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Thank you all for this educational experience

Tethys41's picture
Tethys41
Posts: 1057
Joined: Sep 2010

I was really excited when I discovered this discussion board. I learned so much through my cancer experience, not the least of which was how to manage this disease; how to make educated decisions regarding choices that were available to me; how to be my own best advocate; as well as how to more fully appreciate my life. I felt this board was an opportunity for me to give back to others facing this terrifying disease and the overwhelming process involved in addressing it. I thought my story might provide some hope and comfort.

In the short time I have been visiting and contributing to these discussions, however, the overall tone I feel when visiting the site is not one of appreciation. I’m not saying that I expected everyone to embrace my experience, but frankly I expected that there would be more compassion, understanding, and tolerance. I am glad that I could help a few women here, but I feel, overall, that my experiences and knowledge are unwelcomed by the vocal core of this group. Whether you are aware of it or not, there are two definite overtones on this board, “Don’t rock the boat,” and “Keep the fear and hopelessness alive.” Far be it from me to continue posting my experiences of hope and empowerment in such an unappreciative environment.

I was so grateful when I met my naturopath. What an inspiration of hope, having had stage IV OC 20 years ago and treating it and keeping it in remission without surgery or drugs. Not one of her cancer patients, who have begun working with her early in their illness, has had a recurrence, and she has been practicing for 17 years. Though neither she nor I are advocating self treatment of the initial disease, I don’t need the FDA or, anyone else for that matter, to tell me that she is doing something right, and I plan to continue following in her footsteps.

Bless you all and the best of luck,
Kate

leesag's picture
leesag
Posts: 624
Joined: Jan 2010

I've been on this board for a year now. In that time, I've come most often when the "fear and hopelessness" of living with IIIC OVCA threaten to overwhelm me because that is NOT the message that I get here. I come here for hope, friendship and the overwhelming reiteration that LIFE is worth LIVING no matter what comes down the pike. I'm sorry that you feel so unwelcome. I went back through some of the threads, and to be honest, I've read multiple posts from others who have thanked you for sharing your experiences, asked you questions and shared their own experiences.

I think we all have embraced a variety of methodologies and treatments. I've read posts from women who have received acupuncture, Vitamin infusions, changed their diets drastically, changed their way of life, posts from women who have relied solely on traditional medical therapies, posts from women who are in Phase I trials, posts from women who are in Phase III trials and posts from women who have elected to stop treatment altogether. A common thread links us all, whatever stage of life or disease we are experiencing...we want to live life to the fullest extent possible.

We are outspoken, we laugh together, we cry together, we grieve together, (Bonnie, Dorian, Saundra, ladyjogger...), we fight together. The key word through all of this is "together." We may not always agree with each other, but part of educating others about the choices they have is presenting all sides of potential therapies and scenarios. If we all agreed about the way to treat this disease, there would be no need for this board.

I do tend to disagree vocally when someone presents a unsubstantiated "cure all" (like the all asparagus, all the time diet), but your posts are not like that. You advocate for alternative therapies in conjunction with traditional therapies. To paraphrase Voltaire, I may not agree with you, but I'll defend your right to share your experiences. By the same token, when you disagree with me, feel free to let me know! ;)

In the long run, who knows, the key to surviving with cancer may not be in anything we put into our bodies, but rather, what we put into our hearts and our minds and our own will to live.

At any rate, the gist of rather long winded posting is this....

Stick around for awhile, we're all nice folks going through tough times together. We're Teal Warrior Sisters and like sisters, we don't always have the same style or approach, but when we need each other, we're there for each other!

Hugs!

