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Sensitive Bald Head

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hey... I have a question... not sure if it is gender specific or not. But definitely, for anyone who has lost all the hair on their head because of chemo... have any of you ended up with extremely sensitive skin on your head? To the point it hurts and burns? I know I have developed a rash over all the sensitive parts of the skin and it's this rash/sensitive skin that is tender to the touch and burns.

Just before my hair started falling out, I could feel the skin on my head tingle. Not like a neuropathy or oxi tingle... but it was a tingle that then turned sensitive to the touch. My hair all fell out very quickly because of the Irinotecan, but it's the sensitive/burning skin that is now developing into a rash (almost looks like an allergy, but we don't think it is).

I stopped in at my GP today and asked him to look at it. He said it was very "interesting". Oh great, I have an interesting alien starlet head! He says that he's pretty sure that it's not the chemo doing weird things to my skin... so over the weekend he wants to treat it as a dermatology problem... and has prescribed a hydro-cortozone 2.5% cream to see if this will clear it up over the weekend. (side note... when I went to my pharmacy, they didn't have any and I was really starting to fade... so they told me to go home and relax, the pharmacist would mix me up a bottle and then they would deliver it to me this evening between 5-7pm... free service. I thought that was mighty good customer service). Anywho... I've been putting the cream on since I got it and it feels great when I put it on... but within an hour or so, it is burning again.

I'm sure it's some kind of allergy or reaction to a med... but just wondering if anyone else has experienced this?

Cheryl

maglets's picture
maglets
Posts: 2441
Joined: Jun 2006

sorry cheryl I have never been completely bald but I did have that oxy scalp pain....ohhhh hurtie head....

hope the cortisone cream with soothe you....such a nice pharmacy

take best care hon

mags

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Now, what's this you've never been bald?!?! We can arrange for that in a blink of an eye!! I could get out a handy dandy razor and fix you up in no time .

Think of the pictures! The photo shoot! We could fly across the country, yelling and shouting at the people, the politicians, the entertainers! People everywhere will want to copy our look!

Don't you think this has some appeal? :D :D :D

Cheryl

maglets's picture
maglets
Posts: 2441
Joined: Jun 2006

canuck bald chicks flaunting their stuff....kinda of an oxymoron don't you think???/

I mean really angel it is so darned cold we should have hair down to our knees just trying to keep warm but if you insist i shall be happy to join you on the cross country tour.

it couldn't just be stubble rub?? could it? just teeny tiny hairs being irritated....???

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Thanks, Graci... ya, I guess since I just got the cream last night, I should give it at least 24 hours to kick in .

It does feel a bit better this morning... although, visually, it definitely looks like an irritable rash. To me, it looks like a rash you get from an allergy. And now that I'm a bit more awake (I actually slept through the whole night last night! Yippeee!), I just realized that after that first treatment of the Irinotecan, the one where I was sooooo sick.... well, in the 3rd week, I developed a rash that, now that I think of it, looked very similar to this one, but it was on my chin! At the time, I just put it down to a heat rash or a reaction because I was soooo miserable after that treatment... but DUH! Perhaps it is a reaction to either the chemo or one of the anti-side affect meds and was mild that first one... but now here we are with the second (half dose) treatment and sure enough, in the second week it shows up... this time on my head??

Never a dull moment.... and although I'm not a doctor and don't play one on TV, I think this week I'll put on my doctor costume and get to the root of this . What the heck, it's a rainy Saturday... must solve the world's problems today :)

Cheryl
Alien Rash Starlet

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

reaction with pillows , caps and everything, easily solved with TALQUISTINA,a kind of Talcum powder with some antihistaminic ,
I'm sure you got there as well maybe with different brand, look at the Internet ! 24 h and rush gone!
Hugs!

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Hi Cheryl,

Wow- you definitely got nice, personalized pharmacy service. I have not been bald before, but when my hair started thinning, I definitely got that sore scalp. So much that I couldn't brush or style the hair I still had- it was way too sore. It lasted a few days, then got better. I'm even wondering if the rash you've been having could be a reaction to a soap or shampoo or body wash or something like that from the shower. That newly revealed skin on your scalp is so sensitive, so anything could irritate it. I don't know, just a thought.
You hang in there- I know things will get better.

