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"There must be some way out of here, said the Joker to the Thief"

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

(Bob Dylan reference)

I visited ENT Man on Tuesday. As per the norm, I arrived early so that he could see me more than an hour later. Fortunately, CNN was on the television rather than Sesame Street so I was able to watch the Egyptian Riots Reality Show rather than Bert and Ernie.

This assisted in my remaining for more than my usually self-defined 30 minutes of ignoring the value of MY time.

When finally I got past ENT Man's new nurse (I really liked his old one, but as I have remarked in the past, she was looking really beaten down by the job so I am elated that she survived to retire. I hope that she is on a warm beach somewhere with umbrella drink in hand), I still had time to check the room. I looked high and low for NostrilDamus and didn't see him anywhere which is always a good sign.

I DID get weighed and am down to 143 lbs. When this saga began, back in September of 2005, I was a rather robust 215 lbs. I lost 75 lbs during the head/neck commotion, but had gained back to 170 lbs when the lung thing occured. I came out of that one, staph infection included, at again somewhere in the 140s. Just prior to losing my last tube, however, I was at a moderately acceptable 163 and it appeared that any nutrtional worries were behind me.

So. 143 lbs. ENT Man made note of that immediately. Not acceptable. May need to reinsert tube if things don't get better, even though he knows I do not want that.

He also noted his surprise that I was still in the building, in homage, I suppose, to my legendary ability to leave if not treated within 30 minutes of announced appointment time. He did not sound bitter but rather amused (which is difficult to detect in light of his almost stony stoicism).

He then got down to business, using the oversized popsicle sticks to probe high and low east and west and apparently satisfied with what he saw (more importantly, perhaps, what he did not see), pronounced me all clear, more than five years after diagnosis, more than five years after my last treatment for head/neck cancer.

All clear.

He made a rather scandalous remark about that '10 months to live' diagnosis ("So much for that diagnosis," he practically spoke to himself), which surprised me since these folks generally present a united front among us commoners.

He asked if I wanted another dilation, and I jumped at that. He also insisted upon a dietician and asked if I had had a thyroid test done lately. I advised that bad diagnoser, OncoMan, was on top of that one, and that I was apparently fine.

I shook hands, with ENT Man, a second or two longer than usual, said thank you a couple of times, and he said I knew where to find him if I needed him.

Driving away, I realized that cancer has now been a part of nearly 10% of my entire life. That's quite a piece of personal history to say goodbye to. A couple of more years, and maybe I will be doing the same with OncoMan and closing this chapter altogether.

As one of my doctors said not too very long ago, "You're a lucky man." Yes, indeed. Somehow, so far, I am finding a way out of here.

D Lewis's picture
D Lewis
Posts: 1523
Joined: Jan 2010

"There are many here among us who feel that life is but a joke..."

So much for that 'ten years to live' diagnosis, indeed. Thanks for the update and the good news.

Deb

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Thank you for the kind words, Deb.

I am hopeful that all is well with you!

Take care,

Joe

Skiffin16's picture
Skiffin16
Posts: 8062
Joined: Sep 2009

WTG Joe, I love it when you can prove them wrong...in a very positive way.

Best,
John

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Thank you John.

Take care, my friend,

Joe

Jimbo55's picture
Jimbo55
Posts: 572
Joined: Jun 2010

ELP reference. Joe great to hear, we should all be so lucky. Cheers

Jimbo

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

That one does not end so well, jimbo :) but I got the message.

Indeed, may we all be so lucky!

Take care,

Joe

mswijiknyc's picture
mswijiknyc
Posts: 421
Joined: Oct 2010

It's always interesting to prove people wrong, especially docs, and in hubby's case, nurses. Keep doing what you're doing as it's working for you.

That and you're just too darn ornery :)

Be good (HA)
April

ratface's picture
ratface
Posts: 1235
Joined: Aug 2009

Hi Joe, thats great news. Sounds like you have a pretty good relationship with your ENT, the kind that takes time to build. I think he is saying you don't need him as much anymore?

Hondo's picture
Hondo
Posts: 5722
Joined: Apr 2009

Keep them on the edge and keep them straight, glad to see you have a good clean report.

Take care
Hondo

sweetblood22's picture
sweetblood22
Posts: 3230
Joined: Jan 2010

Awesome tune, done by Jimi Hendrix, it's magic.

I always love your posts, Joe, they make my day. So did your news. Five years. Love it.

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Jimi's is good, but since I heard Bob first, I still like his original best, a personal thing.

In any event, I'll bet you don't love my posts as much as I love your pic :).

I am looking forward to the day when I read a similar post from you sweet!

Take care and thanks for the kind words,

Joe

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

I appreciate the kind words, Hondo.

Take care,

Joe

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Yes, RF, on more than one occasion with more than one doc, especially with ENT Man, since he was most likely to be really busy, (as I should have been more sympathetic about in hindsight), yes, they had a 30 minute timer, which, of course, was to my detriment in the leaving, but I can be hard-headed.

We have indeed had a great relationship, he and I, and yes, I am saying that I will not need him anymore, hopefully.

Take care, my friend,

Joe

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Thank you April. I suspect you are correct in both the observation about orneriness and the cynicism about being good.

Take care, my friend,

Joe

mswijiknyc's picture
mswijiknyc
Posts: 421
Joined: Oct 2010

suspect my foot. I AM right and you know it.