Leesa

PS: If it turns out that asparagus really DOES cure cancer, boy..won't I feel stupid!

jloe's picture
jloe
Posts: 175
Joined: Sep 2010

I thought I was watching/reading an infomercial. I'm a bit sensitive to people being taken advatige of when they are ina tough time. I'm with you, If it turns out that asparagus really DOES cure cancer, boy..won't I feel stupid!

poopergirl14052's picture
poopergirl14052
Posts: 1159
Joined: Nov 2010

I am very glad you have been in remission for 20 years. Many of us have not beeb so lucky. You found a tx that was good and kept you well. I always respected your post and your knowlege of alterative therapy!!. We are not here for a populariy contest but to give each other much needed hope. WE compare notes and symtoms and lift each other up when we are scared or just need to vent. We are happy when someone is done with chemo or ca-125 is way down. Frankly, sometimes I felt like throwing in the towel and saying the heck with it all, but these gals have helped me alot and I am truely grateful for that. To me your post sounds like you are lookig down on me because I vhoose to go the conventional route. We all are different and no one should judge us!! If you don't like our site then find another.

kayandok
Posts: 1223
Joined: Jun 2008

welcome to the board. I am so happy for you that your have survived cancer so long. What an inspirtion you are!

I am a 3 1/2 year survivor and before cancer dx, I was under the care of a naturopath. Because I had endometriosis, she had ordered a CA125 for me (very unusual for any doctor to do when there are no signs of ovca) twice a year, so I am one of the few who know what my base line number is. By the time I was dx, it had zipped up to 590 (and that was in 6 months). Initially, I used some herbs etc that she recommended after my first line chemo to cleanse and build my immune system.

Then, my naruopath doctor who had never smoked a day in her life and always had taken care of herself, got lung cancer. She died a year later. To be honest, it really bummed me out, and I never found another naturopath doctor after that. I have always had a healthy life style and have tried to continue in that path, but don't spend my money on all the herbs etc that I used to buy.

I know quite a few women, who have had late stage ovca, never recurred and eat whatever they want (including ice cream, sugar, meat and junk food), and don't excersise. Go figure!

From my own experience, and what I have read, it seems that cancer is no "respecter of persons"!

We have had some posts from people selling products before with incredible testimonies of recovery, so it could be that initially, there was a bit of a suspision that you were going to try and sell something. Just a feeling I had, when I read your post above. I missed your earlier posts.

I wish you the very best,
kathleen

cancer survivor x 4's picture
cancer survivor x 4
Posts: 183
Joined: Sep 2009

Good Morning,
I read all of your posts. I even found several naturopath's in my area. The problem is that my insurance company is not going to pay for it. I imagine it is quite costly. With going to nursing school and having to pay for books and clinical fees and just monthly bills, I did not think I could fit it in my budget. I think everything the naturopath does makes sense. All of us are in fear. How can we not be? I am a 4 time cancer survivor and I am still going on on with my life as best I can. What I see the most on this board is support and I do not know about everyone else, but I need that. Please, I want to hear about the treatment you are getting from the naturopath and the costs. Thank-You, Paula

pattysoo's picture
pattysoo
Posts: 173
Joined: Oct 2010

It's a diverse group here, so you'll get all kinds of responses. I say, "Take what you want/need and leave the rest." If you only want a cheering squad, just say so in your post and I believe folks will respect your wishes. I am glad for all the different perspectives since OC is such a mystery to everyone so far.

I am a bit leery of advertisers, self-promoters, and the like. Sometimes it's hard to discriminate who is carrying what agenda, if you know what I mean.

Interestingly, my doctor explained to me that within each individual, their cancer is not just one type, but probably several different types of cells. So it makes sense that many different therapies work (or don't work) on different folks.
Good luck, and here's to your continued good health.

srwruns's picture
srwruns
Posts: 343
Joined: Oct 2010

UH? Have we been reading the same board? I don't mean that in a disrespectful manner but unless you got some private emails I missed the sense of "hopelessness" of which you speak or of disrespect or unappreciation towards your journey. I was intrigued by many of your recommendations; many of them are not available to be because I am on blood thinners so I have a whole range of dietary and food restrictions. Also the coastal town I live in in California abounds with naturopaths, alternatives and complementary therapies. My insurance does not cover a single one of them and being early retired and a son in college I am barely able to keep up with my required insurance deductibles and co pays.