Hugs,
Lisa

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

I hear you, Lisa... and I was thinking along the same lines. Not so much the shampoo/conditioner, since it is the same that I've always used and not had a problem with.... but was thinking more along the lines of it possibly being one of the anti-side affects meds (Emend? Zofran? Lomotil? Desamethasone?) These are all pretty strong meds and I only take them when I'm on chemo. But why the head?? .

That's when I remember the first chemo treatment that was so bad... I did get the same kind of rash on my chin but didn't really think anything of it. Now I'm thinking there must be a connection... but I'm not longer getting it on my chin... just all over my head! It's an enigma!! :D

But, I've got my GP working on it... and when I next see my onc, I'll let her know too :) Meanwhile, it seems this hydro-cortizone 2.5% cream is kicking in. Rash is still there, but not burning like it was pre-cream.

And yes, I was surprised... and very impressed with the pharmacy service. I had never really thought about it before. I mean... you drop prescriptions off and either wait while they fill them, or come back and pick them up. I always found it convenient that I could drop them off and while they were getting them ready, I'd do my grocery shopping. It never dawned on me that maybe one day I just wouldn't have the energy to wait, or maybe was too ill to actually go in to pick them up. Now, it wasn't that I was ill... I was just really, really tired and had overdone my running around yesterday... so I could feel the fatigue starting to set in and I really needed to get home because I had my car with me and knew if I got too tired, I shouldn't be driving ;)

No big deal... I mean, I could have just gone home and either come back today... or my neighbour would have walked over (about 8 blocks) and picked it up for me. But, I was tired, getting cranky and my head felt like it was on fire . I really like the pharmacy staff because they go out of their way to get to know you, your meds and how you are feeling. He could see I was tired and it was so nice to have him say, "Go home Cheryl and rest. We'll get this made up for you and deliver it this evening." Hey, I would have paid for that service... very convenient to have! But no, they offer this free for their customers. When you think of it, it's excellent customer service because, who in their right mind would ever change pharmacies after that kind of service??? Great way of keeping their regular customers :)

Cheryl

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

got the same problem , it was really terrible and unconfortable! tried cortisone , creams and everything , but the best was this kind of TALCUM!
Hugs!

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

I'm so sorry it appears I have ignored you... I haven't!! I am paying deep attention to you and believe you 100%. I am going to look for this talcum powder you have spoken of but it appears to be a Spanish product. I may have to send Maglets on a flight to Spain so she can personally pick it up from you and then fly back to Canada, cross country to Vancouver and deliver it to me :) No, really... I will look to see if we have something similar here because Diva Cheryl insists on comfort at all times.... and you are right, this rash is horribly irritable and uncomfortable! It looks like the main ingredient in it is the calomine lotion which definitely would be a big help... so if I can't find a similar talcum powder with it in, I will pick up a bottle of calomine lotion... to go with this prescription cream that seems to be starting to work.

@Mags hahahaha... ok, my silk lingerie is lacking as well... and have a full set of flanel and cotton. Must be a Canukian thing We are going to have to go shopping... and now on the lookout for a silk pillow?? I stop at the satin sheets.... I'll slide out of bed with them and land on my nekked noggin!!

@Sandy Aquaphor? Ok... just googled it and it seems like a fairly common product... I should be able to get that up here.

Thanks, gang!! Pretty soon I'm going to have a basket full of products for my noggin :) :) It'll be he smoothest noggin on the West Coast... soft as a baby's bum!! :D

@Mike Way to go!!! You get a nice long break from the dratted poison!! Enjoy the recovery time.... every day you will feel that much stronger just knowing the poison is leaving your body!! YAYAYAYA!! You did it!! :)

Cheryl
Alien Noggin Consultant

AnneCan
Posts: 3693
Joined: Oct 2009

I am sorry you have this to deal with. I have not been completely bald, but lost most of my hair a little over a year ago. My daughter cut what was left of my hair very short, + by then some of my hair was actually growing back in. Could your problem be due to razor burn? I hope you get some relief soon.

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Sorry about that... I missed this one :)

No, we had the hair, what was remaining of it, shaved off 2 weeks ago, so I think if there was going to be any kind of razor burn, it would have happened within a couple of days of being shaved. This is a definite "bumpy" kind of rash. I think I'll call it a "Mystery Rash" :D

Cheryl
Bumpy Alien Starlet :)

tootsie1's picture
tootsie1
Posts: 5016
Joined: Feb 2008

Hey, Cheryl.

