Feb 17, 2011 - 7:13 pm
I am newly diagnosed with UPSC. My surgery is tomorrow morning. They are taking my uterus, fallopian tubes, ovaries, cervix, abdominal lymph nodes, lymph nodes near the aorta, upper abdominal nodes(?), omentum, & appendix, as far as I know. I have been told that surgical staging will be done and available early next week. Should I be asking to have any other testing done on the tumor? I asked for HER2 expression testing and was told that it is for breast cancer only. Since I do not know what to ask for, if anything, I could use some help. I asked to save some of the tumor for future testing, but was told that they would not unless I have a specific lab that I want it sent to immediately, which I do not. Perhaps I am trying to get too much information. However, I wanted to go into this fight armed with as much information as possible to provide the best possible outcome. I am currently looking for a gynecological oncologist...none in my area. Again, do I need to ask for anything extra to be tested on the tumor? I am hoping that those on this site with more experience with this disease will have some suggestions or let me know what they think.