Feb 27, 2011 - 11:38 am
Hello everyone - Just want to send out some encouraging words - I'm 39 diagnosed with Inoperable, Incurable, Termainal Stage IV Small Cell Lung Cancer in April 2010. I've had brain surgery to remove tumor in April 10, Radiation to my whole brain in May 2010, 1 chemo treatment from June to Aug 2010 tumors resolved both in my brain, lungs lymphnodes in left lung. Off from treatement from Aug to Dec 2010. Re-scanned MRI, PET and CT beginning of Dec. all the tumors came back worse then before. 1 in left upper lymphnode, 2 in lower left lung and nodules in middle chest followed by 3 new small tumors in brain. Started immediately with new drug Topotecan received new scans in Feb 2011 to see if Topotecan is working it's not. Was refered to Gamma Knife for brain Mets and the Gamma Knife doctors found 12 tumors on Feb. 24th, 2011. 6 on right side and 6 on left side of brain. 3 large mets over 1.5 cm. They were able to target 6 on the right and I'll go back in a couple of weeks for the other 6 on left side of brain. Very blessed that I was referred to Gamma Knife doctors I believe they have saved my life for now! My local oncologist and radiologist/pathologist were VERY WRONG on my brain tumors and MRI Scans. They said 3 and I find out I have 12?? I was not a happy camper when I found out. Gave the Oncologist a piece of my mind. Will no longer return to that Oncologist and or Radiologist place for my scans. This has taught me that I need to take responsiblitly and stay on top of everything. My LIFE is precious to me and unfortuntaley not to some of the medical professionals. I've learned some oncologists don't look at the bigger picture and just tell you what you want to hear or just follow the basic medical protcol. I'm not allowing this any longer. I'm checking into experienced Oncologists that handle my specific cancer. Looking at going to Stanford or Loma Linda where I will be a top priority and be with medical professionals that are interested in finding a cure or helping my survival rate. If you have any information I'm very interested. I'm 39 and I'm not having any complications, my weight is good, my health other then the cancer is fairly good, I still go to work, I'm fairly active need to walk more. My diet is excellent no problem eating. No symptons of all the side effects of chemo or radiation. Very strong willed person I thank God everyday for another day. I'm truly blessed. Interested in talking to all Small Cell Lung Cancer people to see how you are doing and your stories and survival times. Have a blessed day.