You know I didn't do chemo, so I have no experience witht his, but just wondering if aloe gel would help. It is so good on cuts and burns and such.

Hope you're feeling much clearer soon!

*hugs*
Gail

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Talco, Calamina, Lanolina, Parafina, Perfume. ( in Spanish sorry) it works!

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hey Pepe, my Spanish Advisor!! I just wanted to let you know that although I have searched for Talquistina here in Canada (I think it's only a Spanish product and we can't get it here), I have continued the search for something similar. My search actually led me to a product here called Gold Bond Medicated Powder Triple Strength:

Gold Bond Medicated Powder

I realized I don't actually have the powder on hand, but I had it in lotion form... so I have tried it and it really does seem to help with the "itch" of the rash. At least it is soothing... not sure if it will work to get rid of the rash, but it helps with the comfort level.

Tootsie... the suggestion of aloe vera is a good one, although I have found in the past it really depends on the brand of aloe vera you get... some work really well, others I find irritate what you are trying to soothe. But I notice in this Gold Bond lotion, there is aloe vera as one of the ingredients, so I think I have my bases covered :)

Cheryl
Alien Starlet Still Playing With Hats :)

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

Here we grow our own aloe vera, I think everyone in Santa Cruz, has their own plants, I have indoor and outdoor ones for use on burns, etc...
Winter Marie

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

I used to have all kinds of aloe vera plants growing in the apartment, Winter! They were great, especially since I was forever burning myself in the kitchen ... and they were easy plants to keep because, other than overwatering them, you couldn't kill them!! They thrived on abuse!

Soooo, where are all my aloe vera plants?? I have no idea why I don't have them anymore and instead, seem to have big leafy green plants that are useless other than for nice greenery :)

Ok... on my "to do" list... off to the nursery I must go and pick up some aloe vera plants.

Besides... I actually saw the first Cherry Blossoms starting to come out on the trees, so Spring is DEFINITELY around the corner... and with spring comes all my good intentions of repotting and getting new indoor plants. Thanks for the tip/reminder... I now know which ones I need to get first :)

Cheryl

Love2Cats's picture
Love2Cats
Posts: 127
Joined: Dec 2010

Awhile back, Buzz told me to get som Aquaphor. He actually rcommended it for a sore "behind area', so when wiping, it won't get irritated. People also use it for other parts of their bodies too. I just picked it up last night, and for my test run, I put some on my hands right before bed last night. I must say, that my hands look better than I have seen them in years. I got the Aquaphor extra healing. Goodluck

Sandy

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

I don't know anything on the subject matter with the exception that I remember in chemo 101 class they said to use a silk pillow for your head at night. Pepecn's Talcum sounds likes a good idea too.
Love at ya.
Winter Marie

maglets's picture
maglets
Posts: 2441
Joined: Jun 2006

I agree winter marie....I think if even a little stubble is there it will be irritated by rubbing.....satin all the way.....

cheryl sending you my entire satin lingerie collection.....

oh wait I forgot ....i don't have one....no satin just flannelette for those canuck nights....

mags

thxmiker's picture
thxmiker
Posts: 1278
Joined: Oct 2010

I read about the hair loss. I already have a receded hair line, and it dropped another inch for me. I also got grey hairs in ky beard which I had a couple and now I have patches. My friend Suzzi lost her hair and now off Chemo for 4 months her hair is coming back.

I am photo sensitive since starting Chemo. I get red when in the sun for more then an hour. I was careful and never got sunburned.

The neuropathy was the worst for me. I have numbness and tingling in the balls of my feet to my toes, and my fingers tingle. I also am sensitive to cold. (I never was cold before, now I wear a sweater everywhere.) I have read these symptoms are temporary with maybe a little nerve damage permanently. I taste things differently also. I do not like sour or bitter things like I did before chemo.

I had my final chemo treatment last Tuesday! Woo Hoo! Now it is time for me to get stronger.

Best Always, mike

taraHK
Posts: 1961
Joined: Aug 2003

Hi Cheryl,

I'm on Irinotecan and have lost all my hair (well, almost all -- bit of fuzz left).