You stated: "....in such an unappreciative environment." To really understand how you were so horribly slighted I would need some examples of what lead you to that conclusion. If mine or some others' conduct or responses were hurtful, then I can't know what I should do differently in the future to make sure no one feels unwelcome. It would be a tragedy when suffering with this crappy cancer to have been made to feel unappreciated. Susan

Mwee's picture
Mwee
Posts: 1316
Joined: Nov 2009

I'm sorry that you haven't found what you needed here and I mean that most sincerely. I'm not sure I could have made it through the last 13 months of chemo without the love, knowledge, support and understanding that I have found here and my hope is that I might have been there at a time when someone else needed that from me.
Maria

Hissy_Fitz's picture
Hissy_Fitz
Posts: 1869
Joined: Sep 2009

I think, first of all, that some members have Kate's story mixed up with the lady she gets her supplements from. Kate was diagnosed in July of 2009 - just 2 months before me. You and I are chemo twins, Kate, except that my consolidation treatment was different (Taxol only) .

Secondly, I sincerely hope that my posts regarding alcohol, sugar, etc did not seem like a personal attack. I surely did not mean them to be. I only wanted to point out that my doctors, both my local gyn/oncologist and the highly respected and well known research physician, Paul Sabbitini, subscribe to the all-things-in-moderation theory. I trust their judgment, and I view that trust as an essential part of our relationship , and my treatment plan. Your faith in the team of professionals that has given you such great success is admirable and I applaud your loyalty and your willingness to be so willing to adapt. As Leesa said, the fact that we don't all agree with your point of view, or express a desire to know more about your alternative treatments does not mean we don't admire and support you.

I did the traditional 6 rounds of Carbo/Taxol, then opted for a year of Taxol maintenance. Now I am in New York (even though I live in Texas) doing a clinical trial at MSKCC for a vaccine - though like you, I am in complete remission. Plenty of people think I'm nuts, but that's okay. I love all my virtuL sisters, no matter where they are spiritually or POV.

Carlene

Mum2bellaandwilliam's picture
Mum2bellaandwilliam
Posts: 414
Joined: Oct 2010

Hey , it is scary, and the other day I did feel hopeless , but the next day i bounced back and felt a lot better, this is not to say I am feeling great about all this all the time, but I am trying to remain positive it is all i can do for my mum. Please be respectful that some days it is s**t and you do feel helpless and scared of what the future holds, we are all entitled to feel a bit low going through this crap.

Take care, liz

Mum2bellaandwilliam's picture
Mum2bellaandwilliam
Posts: 414
Joined: Oct 2010

Hey , it is scary, and the other day I did feel hopeless , but the next day i bounced back and felt a lot better, this is not to say I am feeling great about all this all the time, but I am trying to remain positive it is all i can do for my mum. Please be respectful that some days it is s**t and you do feel helpless and scared of what the future holds, we are all entitled to feel a bit low going through this crap.

Take care, liz

Mum2bellaandwilliam's picture
Mum2bellaandwilliam
Posts: 414
Joined: Oct 2010

Hey , it is scary, and the other day I did feel hopeless , but the next day i bounced back and felt a lot better, this is not to say I am feeling great about all this all the time, but I am trying to remain positive it is all i can do for my mum. Please be respectful that some days it is s**t and you do feel helpless and scared of what the future holds, we are all entitled to feel a bit low going through this crap.

Take care, liz

Mum2bellaandwilliam's picture
Mum2bellaandwilliam
Posts: 414
Joined: Oct 2010

This blooming iPad, triple post! I think am just to impatient and keep tapping the buttons! Whoops!

vj1's picture
vj1
Posts: 151
Joined: Jun 2010

So sorry you are disappointed with this board. I have not been on as long as some others but I quickly found a group of women with the same fears, questions and need to vent that I have. I have a very loving and caring family but none of them have to live with OVCA every moment of each day. These women do and I know of no better source of support, love and caring. I have never been offended or read any posts that put down any treatment that anyone chooses to pursue. I am truly sorry that you feel the way you do and hope you will stay and "feel the love".

Verna

clamryn's picture
clamryn
Posts: 508
Joined: Jun 2010

Hi Kate, You know I read a lot of the posts and I want to say something and then I don't.
But I am so glad that you have gone 20 years and are doing good. That is wonderful.

We are all different. But I have to say that this board has been so very good for me. Just knowing that I am not going through this alone means a lot to me. And some of these ladies are so knowledgeable. And the times that I get angry... they don't seem to mind to listen to me vent.

I went for 17 years NED and then it popped its ugly head back up in 2008. After reading this board, I could be doing a lot of things that I don't do that I think I should be doing. I usually run it by my doctor and then decide.

