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Marianne313
Marianne313 Member Posts: 124
edited April 2011 in Colorectal Cancer #1
My Aunt has stage 4 colon cancer, they've said it's completely throughout her liver, so much so that they cannot operate on that. I'd like to know if this means she will die quickly or will we have her around for awhile. I know cancer that has spread to other organs is "worse". I would never ask her since she's still at the stage where she claims she doesn't know what stage cancer she has and doesn't want to know.

Don't get me wrong please, I don't want to know exact days, right now she seems so fine and healthy and I just don't want to go see her again and find her close to death. I'm not stating any of this very well. I try to see her 2 or 3 times a week and talk to her at least 5 or more times a week. She's good at hiding things and I would like to know when she .... just how long things might be. I know this is sounding cold, like I just can't wait for her to pass, but that is very far from true.

Thank you,
Marianne

Comments

  • lisa42
    lisa42 Member Posts: 3,625 Member
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    everyone is different
    Hello Marianne,

    Sorry to hear about your aunt. When I was diagnosed with stage IV rectal cancer in August of 2007, I was also not a surgical candidate because it was all throughout my liver and both lungs. Things were really bad at that time & I was started right away on Folfox chemo (oxaliplatin, 5FU, leucovorin) and Avastin. My cancer responded well and on my first scan (after 3 treatments), my cancer already showed then that it was responding well and tumors were shrinking. I took a total of 10 treatments (the recommended protocol is 12 treatments). I stopped after 10 due to a severe allergic reaction to the oxaliplatin.
    (they have ways of dealing with that now that are better than when I got it).

    Anyhow, after my treatments ended, I then became a surgical candidate for liver surgery to remove the 3 remaining tumors (there were 15 to begin with in there).
    I did have to go back on chemo a couple of times and upon my second recurrence close to 2 yrs ago, I have been on chemo ever since. That's a bummer, but my chemo is keeping things from getting any worse, and it has not spread to any additional locations since diagnosis (except I did have a recurrence in the liver and rectum).
    I am actually functioning well, still remain a busy wife and mom of three kids (now 18, 15, & 11). I take some additional supplements (under care of a naturopathic dr and with approval of my oncologist), which I believe are helping my body stay strong & my labwork numbers have all really been good the past 6 weeks (I've been taking the supplements for about 2 months now).

    Anyhow, how your aunt does really cannot be predicted- so much depends upon age, strength of her body, and especially upon her willingness to want to be treated, and really upon her inner strength and motivation to be a "fighter" in this battle with cancer. Nothing scientific here, but it seems to me that those who don't care to find out about their treatments, other options, and if they have a "woe is me" attitude the whole time, that they actually can affect how things go & the "I'm going to stay alert, involved in what my doctor is doing and will even research new possibilities for myself, and I'm going to fight like hell- well it seems (at least looking at some on the board here) that those are the ones who live longer.

    I personally also have a strong faith in the Lord, and really draw on strength from him and have a good peace about it all.

    Take care,
    Lisa
  • Vickilg
    Vickilg Member Posts: 281 Member
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    lisa42 said:

    everyone is different
    Hello Marianne,

    Sorry to hear about your aunt. When I was diagnosed with stage IV rectal cancer in August of 2007, I was also not a surgical candidate because it was all throughout my liver and both lungs. Things were really bad at that time & I was started right away on Folfox chemo (oxaliplatin, 5FU, leucovorin) and Avastin. My cancer responded well and on my first scan (after 3 treatments), my cancer already showed then that it was responding well and tumors were shrinking. I took a total of 10 treatments (the recommended protocol is 12 treatments). I stopped after 10 due to a severe allergic reaction to the oxaliplatin.
    (they have ways of dealing with that now that are better than when I got it).

    Anyhow, after my treatments ended, I then became a surgical candidate for liver surgery to remove the 3 remaining tumors (there were 15 to begin with in there).
    I did have to go back on chemo a couple of times and upon my second recurrence close to 2 yrs ago, I have been on chemo ever since. That's a bummer, but my chemo is keeping things from getting any worse, and it has not spread to any additional locations since diagnosis (except I did have a recurrence in the liver and rectum).
    I am actually functioning well, still remain a busy wife and mom of three kids (now 18, 15, & 11). I take some additional supplements (under care of a naturopathic dr and with approval of my oncologist), which I believe are helping my body stay strong & my labwork numbers have all really been good the past 6 weeks (I've been taking the supplements for about 2 months now).

    Anyhow, how your aunt does really cannot be predicted- so much depends upon age, strength of her body, and especially upon her willingness to want to be treated, and really upon her inner strength and motivation to be a "fighter" in this battle with cancer. Nothing scientific here, but it seems to me that those who don't care to find out about their treatments, other options, and if they have a "woe is me" attitude the whole time, that they actually can affect how things go & the "I'm going to stay alert, involved in what my doctor is doing and will even research new possibilities for myself, and I'm going to fight like hell- well it seems (at least looking at some on the board here) that those are the ones who live longer.

    I personally also have a strong faith in the Lord, and really draw on strength from him and have a good peace about it all.