I definitely know what you mean about the tingleing (sp?) -- and not a pleasant kind of tingle.

But I haven't had that kind of rash.

But you mentioned you had a rash after your first Irinotecan. I get a "flush" on my face after every chemo. My chemo is on Friday morning, I get the flush on Saturday afternoon. Around my nose, cheeks, chin -- and it is really quite uncomfortable. The nurse says its due to the steroids (prechemo). Could it be that??

Also, are you using anything different in terms of shampoo, bath/shower products.....

I'm a strong believer in hydrocortisone --

Good luck!

Tara

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Yep... that scalp tingle/burn/sensitivity... kind of hard to describe but I think for those who have had it, they know what we are talking about. I first noticed the tingle/sensitivity during the first Irinotecan infusion... the one where I was sooo sick. I have to admit, I didn't pay any attention to it really because it seemed the least of my worries when I was so sick and getting so dehydrated. Then, the third week, my so called good week, I did notice some rash spots on my chin (sort of like little red pimples or allergy spots, although there was nothing in them... just itchy/sore to touch. There were only a couple, so almost not worth mentioning (which is probably why, with all my other complaints, I forgot to mention them to my Onc or my GP).

Now, your nurse says it's due to stereoids (pre-chemo). Hmm... the only steroid med I'm on is the desamethasone which I take before chemo, but then for 24 hours after the chemo (evening/morning/evening) and now, on an as-needed basis if I get nausea if the Emmend wears off. Soooo, it's possible that the dex might be the problem if steroids can cause allergy-like reactions.... but I've used the dex for any other chemo I've ever been on and have never had a reaction to it in the past. It's an enigma!

As for shampoo/bath/shower products/soap, laundry detergent, hand sanitizer, makeup remover tissues, etc. None of that has changed. I'm a creature of habit and use the same old/same old. Of course, the Irinotecan is a new chemo for *me* so it's quite possible that any one of any product I've always used might react with the chemo... or the chemo with the product. It's going to be one of those things we have to keep an eye on. If the Hydrocortisone 2.5% cream can keep the burning/itch under control, then I may just have to live with the rash (if we find out the Irinotecan is working and beating the kaka out of the nodules in my lungs. I'd much rather have a rash than growing tumours :)

Thanks, Tara!

Cheryl

kristasplace's picture
kristasplace
Posts: 877
Joined: Oct 2007

I didn't hear that you were doing chemo again. Sorry i've been so out of touch. What's going on with you?

Hugs,
Krista

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hey girlfriend... I noticed I hadn't seen too many posts from you lately and have been keeping my fingers crossed that all is going well in your world and life is taking up all your time :) Fill me in on how things are going for you :)

Yep... I'm back on the chemo wagon. The old... get a nice long break from chemo (my break lasted about 2 1/2 years which was great! I wasn't NED... I had 12 nodules in my lungs (spread all over both lungs), we had blasted the biggest one away with an RFA procedure and the other 11 towed the line and behaved themselves. They were very, very lazy (there are situations where lazy is a very good thing) and just hung out but didn't show any signs of growing... for 2 1/2 years. Last June they decided to spread their wings and try the growing thing... so that's when we went back on chemo. On Xeloda (pill form of 5FU) and for three months, they were taught a very good lesson. 33% shrinkage and the growth had stopped. But alas, Sept/10 - Dec/10 they started growing again, even while on Xeloda. Sooooo, quick 6 week break from all chemo so we could start with a clean slate... and I started the Irinotecan in Feb. 1st infusion was deadly... most everyone doesn't have too bad of a time on it, but I just had to be a Diva and get every side affect known to man and womankind and multiply it by 10 in strength :) Absolute worst 2 weeks of my life... have never been bedridden to the point I didn't have the energy or pain tolerance to get around the apartment every day (thank goodness for the best neighbours and friends in the world). The third week I finally started feeling normal (physically) but to add insult to injury, lost all the hair on my head in that third week. Just my head... still have my eyelashes and eyebrows (both lashes and brows are growing like wild weeds).

