Mar 04, 2011 - 8:45 pm
I have had a hard time finding information and/or families going through this type & location of Rhabdomyosarcoma. I was hoping to hear back from people affected by this type & location. My son is stage III and the doctors have no idea where the tumor originated from they think maybe from behind the abdominal wall/cavity. Because of the size and location they were unable to do surgery prior to starting chemo and radiation. They are hoping they maybe able to do a second look surgery at the end of chemo (ten months total without any setbacks aka low counts or regression). Regardless of the outcome I wanted to establish a topic more specific for information purposes. Please if you respond indicate region/stage. I feel it's hard to compare and/or receive information on some of the discussions when people do not list these stats.