One thing is that I do believe in prayer, miracles and that the Lord above has control over everything. But that doesn't mean that everyone on this board believes that.

Whatever you are doing.... you keep it up. You are a walking testimony.

Hugs and prayers to you.
Linda

nancy591's picture
nancy591
Posts: 1059
Joined: Sep 2009

Just to clarify.....The poster is not a 20yr survivor. Her naturopath is.

Kate, I wonder if it is the lack of enthusiasm to your beliefs more than it is no appreciation. I really try to respect others point of view.

Isn't this all a little "marleypoo"? or was it 'marleyboo"? The veteran members will know what I am talking about.

Either way, Kate, I do hope you continue to read and contribute.

clamryn's picture
clamryn
Posts: 508
Joined: Jun 2010

Thank you Nancy. I did read Kate's post wrong. I guess it was my chemo brain kicking in.

Linda

kayandok
Posts: 1223
Joined: Jun 2008

thanks for the clarificaiton, I had read it wrong too.
k

Christine B.'s picture
Christine B.
Posts: 137
Joined: Sep 2010

I am sorry and upset to read your post. I am rather new to this group since my September diagnosis of Stage IV OVCA. As I mentioned in one of my posts, my brother died two years ago from colon cancer. It was not until his last months that he began to pursue treatment options outside of the traditional including working with a naturopath and Vit C IV. Who knows how much longer he might have survived if he had taken a more active role in his treatment 4 years earlier. I have noted much of what you have posted and have begun steps to incorporate what I have learned from you and others on this board as I try to take an active role in the treatment of my disease. I come here for support and to educate myself. I value your experience and thank you for sharing, I hope that you will reconsider. Christine

Cafewoman53's picture
Cafewoman53
Posts: 735
Joined: Jul 2010

This board is a safe place where you can celebrate your good news or share the bad and there is always someone who will be there for you. The hope,friendship and support here is priceless. Yes there is fear, anyone faced with our situation would be fearful.
It sounds like you are upset that you cannot teach us how to conquere this disease, your heart is in the right place thank-you for that but I am going to stay with my dr as she has more experience than you in this field. Don't be mad it's my life and my decision.
That being said I love to hear what is working for you and I think you should stay here awhile and share your experiences. If your only agenda is to teach us than it might not work but if you just share yourself and your journey with ovca you just might get some wonderful gifts in return.
Colleen

carolenk's picture
carolenk
Posts: 909
Joined: Feb 2011

Kate

Please contact me privately on the message board as I am a 58-year old naturopath/nurse practitioner diagnosed w/ stage IIIc grade 3 papillary serous OC w/ carcinomatosis in August 2010. I am doing very well at the moment using the "best of both worlds."

I would like to know what is working for you.

best wishes to you,

Carolen

Tethys41's picture
Tethys41
Posts: 1057
Joined: Sep 2010

Well, I added you as a friend, but your name does not come up in my e-mail when I try to send you a PM. I would love to exchange experiences with you. I was diagnosed in August, 2009 with stage IIIc epithellial..., I always have to look up the rest.

I posted much of what I am doing under the post titled "Boosting Your Immune System," back in January. It has changed some since I am beyond chemo. I too am doing very well. My CA-125 hasn't gone above 2 since ending chemo.

Try sending me a PM, and then maybe I can reply to it.

Look forward to exchanging info.

Christine B.'s picture
Christine B.
Posts: 137
Joined: Sep 2010

Hello Carolen,

I would very much like to learn more from you about your experience/experiences with OVCA as a naturopath/nurse practitioner. I was diagnosed September 2010 with Stage IV OVCA with mets to pleura, chest wall, and had a resection/colostomy. My first surgery was not completed due to loss of blood and lowering blood pressure. I finished my sixth carbo/taxol chemo two weeks ago and will have CT scan and follow up in March. My CA125 dropped steadily from 2,400 presurgery to 34 after fifth chemo. Pelvic exam after 3rd chemo was good and bump on chest wall had disappeared after the first chemo. I am feeling physically well, emotionally on a roller coaster. I would like to find a good naturopath so that I too can use the "best of both worlds" as you say. I just don't know the best way to go about finding someone I can trust. I am in San Diego, CA.
If you don't mind I'd like to contact you also. If that is possible, I'm fairly new to this board and am not sure how go about doing that either.
Thank you, Christine