    Take care,
    Lisa

    lisa42
    Very well said... it is great to hear a positive voice!
  • John23
    John23 Member Posts: 2,122 Member
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    How long?
    How long?

    You'll hear from many here, that have lived longer than the
    prognosis, some by many, many years (I'm one of those).

    I was diagnosed as stage 3c/4 back in 2006 (but accepted the
    "3c" as accurate). I finally found out recently, that I've been a
    stage 4 for all that time. My prognosis in 2006 was very bleak,
    at best......

    A prognosis is based on how fast a rate the cancer is growing
    right now (time of diagnosis). The time is then projected based
    on the assumption that the cancer will continue to grow at that
    same rate. Using that arbitrary "formula", they try to determine
    how much damage the cancer will cause, and when it will take
    over critical organs that our body cannot do without.

    So the assumptions can be wrong, or they can be very accurate,
    and we have no real way of knowing until the chubby lady sings.

    There are things that can be done to slow the progress of cancer
    cells, or even put the whole thing into remission. Chemotherapy,
    radiation, etc are the usual ways, but there are other very good
    alternatives also (I never did chemo or radiation, opting for
    an alternative instead).

    Your aunt should get another opinion regarding her cancer
    situation. The opinion should come from a specialist outside
    the area, if possible. It should never be from a physician in the
    same group or organization as the initial physician.

    Don't feel that you will be insulting the physician. Most all decent
    physicians welcome other physician's opinions. It's a good way
    for them to learn of new techniques and procedures that they may
    not have had time or resources to have found out about otherwise.

    There are many ways to rid the liver of cancer; the liver is one
    of the few organs that can replicate itself (If they chop off a chunk,
    it manages to grow back). So having cancer in the liver isn't
    the end of the picnic, not if it's addressed soon enough.....

    So as far as a "time frame"? I chose to assume I wouldn't be
    around, and did things in an effort to make sure my wife won't
    have too many issues to deal with "after I'm gone".

    The upside, is that I'm still here, and having made some aspects
    of life easier for her, it's also made my life easier as well.

    "Prepare for the worst; hope for the best", is my suggestion to
    anyone diagnosed with cancer. It doesn't do anyone well to
    "think positive", if in doing so, they're evading having to face reality.

    The reality is - cancer is considered a terminal disease.

    Not too many people (or animals) get cancer and survive
    without ever having a problem with that cancer.

    I have gone since my diagnosis of cancer in 2006 without any
    trace of it, but I expect I'll die from cancer eventually. The "odds"
    are stacked against me; that is reality.

    When I'll die, isn't something that can be determined in advance.

    Like that blade of grass that grows between the cracks of a
    busy highway, we cannot determine life expectancy very well.

    Take a day at a time, and get your aunt other opinions for some
    sort of a resolve to her cancer situation.

    Study all the information carefully, and explore the alternatives
    as well. Your aunt -does not- have to get sick from treatments
    to get better and/or live longer.

    There are other ways, always.

    My very best wishes for you all.

    John
  • Marianne313
    Marianne313 Member Posts: 124
    Options
    John23 said:

    How long?
    How long?

    You'll hear from many here, that have lived longer than the
    prognosis, some by many, many years (I'm one of those).

    I was diagnosed as stage 3c/4 back in 2006 (but accepted the
    "3c" as accurate). I finally found out recently, that I've been a
    stage 4 for all that time. My prognosis in 2006 was very bleak,
    at best......

    A prognosis is based on how fast a rate the cancer is growing
    right now (time of diagnosis). The time is then projected based
    on the assumption that the cancer will continue to grow at that
    same rate. Using that arbitrary "formula", they try to determine
    how much damage the cancer will cause, and when it will take
    over critical organs that our body cannot do without.

    So the assumptions can be wrong, or they can be very accurate,
    and we have no real way of knowing until the chubby lady sings.

    There are things that can be done to slow the progress of cancer
    cells, or even put the whole thing into remission. Chemotherapy,
    radiation, etc are the usual ways, but there are other very good
    alternatives also (I never did chemo or radiation, opting for
    an alternative instead).

    Your aunt should get another opinion regarding her cancer
    situation. The opinion should come from a specialist outside
    the area, if possible. It should never be from a physician in the
    same group or organization as the initial physician.

    Don't feel that you will be insulting the physician. Most all decent
    physicians welcome other physician's opinions. It's a good way
    for them to learn of new techniques and procedures that they may
    not have had time or resources to have found out about otherwise.

    There are many ways to rid the liver of cancer; the liver is one
    of the few organs that can replicate itself (If they chop off a chunk,
    it manages to grow back). So having cancer in the liver isn't
    the end of the picnic, not if it's addressed soon enough.....

    So as far as a "time frame"? I chose to assume I wouldn't be
    around, and did things in an effort to make sure my wife won't
    have too many issues to deal with "after I'm gone".

    The upside, is that I'm still here, and having made some aspects
    of life easier for her, it's also made my life easier as well.