Long and short... my onc says that suffering like I did for that first infusion is totally unacceptable and now that we know just how sensitive I am to the Irinotecan, she has changed my dose to half/dose every two weeks instead of every three weeks.... and has put me on the anti-side affect meds that I wasn't on before (Emmend, a shot of Atropin in my IV, Lomotil, the dexamethasone and the Ondesteron). Today was my second infusion of the half dose. Even with the anti-side affect meds, I felt a little queasy around 5pm... and a little crampy/spasmy as well. So, I took a dex, 2 Lomotil pills and then made a yummy Beef Dip on a Kaiser with au jus. Delicious (tasted great... didn't realize I must have been hungry) and it's always good to make sure you've eaten when you take a Dexamethasone.... so it's now just after 9pm PDT and everything seems to have calmed down (fingers crossed).

I'm thinking it will probably take another infusion or two for us to get any decent indication if the Irinotecan is working and doing it's job... but if the way it made me sooooo sick on that first round is any indication just how strong it is, then I think it definitely is strong enough to do the job!! :D

But funny how, all it takes is one bad experience of being sooooo sick, and it makes you leary about how you are going to be for every infusion afterwards. For all I know, that first infusion was a one time only experience and all the rest are going to be very manageable and the side affects under control... but I'm so paranoid of being so sick, I'm in no hurry to get out and about every day/night like my normal lifestyle is all about.

Cheryl

kristasplace's picture
kristasplace
Posts: 877
Joined: Oct 2007

i can't believe what you're going through. I knew you were a stage IV, but i thought everything was entirely in-check for you. I'm so sorry you're on the chemo wagon again. I hope it will be a very short run. Oh, the sicknesses on chemo! Watch out for the placebo thing. I've heard stories about people who got side affect symptoms on the way to their infusions just because they were expecting the chemo would make them sick. Why can't we placebo the cancer away? Well, i've read stories about people who claim they've done that. They should bottle that up!

I've been doing so fabulous, i feel guilty about posting about it. I miss reading the posts from everyone, but i have to admit that i got very depressed after Kimby died, and then downright miserable after Donna died, and i haven't been as active since. I realize that with the way my cancer has gone, i should be advocating more, and i do want to do that.

I ended up getting spread to an ovary and both lungs. They took the ovary, and right after that, they found the tumor in the other lung. They were getting set to do surgery on the lung that had tumor growth, and sent me a month later to get a CT scan so they could get a better look at it. To their surprise, and mine, it was completely gone. Apparently the spot on the other lung disappeared, too, cuz both lungs are entirely clear, and have been for ten months now. I wish i could pinpoint exactly what i did, but i'm not sure if it was adding the vitamin D, or a combination of all the things i'm doing that did it.

I hope you're enjoying your life the best you can, too. You're such a jovial person, i think if you keep smiling and laughing, you'll get through this. I'll be hoping that the ironitecan works. I know it's helped some people. Someone i know who's a ten year survivor used it, and he swears it's what kicked his cancer's a$$.

Many hugs!
Krista

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

For exactly those comments you have posted here. People need to hear that others have gone through the wringer, thought they were clear, only to find out the monster showed up in the lungs, or the liver or the ovary or wherever it felt like setting up camp. But even when it does that, there are stories of people like you where the new found tumours just magically disappeared. Who knows... maybe it was something you were taking doing that just happened to be the magic bullet for you. Maybe they misread a scan and it was scar tissue or lung infection that magically cleared up between scans. Then again, maybe it was a combination of medicine and attitude. No one knows the answer, nor do they know why it works for some and not for others. But I do think one of the keys IS to not let the cancer monster think it, in any way, has the upper hand, no matter how many times it may come back and smack us sideways :)

Good thought about the "placebo" thing. When I went for my first infusion, I think I went there a little too cocky for my own good . My memory of my previous chemos was that I got through them pretty easily with very few problems (other than the neuropathy and nerve damage). So I just assumed that I'd sail through the Irinotecan... after all, most everyone has stated they haven't had too bad of a time on it. So if the majority have a fairly easy time then there's no reason to think I wouldn't (at least, minimal nausea and diarrhea symptoms). I was a tad bit concerned about the hair loss thing, but figured I had prepared myself pretty well psychologically... so I was ready. Wrong! I was hit sideways with a 2X4, and then smacked up the other side of the head for good measure :)

NOW, the dose has been changed and the schedule has been changed so I'm doing waaaaaay better. Yes, there are still signs of the side affects but I get warnings now "Oops, is that a twinge of nausea or am I just hungry?" "Oops, I hear gurgling in my gut, that usually will be followed within a few hours of a bout of diarrhea if I don't do something about it". So plenty of time to take the meds and catch it before it goes anywhere. Still, having been so sick, when I feel even the slightest twinge of anything, I go into paranoia mode... so I'm very hesitant about making plans in advance. I just let friends know that they are to go ahead and make plans and on the day of said plans, if I'm feeling good, I'll join them... vs the old days I'd make plans with them in advance.

