Mar 12, 2011 - 12:45 pm
Unfortunately, the bad news kept on coming yesterday. He didn't have to have the lumbar puncture b/c the MRI showed the cancer had spread aggressively throughout his brain--and these were new, large lesions that weren't there on the MRI he had about a month ago. There is nothing else they can do. They give him only weeks--maybe a month. I took him home last night and set up home hospice.
He is hallucinating and we had a few scary moments yesterday evening. He thought he was being attacked by an intruder and was trying to escape--I had to wrestle him to the ground until he calmed down. I am trying to get a crisis care aide for the weekend before the regular home health aide and other hospice stuff kicks in on Monday. Otherwise we will muddle through on our own. I have Haldol to give him when needed. He is calm and sleeping now.
I know a lot of you have been through this and now it's my turn. I will find the inner resources, like you all have, to deal with it. I broke down last night and probably will again, but right now I am relieved that we have a plan and supports in place. I just have to figure out how I can go to work for 1 day next week to get things in place while I take a leave of absence.
Thank you all for your wishes--we still need them, for a painless and peaceful journey.