Feb 05, 2011 - 6:57 pm
I was recently diagnosed with mucoepidermold carcinoma of the left tonsil. This is a bit unusual, in that most cancer in tonsils is classified as squamous cell carcinoma.
The path to diagnosis started with the appearance of a small lump in the area of my neck under the left jaw. A CTscan revealed a mass 3.4cm by 1.5cm. A fine-needle biopsy revealed what was initially classified as squamous cell carcinoma in the swollen lymph node. A subsequent PET scan identified the primary site as being in my left tonsil. Fortunately no other activity was found.
The next step was a panendoscopy (inspection) of mouth, throat, etc. - together with a tonsilectomy for both of my tonsils. (I'm early in this process, but the recovery from the tonsilectomy has been about as painful as anything I ever want to endure--but, I digress.)
From what I've been able to learn, which is not much, the treatment is virtually the same for the two types.
My planned treatment program starts February 21st, and consists of seven (7) weeks of radiation combined with a week's worth of chemotheraphy during weeks 1 and 5. I have already made arrangements for a PEG feeding tube to be installed 4 days prior to the start of radiation.
I have a pretty good idea of what I'm facing, but I'm just starting to get my arms around the whole idea. If I did not KNOW that I have cancer, I would say that I was healthy and doing pretty well.
First question, has anyone else heard of a diagnosis of tonsil cancer involving muceopidermold carcinoma? I would love to hear anything you can add.
Second question, regardless of the type of tonsil cancer, can anyone who has gone thru what I'm facing offer any suggestions of things to:
Thanks, any and all comments will be appreciated