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Thyrogen

diane2h81's picture
diane2h81
Posts: 41
Joined: May 2010

I had my first thyrogen injection this morning and all is well so far. So... in tomorrow for the second injection, scan dose of radiation on Wednesday and then in Friday for the scan. This will determine the action plan. More radiation or surgery and radiation again... is there really one that is better than the other? :-/
But... very soon I'll get to eat normal again. I can't wait to have pizza and cereal with milk.

nasher
Posts: 507
Joined: Apr 2010

Good to hear... in May I am doing the thyrogen shots as well for my 1 year out scan.

please keep us up to date on the progress and any hickups that may come up with this method.

good luck and hopeing for a clean scan

Craig

LBlackman
Posts: 113
Joined: Mar 2011

So glad you have day 1 underway....that means you are one day closer to milk, cereal and my favorite PIZZA! I pray this will be clear and then end of radiation or surgery for you! Keep us posted!
Lynne

Baldy's picture
Baldy
Posts: 225
Joined: Mar 2011

Great! Keep us up to date.

I'm about 2 weeks behind you. Just started my LID today. RAI treatment starts with Thyrogen on 4/11, 4/12 and so on.

wendybyrd74
Posts: 18
Joined: Feb 2011

Good news indeed.

@Baldy - We are on the same path. Thyrogen on 4/1 & 4/12, RA on 4/13. I started my LID last Monday 3/21. Not as bad as thought .... I am still trying for variety in the 'breakfast' thing....

Good Luck to all.

Baldy's picture
Baldy
Posts: 225
Joined: Mar 2011

Wendy,

Variety, you bet. I went to the grocery store today looking for anything I can add that is different. Unfortunately, my standard grocery store is just that, "standard". I couldn't even find unsalted mixed nuts! There is a much better stocked one about 40 minutes away that I'm going to visit sometime this week. I like my carbohydrates and I'm finding very little that I can eat in that group. I'm going to get some matzah and whatever else I can find.

Alan

diane2h81's picture
diane2h81
Posts: 41
Joined: May 2010

I had the second shot today and decided to use my right arm, my left is a bit sore and tender from the first shot yesterday.
I did have a bit of nausea yesterday and crossing my fingers that is all the side effects to come from this drug. We shall see, it's only been an hour since the shot.
And thank you all for your support, it really means a lot :)

LBlackman
Posts: 113
Joined: Mar 2011

Did they do labs before your scan?

diane2h81's picture
diane2h81
Posts: 41
Joined: May 2010

My scan is this Friday.
1st shot yesterday.
2nd shot today.
Radioactive iodine tomorrow with lab work to follow.
Thursday is rest day ;)
And Friday is the scan with more lab to follow.

I started to get a little nervous yesterday about the scan but then remembered that it is not going to tell me too much that I don't already know. I know I still have cancer somewhere, my last few lab reports indicated that. But we just don't know where and how much. I had a CT scan but that didn't show anything. And the ultrasound of my neck didn't show anything either, other than scar tissue. So we are pushing my 1 year scan up a few months to try and find this nasty little thing.

This scan is to give us a better understanding of what the next step in my game will be.

LBlackman
Posts: 113
Joined: Mar 2011

Thanks Diane! So glad to hear a positive attitude. I really think my Dr. is more confused than I am. I hope things go well for you and I know with that attitude and a great Dr. you will beat it. Good luck and thanks for the information. Just think....three more days and PIZZA!!

diane2h81's picture
diane2h81
Posts: 41
Joined: May 2010

Thanks!
It really helps to have great support from everyone here :)

I can't wait!!! Pizza!!! And... I nice tall glass of cold milk :D

sunnyaz
Posts: 582
Joined: Oct 2010

I had my shots in the butt. I think it hurts less.
Julie-SunnyAZ

Baldy's picture
Baldy
Posts: 225
Joined: Mar 2011

Arm or butt, either comes as a surprise to me. I assumed {yes I know what that makes me} they would start an IV and put it directly into a vein. Of course starting an IV can be unpleasant too. Though before each of my ops I was somewhat dehydrated which makes it harder to get a good vein.

If I remember, I will ask the shooter what my options are. I tend to forget stuff when in the presence of medical types, which is why I usually write all my questions down before hand.

Thanks Julie :)

diane2h81's picture
diane2h81
Posts: 41
Joined: May 2010

The nurse did make a comment on the lack of meat on my arms. Maybe the booty would have hurt less, there is plenty of meat there, lol.
But both arms are just a little tender right now, not too bad.

I have read a lot on the drug and it can only be injected into a muscle. And on some sites it stressed that it should not be delivered via a vein.
And I think I would prefer a shot over a vein, short and quick. But boy do I hate needles.