sofarstillhere
Posts: 19
Joined: Feb 2010

I just had to finally talk about this as I have been in such a quandry as what to do in regards to my eating habits while having cancer. To start with I have a huge sweet tooth, have had it ever since I can remember. I have talked to the many different doctors I've seen and of course the one who is in charge of my case now. They have all said that everything you eat feeds your cancer and just to try to eat a good diet with moderation in all. I have a friend who was diagnosed with ovarian cancer abour 6 months after I was. She has gone the route of eating no sugars or refined foods at all and I have continued to eat all of my sweets. She has a doctor that will operate on her everytime she has a reoccurence, and I have had a bit more chemo than she has but we are both still here. I am religious and I truly believe that our Heavenly Father will call us home when it is out time to go. I wonder sometimes if eating a bit healthier would have made a difference but quality of life is important too and cake, cookies, pie etc. do make me happy. I gained 20 pounds during my 16 rounds of carbo taxol, but have held steady ever since. I found this on the National Cancer Institute "Many people want to know how they can help their body fight cancer by eating certain foods or taking vitamins or supplements. But, there are no studies that prove that any special diet, food, vitamin, mineral, dietary supplement, herb, or combination of these can slow cancer, cure it, or keep it from coming back. In fact, some of these products can cause other problems by changing how your cancer treatment works.
Talk with your doctor, nurse, or dietitian before going on a special diet or taking any supplements. To avoid problems, be sure to followw their advice." I had a friend who brewed asiac tea for her husband any me for a year, but it really did't do anything for us. My mom died of ovarian cancer and she tried the in thing then which was laetrill (spelling?). Anyway I would hate to think that doctors only cared about money and would not tell us the truth if there was something else that would work. Sorry this is so long. I was first diagnosed September 9, 2002. I guess we all just have to do the best we can. Thanks, Patty

jloe's picture
jloe
Posts: 175
Joined: Sep 2010

Patty,
I think I feel along the same line as you and have talked to several of the individuals on my medical team about this same subject. They all pretty much gave me the same advice "try everything in moderation". This is old advice even for the healthy people without a disease. They also told me to ask them about anything over the counter or herbal because of the negative effects that it could cause during chemo and I do. I also feel like quality of life is important to try and live with this awful disease and I really do try to do what I want, when I want and have I have my weaknesses as well. I certainly don’t want to criticize anyone who would want to alter their diet to try to do what makes them feel like they are fighting this disease and they feel better. It’s tough to try and feel like we can gain control of our lives after we are diagnosed with cancer or any other life threatening disease. Sometimes it's the little thingsd that we do to make us feel a bit more in control. You have been living with this for a long time as many others do too. Thank you for your post.
J :) :)

culka's picture
culka
Posts: 158
Joined: Oct 2009

but if there is no study to prove that any food, diet, vitamin..... can slow cancer or cure it, how they know that is changing the way how treatment works? Or...?

And if we stop eating that plastic food (did you ever read ingredients in bread?) our body is taking care of the rest.

Hissy_Fitz's picture
Hissy_Fitz
Posts: 1869
Joined: Sep 2009

Or don't eat whatever you want. I will not attempt to deter you from any diet you choose to embrace. If you believe mushrooms, asparagus, or a sugar-free, meat-free, dairy-free diet will help restore your health, far be it from me to discourage you.

By the same token, please don't try and shove YOUR "plan" down MY throat. Don't tell me I am "poisoning" myself with white bread, or M&M's, or a glass of wine in the evening. Be respectful of other people, and they will be respectful of you. I truly believe that.

If other members don't beg you to share your new found "cure" with them, it's not because we are wallowing in hopelessness; it just means we have chosen a different path.

Believe me, the person who started this thread is not the first one to "enlighten" the rest of us, regarding the benefits of supplements, alternative treatments, diet, etc. None of this is news. We've all heard it a hundred times before. We were listening....we just aren't buying. Please don't take it personally.