But yes, I'm still enjoying life as good as ever! My "norm" has changed a little since I'm back on chemo. Like I say, I'm hesitant to make plans too far in advance... but have also changed a lot of my "commitments" to work I can do at home, rather than have to go to meetings, rehearsals, or hang out in the theatre office. Of course, on the good days, I can do any of that... I just happen to have it lucky that I can do a lot of the important stuff from home. Right now, I'm working on organizing the invites/RSVPs for 360 people for the opening night of "42nd STREET", the Broadway Musical, while getting the early publicity done for the May/June show, "Haunted by Eric Chappell" and then we will close our season with the American classic, "Harvey by Mary Chase". But first... I've got to get the media out to opening night as well, I'm doing a theatre alumni reunion night on that same opening night. Crazy times, I tell you!!

Uh... opening night falls on a Chemo week... sooooo I'll be there come heck or high water... and will probably be sporting my lovely light brown with copper highlights wig and a party frock :D

Cheryl

kristasplace's picture
kristasplace
Posts: 877
Joined: Oct 2007

You're such a sweetie!

I just love how you're involved with the theatre. I used to love acting when i was a child, and did a lot of junior theatre plays at the local college here. Buddy Ashbrook was the director for many of those plays, and both of his kids grew up to be movie and TV show celebrities. I miss those days!

I think you look adorable in your little black hat. Some people pull off bald beautifully, and you're one of them! You look healthy and happy, and i have no doubt that is going to double your chances for beating this, yet again. You're so right that it can rear it's ugly head at any moment, be it next week, or five years from now. We're all in a very precarious situation. The thought crosses my mind every time i go in to get my results from a scan, but i don't worry about them like i used to. If it comes back, i'll deal with it then. As far as i'm concerned right now, it's gone, and i'm going to live like it's gone, and never coming back!

I'll be keeping my eye out for your posts regarding the ironitecan results. I just know it's going to work for you, so i'll be expecting your next scans to be clear, if not at least significantly improved.

Many hugs!
Krista

Kathryn_in_MN's picture
Kathryn_in_MN
Posts: 1258
Joined: Sep 2009

On FOLFOX I'd feel like my head was sunburned for a few days, and then I'd start losing handfulls of hair.

On FOLFIRI and Avastin, the same happened, only with even more hair loss.

Now on maintenance of just 5-FU and Irinotecan, my scalp is still very sensitive. My hair was growing back - in the last couple months I have grown almost 1/2 an inch of hair. It doesn't seem to be falling out right now, but tonight, hooked up to my 5-FU, my scalp hurts- like a sunburn.

Not sure what to say. I hope the lotion helps you.

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

Hi Kathryn... thanks for chiming in :)

Well, it seems the Hydro-cortozone 2.5% cream did the trick. I was going to report back on the weekend to say the burning and itching had stopped, but the rash was still there. But I noticed tonight the rash is pretty much all gone and there's no burning/itching. Something obviously caused it... whether it was a reaction to the Irinotecan (only chemo I'm on), or any one of the anti-side affects drugs. Hard to say. It also seemed both times, the rash showed up in the second week of treatment, so we shall see what next week brings. I'm in Week 1 of the third treatment. Mind you, I so far haven't had any side affects at all this week, other than some chemo fatigue. Heck, I even when out to a performance at the University, about 30 minutes away, with some friends tonight... and did just fine. I wore my lovely wig tonight and it was a hoot to see so many people there that I knew (it was an opening night) and so many of them didn't recognize me at first! I could blend into the crowd and no one knew... but then the double take they took when they realized it was me .

Anywho... I'm pleased that the rash is gone... but definitely, when my hair was falling out, it was a burning tingling feeling and then the hair came out by the handfuls. Odd little thing that is, isn't it?

Cheryl

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