The website for Thyrogen has a full prescription PDF.
http://www.thyrogen.com/home/thy_home.asp
Thyrogen is supplied as a sterile, non-pyrogenic, white to off-white lyophilized product, intended for intramuscular (IM) administration after reconstitution with Sterile Water for Injection, USP. Each vial of Thyrogen contains 1.1 mg thyrotropin alfa, 36 mg Mannitol, 5.1 mg Sodium Phosphate, and 2.4 mg Sodium Chloride.
http://www.thyrogen.com/pdfs/pi.pdf

Hope that helps :)

LBlackman
Posts: 113
Joined: Mar 2011

I was wonderding as they give me mine in the booty too....I tend to have the vagal response with needles so I prefer a quick shot to an I.V. Diane, you are really cracking me up! I needed that smile this morning....just remember you are two days away from pizza!!!! Hang in there!

Baldy's picture
Baldy
Posts: 225
Joined: Mar 2011

"But boy do I hate needles"

Amen, I've been poked at least two dozen times in the last three months, but I still have to be at least semi-prone or I'm out like a light.

I also prefer a shot to an IV, but I was hoping they'd start an IV Monday and leave it in until they were done Wednesday. I have two shots and two blood tests ... IIRC. I'd rather have one IV then four pokes. Oh well, so much for that hope.

I hope the Thyrogen isn't as bad as the tetanus booster I had this fall, my arm was sore for days.

sunnyaz
Posts: 582
Joined: Oct 2010

Hi Everyone!

I would definitely recommend the Thyrogen shots in the glute (upper hip area) muscle. I have had six of them during my treatments and never had soreness at all. The larger the muscle the less pain involved. I know this from experience after having six of them but also because I give shots to patients many times in a day. Thyrogen should be done IM (intramuscular).

Tetanus IS a painful injection Craig. Almost every patient I have ever given one has had soreness from the injection. It's due to the vaccination, not so much the needle. It's common to have redness, swelling and even a bit of warmth at the injection site. Some even experience a slight fever. It goes away within three to five days typically. Here is a word of advise for anyone getting an injection; I always have my patients try to relax the muscle as much as possible, make it like Jello ( I know this is hard when you know a needle is coming at you). But this will help reduce the pain of the needle. When the muscle is tense the needle will make a larger hole upon relaxation thus causing more soreness and pain. I hope this helps someone. I know it's no fun getting an injection (and no fun giving them-believe me) but I hope I helps ease the pain for at least one person. I have several patients that always request that I give them their injections because they rarely feel it. The needle should go straight into the skin and straight out. Moving the needle is another factor in the cause of painful injections so be very still and relaxed while getting your injections.

Blessings to all,
Julie-SunnyAZ

diane2h81's picture
diane2h81
Posts: 41
Joined: May 2010

Here's an update, not much but something.
I took the radiation pill Wednesday and I should be good to go for my scan later today at 2:30.
So far the only side effects were just a bit of soreness in the arm from the injections (use more meat and less soreness should happen, thanks Julie), and a bit of nausea. But nothing from the radiation, way too small to do anything
But I'm going straight for pizza after the scan :) And then to the Pub Run. We are doing a fundraiser for American Cancer Society tonight during the run. If you live in or around San Antonio you should join us, it's tons of fun.
I'll update on the results of the scan this weekend. Fingers crossed.

LBlackman
Posts: 113
Joined: Mar 2011

You go girl! You must really be an energetic person to be going on a pub run after all this.....I pray things turn out well and know you are looking forward to pigging out on that pizza! I will also remember to request hip injections as there is more meat there on me as well..lol Have a great time, got my fingers and toes crossed for ya!
Lynne

sunnyaz
Posts: 582
Joined: Oct 2010

That's awesome Diane! I am doing the Relay For Life tomorrow for the American Cancer Society. We are going to relay for twelve hours. I am soooooo looking forward to it. Our group raised over $36,000. There are several relays all over the country this weekend so if our group raised that much, can you imagine how much the entire country will raise? This is such a great cause! Here's to finding a cure and your pizza attack!
Julie-SunnyAZ

diane2h81's picture
diane2h81
Posts: 41
Joined: May 2010

I finally had my pizza and the best chocolate milkshake ever on Friday. Pub run was a blast. It was a friends 2 year birthday of her breast cancer diagnoses, we all had on pink for her and then our ACS determination colors. My one year is right around the corner on April 13th.
My scan came back clear which is good news, but it is somewhat stressful still since I know from my labs that the cancer is still there but still don’t know where. But at least it is not localizing and growing big! Just microscopic.
I have one more set of labs that I'm waiting on and then we will make a decision as to what the next step is.

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