Carlene

childofthestars's picture
childofthestars
Posts: 246
Joined: Jan 2011

I soooo agree with your sentiment x

JoanC's picture
JoanC
Posts: 224
Joined: Jan 2009

I so totally agree...!!! Thanks for saying it so well.
(((HUGS)))

jloe's picture
jloe
Posts: 175
Joined: Sep 2010

I always love your posts. Keep tapping away at those keys!

Lisa13Q's picture
Lisa13Q
Posts: 683
Joined: Jul 2009

I couldn't have said it better myself... why do people who don't like this board have such a strong desire to share all their feelings about us...rather than just leave??

kikz's picture
kikz
Posts: 1270
Joined: Jun 2010

I think we all appreciate hearing from people who have found something that works for them. Whether to halt the disease, slow it down or just feel better during the ordeal. I guess I would chew rocks if I thought it would keep this monster out of my body. I like the saying, "Everything in moderation including moderation." I know I could eat a lot healthier but I have a sugar monkey on my back and although I try really hard to kick him off, I admit to giving in more often than I should. We are in a rather one-sided battle and have a tendancy to grasp at straws in our effort to win. I try to respect people and their beliefs and I am willing to listen. I applaud people who are able to follow a more stringent regimen but expect the same respect for however I choose to deal with this issue.

Karen

Tethys41's picture
Tethys41
Posts: 1057
Joined: Sep 2010

God knows my intent was not to stir up such animosity on this board when I posted this, or any of my other posts. I have neutrally posted knowledge and experiences I have had during my healing process. Carlene, if you really believe that if I show respect, I will be respected by others, I ask you why you have repeatedly belittled my expereinces and knowledge, when I have NEVER tried to "shove" my ideas down anyone's throat. Why does this information offend you so?

I honestly believe that when addressing this disease the method of treatment one chooses is VERY personal, and I would never insist that any of you opt for something that is uncomfortable for you. On the other hand, I strongly believe that people who are investigating the options have a right to know what the options are, in an unbiased environment.

Maybe those of you who are so opposed to taking every possible precaution against this disease did not have the same experience I did with their initial bout. My cancer came on fast, from apparently nothing to stage IIIc in 7 weeks. I had a very intense surgery and lost 5 units of blood on the operating table. I was considered suboptimal after surgery. I had a total of 20 gallons of ascites drained from my abdomen over a two month period, and prior to it drying up, it was malignant ascites. I was on IV nutrition for 3 months, 24/7. My detox pathway for taxol is compromised due to my genetics, so the chemo knocked my on my butt and I experienced nearly constant abdominal pain. I grasped at every possible treatment I could get my hands on, becaues I knew I couldn't afford to let the cancer catch its breath, not for even a second. I never asked my doctor what my chances were, but since I have become well, it is apparent that they were betting against me. Every oncology nurse I have worked with has called me a miracle. Now, I am training for a triathalon which is being held on the second anniversary of my surgery in August.

So, that is why I think the knowledge I have gained is important, at least it is to me.

Hissy_Fitz's picture
Hissy_Fitz
Posts: 1869
Joined: Sep 2009

I posted the following, WAY BACK in the beginning of this thread:
"Secondly, I sincerely hope that my posts regarding alcohol, sugar, etc did not seem like a personal attack. I surely did not mean them to be. I only wanted to point out that my doctors, both my local gyn/oncologist and the highly respected and well known research physician, Paul Sabbitini, subscribe to the all-things-in-moderation theory. I trust their judgment, and I view that trust as an essential part of our relationship , and my treatment plan. Your faith in the team of professionals that has given you such great success is admirable and I applaud your loyalty and your willingness to be so willing to adapt."

But I will say it again......IT HAS NEVER BEEN MY INTENT TO BELITTLE ANYONE'S TREATMENT PLAN.

Your information does not offend me. What offends me is anyone, not necessarily you, who joins the board to share (promote??) her personal anti-cancer regimen, then flounces when no one seems interested in following suit.

Plenty of members here are totally committed to alternative therapies, supplements, etc. Nancy Mellen comes to mind. She gets infusions of Vitamin C and Hydrogen Peroxide, among other things. And she will share information with anyone who expresses an interest. What she doesn't do is attack the board as a whole, accuse us of embracing hopelessness, and announce her intention to leave because more people don't seem interested in her healing plan.