    "Prepare for the worst; hope for the best", is my suggestion to
    anyone diagnosed with cancer. It doesn't do anyone well to
    "think positive", if in doing so, they're evading having to face reality.

    The reality is - cancer is considered a terminal disease.

    Not too many people (or animals) get cancer and survive
    without ever having a problem with that cancer.

    I have gone since my diagnosis of cancer in 2006 without any
    trace of it, but I expect I'll die from cancer eventually. The "odds"
    are stacked against me; that is reality.

    When I'll die, isn't something that can be determined in advance.

    Like that blade of grass that grows between the cracks of a
    busy highway, we cannot determine life expectancy very well.

    Take a day at a time, and get your aunt other opinions for some
    sort of a resolve to her cancer situation.

    Study all the information carefully, and explore the alternatives
    as well. Your aunt -does not- have to get sick from treatments
    to get better and/or live longer.

    There are other ways, always.

    My very best wishes for you all.

    John

    how long
    Hi John,

    Thank you for such a nice, informative response. I don't know about alternative treatments or even how to find those. My aunt spent 36 days in the hospital/rehab combined and went home nearly 2 weeks ago, she's trying and giving up (although 81) isn't in her vocabulary :). She's spunky. She still says she's not sure about chemo, has not even made her appt. with the oncologyst yet and that's fine, I'm not pushing her in any direction. I know she's concerned for her son (who was diagnosed with asophageal(sp?) cancer and just started Chemo 2 weeks ago, it doesn't look good for him, he is 50 and in the last month has lost nearly 60 pounds. He really looks sick whereas my Aunt still looks the same to me. I read as much as I can on the board but since I spend so much time with my Aunt it's difficult because she doesn't have internet or even a computer (she may be the last person on earth not to own one) lol.

    Thanks again for feedback.
    Marianne
  • Marianne313
    Marianne313 Member Posts: 124
    Options
    lisa42 said:

    everyone is different
    Hello Marianne,

    Sorry to hear about your aunt. When I was diagnosed with stage IV rectal cancer in August of 2007, I was also not a surgical candidate because it was all throughout my liver and both lungs. Things were really bad at that time & I was started right away on Folfox chemo (oxaliplatin, 5FU, leucovorin) and Avastin. My cancer responded well and on my first scan (after 3 treatments), my cancer already showed then that it was responding well and tumors were shrinking. I took a total of 10 treatments (the recommended protocol is 12 treatments). I stopped after 10 due to a severe allergic reaction to the oxaliplatin.
    (they have ways of dealing with that now that are better than when I got it).

    Anyhow, after my treatments ended, I then became a surgical candidate for liver surgery to remove the 3 remaining tumors (there were 15 to begin with in there).
    I did have to go back on chemo a couple of times and upon my second recurrence close to 2 yrs ago, I have been on chemo ever since. That's a bummer, but my chemo is keeping things from getting any worse, and it has not spread to any additional locations since diagnosis (except I did have a recurrence in the liver and rectum).
    I am actually functioning well, still remain a busy wife and mom of three kids (now 18, 15, & 11). I take some additional supplements (under care of a naturopathic dr and with approval of my oncologist), which I believe are helping my body stay strong & my labwork numbers have all really been good the past 6 weeks (I've been taking the supplements for about 2 months now).

    Anyhow, how your aunt does really cannot be predicted- so much depends upon age, strength of her body, and especially upon her willingness to want to be treated, and really upon her inner strength and motivation to be a "fighter" in this battle with cancer. Nothing scientific here, but it seems to me that those who don't care to find out about their treatments, other options, and if they have a "woe is me" attitude the whole time, that they actually can affect how things go & the "I'm going to stay alert, involved in what my doctor is doing and will even research new possibilities for myself, and I'm going to fight like hell- well it seems (at least looking at some on the board here) that those are the ones who live longer.

    I personally also have a strong faith in the Lord, and really draw on strength from him and have a good peace about it all.

    Take care,
    Lisa

    everyone is different
    Hi Lisa,

    Thank you very much for replying. I know chemo could be good or bad, I know it depends on the person and that every little aspect can affect how their health goes. So much is tied into how we feel (moods). As I mentioned to John (above), she doesn't know if she wants to do chemo and I won't push the issue. She is 81--turned 81 in the hospital, she is stubborn and spunky and is trying hard to get back to "her old self". She's way too stubborn to give up or give in to anything, especially illness. I will do my best to be there for her in whatever she decides. Since her son is so ill I know she's concerned about him and I think, for now, that's where her mind set is and not on her own health. I think, if he dies, it will kill her anyway, him being her only child.

    I do appreciate all the feedback, comments, words of wisdom or just thoughts others post. Thank you very much for writing.
    Marianne
  • plh4gail
    plh4gail Member Posts: 1,238 Member
    Options
    Hi Marianne I'm Gail. You'll
    Hi Marianne I'm Gail. You'll be getting more comments from others closer to your situation. I know many here have lived their own prognosis and not their Doctors. My Dx is 3C and my tumor was in my rectol/colon and lymph nodes. Good wishes to you family.

    Gail