Feb 05, 2011 - 1:01 am
Hi everyone, my name's Marianna and I just joined this site today. My dad is a 7 month survivor of SCLC.
In June, he was having shortness of breath problems, they did a biopsy and said it was small cell lung cancer. They said it was one of the lungs only. He went through four cycles of chemotherapy - carboplatin and etoposide. After the third cycle of chemo, they did a CT scan of his chest and there was no evidence of cancer found. But the doctor still gave him the fourth round of chemo. After that, my dad received chest radiation - this was hard for him because he had difficulty swallowing and painful. So his doctor gave him a break, and he continued chest radiation. Then my dad was having eye problems, and headaches. So they did an MRI of the brain, and saw that there is cancer in the brain. They were spending so much time on his chest radiation when there was cancer moving to the brain. I'm just thinking - why couldn't they have treated the brain sooner, before the cancer had spread there instead of focusing on chest radiation when the scan revealed no more cancer in his lung. So they did brain radiation daily.
A week ago we took him to the ER because my dad wasn't able to walk well, he wasn't breathing well. Well, once you go the E.R you are stuck there. They do so many tests and blood work that you get stuck. They did numerous stress tests, chest x rays, ct scans, you name it. The heart doctor said there is blockage in his heart, so he did an angiogram. He put a stent in my dad's heart. As soon as my dad was recovering from the angiogram procedure, his temperature went up and they said he has an infection. He somehow caught pneumonia in the hospital. Now, I realize that treating pneumonia isn't a big deal for any old person that catches it, but for a lung-cancer patient, curing it isn't so simple. My dad got stuck in the hospital fighting pneumonia for over a week. They gave him antibiotics but he's not able to walk or stand because he can't breathe well. His lungs are already damaged due to the cancer and this pneumonia is the last thing he needed. Before he went to the E.R. he was able to walk, and now he can't even walk at all. :( And he refuses to eat. We visited his heart doctor today and he said the heart is good. His oncologist said he wants to do a PET scan in two weeks. My poor dad, he was doing well and now he's so weak. All he wants is to get his strength back and walk. That's all. If anyone has any comments or advice, I would love to hear it.
And, If anyone could please give me links to SCLC survivor stories I would appreciate it. I read the "Johnny the Razor" survivor story someone posted here and found it so inspiring and uplifting. I am 23 years old, and I just want my dad to get his strength back and be a survivor! He is only 65 years old and this is so difficult for him and it's killing me as well. This is such a great site, where we could give each other hope and love and share positive stories.