Feb 08, 2011 - 12:34 am
Thank God CT clear,, Ca 125=4.6 down from 84 post surgery pre Chemo,, and Bloods Good-ish, very anaemic and low white count, but ok.
Now what??!!?? I'm in warrior mode after six months post Hyst and four rounds Carbo/taxol and two rounds carbo/Doxil, from Dx July 2010.
Prior to that no symptoms xcept constipation for two weeks, healthy, HA! then boom, six months Chemo, post Hysterectomy , debulking and removal of all 'female' parts, Stage IV Grade III Endometrial Adenocarcinoma, Mixed predominantly Clear Cell Type. Lymph nodes clear, but cancer in asecites, omentum and out of uterine wall.
Last week Onc gave me script for Megace as I am Estrogen and Progesterin positive. He said come back in two months. I am frightened that I should be doing something, anything, besides waiting for recurrence which he said is usually by six months, max a year at my 'advanced Stage and Grade'.
I read this ListServ regularly and dont have what the majority has, Upsc. I feel I am worst case scenario that most of you 'in the know' and as a generally proactive person, feel so helpless, alone and set adrift.
Is there anyone out there who knows someone with my Dx? A month or two or more ahead of me?
Thanks in advance for your sage advice,