Feb 03, 2011 - 9:14 pm
I was really excited when I discovered this discussion board. I learned so much through my cancer experience, not the least of which was how to manage this disease; how to make educated decisions regarding choices that were available to me; how to be my own best advocate; as well as how to more fully appreciate my life. I felt this board was an opportunity for me to give back to others facing this terrifying disease and the overwhelming process involved in addressing it. I thought my story might provide some hope and comfort.
In the short time I have been visiting and contributing to these discussions, however, the overall tone I feel when visiting the site is not one of appreciation. I’m not saying that I expected everyone to embrace my experience, but frankly I expected that there would be more compassion, understanding, and tolerance. I am glad that I could help a few women here, but I feel, overall, that my experiences and knowledge are unwelcomed by the vocal core of this group. Whether you are aware of it or not, there are two definite overtones on this board, “Don’t rock the boat,” and “Keep the fear and hopelessness alive.” Far be it from me to continue posting my experiences of hope and empowerment in such an unappreciative environment.
I was so grateful when I met my naturopath. What an inspiration of hope, having had stage IV OC 20 years ago and treating it and keeping it in remission without surgery or drugs. Not one of her cancer patients, who have begun working with her early in their illness, has had a recurrence, and she has been practicing for 17 years. Though neither she nor I are advocating self treatment of the initial disease, I don’t need the FDA or, anyone else for that matter, to tell me that she is doing something right, and I plan to continue following in her footsteps.
Bless you all and the best of luck,