If you need reassurance, just ask your lady love ;)

Be good (HA)
April

mixleader
Posts: 267
Joined: Oct 2010

Thanks for the entertaining and informative post. I love reading about people who have beaten the odds. It sounds like you have been through a lot on your road to recovery and I am happy to hear that you are doing well. Hopefully, this monster is out of you for good now.

Roger

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Thank you, Roger. When I first came onto this site, I was sort of reluctant to pass on good news as it seemed like boasting or some such, but came to realize, that we NEED good news to counter all of the bad we read. Plus, it is part of my history now, so I am trying to keep the blog up to date as well.

In any event, I have a couple of more years with the lung cancer issue, although my status with that is also all-clear at the moment, before I can lose the last of my cancer docs, OncoMan.

Thank you for the kind words. They are greatly appreciated. I look forward to reading such a post from you down the road.

Take care,

Joe

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

Don't tell me you have finally learned to be more patient when you finally go to your appointment.

So happy to hear the good news and I anxiously await the day that you can say you are through with Oncoman also.

Stay well,
Glenna

Clearblue
Posts: 188
Joined: Apr 2010

The reason i wrote to you is because what flows from your your wicked pen is a resillient attitude and keen mind. Havent communicated with you on these boards , so just wanted to tell you that.
Clear

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

"Wicked pen" is quite an honor! I thank you for that! It shows that you have great taste and a remarkable mind of your own :).

I do appreciate the generous words, Clear, and hope that you are doing well, yourself.

Take care,

Joe

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

(Jackson Browne reference)

Patience? Glenna, you know me better than that! I stayed because I had a really good feeling that it was last time with ENT Man. AND I was standing in front of the CNN news screen shouting and screaming with the protesters and got lost in the moment :).

Thank you for the kind words, my friend. Stick around, kiddo, and YOU'LL be telling ME that you are through with one or another of these characters!

Take care,

Joe

Glenna M's picture
Glenna M
Posts: 1580
Joined: May 2009

I can picture you screaming along with the protesters as you watched CNN. It will bring a smile to my face for a long time whenever I think of this.

Was hoping I would be through with doctors sooner but got "iffy" news from rad man two days ago. "Subtle changes" in the lung CT so it is going before the review board for their recommendations. This is the first time in my life that anyone has used the word subtle when referring to anything about me - LOL. I will know the boards recommendations by March 2nd so I'm going to keep myself extra busy for the next two weeks.

I keep reminding myself that worrying won't change the outcome and think of your "It is what it is" line so that helps. Even if it doesn't ease my worrying it makes me smile because whenever I think of you Joe I have to smile. You have kept humor in all of your posts which is the best medicine, for me at least.

Stay well,
Glenna

buzz99's picture
buzz99
Posts: 404
Joined: Sep 2010

You are such a good writer and an inspiration to all of us. Congrats on the all clear from the ent!

Liz K.'s picture
Liz K.
Posts: 32
Joined: Dec 2010

It sounds like you have been through a lot and have earned this! Congratulations!
He had white Horses
And ladies by the score
All dressed in satin
And waiting by the door

Ooooh, what a lucky man he was
Ooooh, what a lucky man he was

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

I don't know if you ever 'earn' anything, Liz, not in this particular world. I've done my best to retain my hope, and my humor. That's about it, and all I could offer as advice to anyone.

I thank you for the kind words and for reminding me that the guy had a good time before the end :)

Take care,

Joe

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

for the kind words. I look forward to reading same from you.

Take care,

Joe

pattyanny's picture
pattyanny
Posts: 523
Joined: Jul 2009

Thanks for sharing another well written and happy news post! Congrats, and stay well.
Love & Prayers, Patty

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Thank you, my friend! Hard to believe that you joined only in July of 09, as it seems we have been crossing paths forever.

I guess time flies when you are having fun?

Take care and best wishes,

Joe

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

The love must be overflowing here, guy. Guess my "enter" finger needs to go on a diet.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

I'm humming "Pomp and Circumstance" again. Here's looking forward to OncoMan being ready to see the back of you, too.

NOW - get out that food diary, and start logging intake. You know you can do this (avoid the new PEG), even though it's a real job.

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Twice as happy

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

Thank you, my sweet friend. Speaking of running across each other all of the time, we have GOT to stop meeting like this :).

I know that you will be joining me in no time at all, Pam. I always enjoy chatting with you, and learn something from you here, too, on a regular basis.

Take care,

Joe

hawk711's picture
hawk711
Posts: 525
Joined: Jan 2010

Joe
Congrats on 5 years dude. I can't wait till I hit the 5 year mark, got 4 to go..!

As Omar said:

The moving finger writes and having writ moves on,
nor all you piety nor wit shall lure it back to cancel half a line,
nor all your tears wash away a word of it.

It is what it is Joe.......Keep showing the love

All the best,
Steve

soccerfreaks's picture
soccerfreaks
Posts: 2801
Joined: Sep 2006

He knew his stuff, as far as I can tell, although I remember only The Rubaiyat:

A Book of Verses underneath the Bough,
A Jug of Wine, a Loaf of Bread--and Thou
Beside me singing in the Wilderness--
Oh, Wilderness were Paradise enow!

Thank you for the kind words, Steve. The first year is the hardest. You will be there in no time at all!

Take care,

Joe

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