With all due respect, Kate, your journey and mine are very, very close, time-wise. I was also on TPN feeding, 16 days in the hospital when I was de-bulked, over 10 liters of malignant ascites removed (3 prior to surgery and 7 during), plus a bowel resection. It took 6 pints of packed red blood cells to get me thru chemo. My CA125 was 4,000 when I started. Today I am as NED as you are, praise the Lord. Who's to say whose treatment plan worked best?

It is a fact that 85% of all ovarian cancer patients are NED after first line chemo. Unfortunately, most of us have a recurrence within 2 years. I don't fault anyone's chicken soup approach to OC (chicken soup, as we all know, might not help, but it can't hurt). The knowledge you have gained IS important, especially to you, and it's great that you wanted to share it. Honestly, what got people's panties in a wad was the first post in this thread. It sounded like, "I am leaving because you people don't appreciate me and my excellent advice." No one wants to run you off (least of all me), but if all you ever post about is what we are doing wrong, and what you are doing right, then you will miss out on the very best thing this board has to offer - the support and camaraderie of many wonderful friends - "sisters", if you will.

Peace and Love,
Carlene

anicca's picture
anicca
Posts: 324
Joined: Dec 2010

Amen!

srwruns's picture
srwruns
Posts: 343
Joined: Oct 2010

"Maybe those of you who are so opposed to taking every possible precaution against this disease..."

I struggle with this comment and as I posted way back I felt like we weren't even reading the same board. It really suggests that some of us may be lackasdasical about our treatment. I am intrigued by many of the suggestions you posted, and quite frankly they weren't something I hadn't already heard about. There are some that are of interest to me but I also have limited resources to pursue those that are not backed by my insurance. Since I early retired I must pay my full benefit cost ($900 a month) plus hefty deductibles. I also have a son in college and we all know what it happening in that arena. I will take every possible precaution, and I have done so, within my avaiable resources. I simply will not sacrifice my son's college because I got ill. Nor will I sell my house as that will be a major part of any estate I leave for him. Others, perhaps yourself, may have access to resources that not all of us have. That is simply the state of health care in this nation as well as differences between those with supplemental resources. I don't begrudge anyone what they have but please do not show disdain to those of us that must carefully allocate our resources towards our recovery and maintaining responsibility we have to others. In the end, it isn't always about me.

leesag's picture
leesag
Posts: 624
Joined: Jan 2010

First of all, I AM a lady, not a "lady."

Second of all, I support your right to choose any treatment option you choose, AND to share it with all of us, accepting that discussion on this board is open and frank, but hopefully, never vicious or scathing. My apologies if you have found any of my comments to be insulting. (I do however, reserve the right to poke at asparagus diets, since they have been debunked by Snopes.)

HOWEVER, I do resent your implication that I am "opposed to taking every possible precaution against this disease."

The bottom line is this, we all fight this battle with the weapons that we are most comfortable with. Just as warriors have always done. It's how wars are won.

In the end it boils down to this for me:

"May God grant us all victory, good health, long life, love and joy. Amen"

(No, nothing is missing, I believe in the power of prayer and positive thinking).

Hugs,

Leesa

anicca's picture
anicca
Posts: 324
Joined: Dec 2010

Culka said "but if there is no study to prove that any food, diet, vitamin..... can slow cancer or cure it, how they know that is changing the way how treatment works? Or...?"

Certain components of common foods are known to reduce the effectiveness of certain drugs. For example, dairy products interfere with tetracycline and other antibiotics in the same family. Likewise, some ingredients of some supplements, foods, or OTC drugs might have been shown to reduce the effectiveness of some cancer drugs. When you have any illness which is being medically treated, you should not attempt to supplement those treatments without consulting with the doctor treating that illness.

lindaprocopio's picture
lindaprocopio
Posts: 2022
Joined: Oct 2008

My oncologist said that 'Of course people going on a specialized anti-cancer diet are going to feel better, because everyone feels better when they eat healthy foods', and that most people start the specialized diets AFTER they finish traditional chemo, when they would be feeling much better anyway just to no longer be getting chemo.

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