Feb 04, 2011 - 10:59 pm
Diagnosed with Stage II Esthesioneuroblastoma ("c" of the olfactory/smelling nerves) on January 29, 2009. Tumor removed endoscopically February 9, 2009. I never lost my sense of taste. However, until last week, my ability to smell has been sporadic at best...once or twice a month for a day at the most.
This was until last week when the ENT just placed me on a very low-dosage steroid nasal rinse. This was to get rid of any swelling before my follow-up CTs. Well, oddly enough the decreased swelling must have cleared up my smelling nerves because I've been able to smell for a couple weeks straight!
Obviously my sense of smell is still intact, but I don't know if it will remain so after I come off the steroid rinse. Does anyone have any experience/suggestions with this?