Well I got the 800 on tuesday afternoon and my lousy luck continues! The doctor decided to put in a dual cuff because of my excess leakage (14 + pads a day). The problem now is i shut down completely. by Tuesday night they had to put in a foley cath. as i was in major pain and no way to pass liquid. Doctor is afraid the foley will cause the uretha to fail.
So wednesday AM foley out and do intermittant caths. was using dilaudid for pain as its bad, discontinued. Wednesday evening,we are cathin 1.5-2 hr intervals the pain is bad as no more pain killer allowed. we only get 200-225 0n each cath.
have nurses (GREAT BY THE WAY)contact doctor i need to sleep as i am worn out from the near constant pain. Doctor oks a foley for the night. 1 1/2 hours later nurses still trying to install foley no luck and can't contact doctor. nurse made a major decision and gave me some pain killer in IV . 10 minutes later the cath went in like butter. relaxed the muscles I guess. slept for the night no pain killer needed! In the AM the doctor had a young assoc come in and verify what the nurses and i had told him. He did a cath with dilaudid it was smooth and went well. pain killer back in the game and we are doing intermittant cath again. BTW PASSED over 4 liters of fluid tues/wed night I would have had to do about 14 caths to get me through a pain filled night. Thursday evening 7 Pm I was discharged from the hospital with oral dilaudid soft caths and I had done the last cath in the hospital no problem as the pain killer was admin through the IV connection on my tube that was still connected. Well here I go again about 9 PM I need to cath, take the oral meds don't feel a thing oh well prob my imagination. OK 30 min later I try and try and try, ok give up and try to gut it out. Well at 1 AM i decided time to go to emergency room , wait I have some stiffer caths left from my old self cath days. After a 10-15 minute struggle I get it through I was really being carful as the doc has me scarded to death I will damage the uretha. Wow what a relief. Ok now i got a brain storm. I have spotted a bit right after i cath and seem to be able to pass some liquid.... what if I took the low dose pain killer every 2 hours and try to pass liquid eery time a felt a tinge, holy cow it is helping ! Have a 9 o'clock appointmnent with doc. have not had to cath since 1 AM only pain is some burning as I strain to pass gas and liquid. Got into see doc abt 10 or so. he's not crazy about the plan and wants to do a cath to check retension as we can't get a decent bladder scan. So lays me down on the table asks me to urinate which i pass some liquid hmmmm does a cath and gets less that 100 out something is working!
now its Friday night and I'm home the plan is 2mg oral every 2 hours (the stuff has a quick life 2.8 hours in the body. got enough for the week end and will see where I am at then. bottom line if they are too tight back in to replace them .I keep hoping i start leaking like a bandit soon and I never thought i say that . I really have little doubt this is going to work but the lord is testing me severly.