sleeping because I can't get comfortable, and I'm not getting any relief. I called my Onc yesterday about it - I had a check up appt scheduled for Friday anyway, but I explained to them that I was having terrible pain & wanted to see him a.s.a.p. so they got me in this morning. Dr told me that at 6 months past chemo it should be out of my system, and that's not causing my pain. Along with my regular blood work he ordered all kinds of tests for rheumatoid issues as well as lupus. All I know is - I'm 35, I feel like i'm 65. I don't walk - I shuffle. I have a 2 and 1/2 yr old at home and i cant pick her up half the time. I didn't have this pain AT ALL before I had chemo. He says it's NOT a side effect from the tamoxifen im on, either. So, I'm to call back in 2 days for my test results and other than that, he said he'd see me in a month. I'm so upset and frustrated. I hurt SO BAD. I just can't accept that this is just part of cancer treatment and I need to learn to live with the pain. I know I will never be the same person as I was before cancer. But I refuse to accept that I just have to live with this. Do any of you have anything similar going on?