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ROSYR Re: MMMT

nempark

Hi Rosy: I chose to do a new topic since it is possible to get lost. I was diagnosed in October 2009. Stage 1A grade 3. I had total hyst everything removed. No other organs were infected. I did not chose any of my treatments, my doctor did and ignorant and devasted as I was, I did everything he wanted me to do. I am one of Jehovah's Witnesses and I went to Englewood Hospital in New Jersey where it is common for them to perform surgery without blood. Excellent service and my Doc/onc/surgeon did an excellent robotic surgery. Recovery was a breeze. Anyway after 6 sessions of chemo, he was the one who said that he was not recommending radiation. I did leave everything up to this doctor since me or my family did not know anything about cancer and the treatment involved. By the Grace of God, I managed well. I am now 16 months in remission. I would not say I feel "Great" but I am fine. Sometimes when I stand too long I get terrible back pains and pelvic pains. I hope you and others who read this blog are doing fine if not now soon. I will be more than happy to answer any of your questions. What is your diagnosis and what stage and grade. By the way, I was trying to get in touch with Carrie the first post on the MMMT thread but to no avail. Best regards June

RoseyR
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So you had six rounds of chemo (I assume taxol and carboplatin?) but no radiation. How interesting.
Did you do the six rounds without any real pause--and if so, what effects did you have?

So glad you've been in remission for two and a half years, it sounds like.

There IS some research suggesting that chemo is more effective than radiation for MMMT, by the way.

Warmly,
Rosey

nempark
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Rosy: I am 16 months in remission not 2 1/2 year that would have been a good thing. I had chemo every three weeks. I had no side effects except, of course, I lost my hair (didn't mean a thing to me) I was just focused on getting better. I was more afraid of what I heard about chemo than what it really did. I had lots of friends and family by my side and I think that meant a lot --- faster recovery. But, I also had taken a lot of vitamins. I took something called Nature's Sunshine (brand) Immune stimulant, silver shield and a tea called pau de arco. I am sure they contributed to my recovery. Right now I am not feeling so well, my back hurts periodically and the pelvic area. I have heard on line that some of the friends here have the same kind of pain that is why I am not too concerned. Also this will be surprising to hear---I have not lost weight as a matter of fact I didn't ever lose my appetite during chemo (LOL). Please let me know how you are doing. Lots of good wishes for you and your fast recovery. June

RoseyR
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Dear June,

Have recovered really well from three rounds of taxol/carboplatin except for the news I got Friday that my hemoglobin is too low (about 9.1 instead of the 11.5 - 15 considered "normal.")

Two out of four doctors whose opinions I sought advised me to do pelvic radiation (IMRT), not just brachtherapy, so I have bitten the bullet and decided to do it despite serious reservations about radiation. Treatment starts in two weeks, to be followed by three final rounds of the same chemo I started with. (It seems like SO much treatment that I jsut take one day at a time; otherwise, would feel overwhelmed.)

I may post a new subject--on how to raise hemoglobin levels without taking iron.

Thanks for your reponses, and hope YOU are doing OK.

Hugs,
Rosey

Hu

RoseyR
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Dear June,

Have recovered really well from three rounds of taxol/carboplatin except for the news I got Friday that my hemoglobin is too low (about 9.1 instead of the 11.5 - 15 considered "normal.")

Two out of four doctors whose opinions I sought advised me to do pelvic radiation (IMRT), not just brachtherapy, so I have bitten the bullet and decided to do it despite serious reservations about radiation. Treatment starts in two weeks, to be followed by three final rounds of the same chemo I started with. (It seems like SO much treatment that I jsut take one day at a time; otherwise, would feel overwhelmed.)

I may post a new subject--on how to raise hemoglobin levels without taking iron.

Thanks for your reponses, and hope YOU are doing OK.

Hugs,
Rosey

Hu

nempark
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Thank you so much for the update. Lots of friends here have had hemoglobin problems but they all managed to pull through. So will you. Hope all goes well and I am going to look at "how to raise hemoglobin levels. Thanka!

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