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High Tg count

nkongovi
Posts: 5
Joined: Jan 2011

I'm 37 year old female, who was recently diagonised with pappillary thyroid carcinoma in July 2010. I also had the same dialogue that it was one of the best cancer to be had.(yeah right) I was mis-diagonised with pneumonia twice before being reffered to to a pulmonary specialist, who suspected lung cancer, and when I opted to wait instead of lung biopsy, I had an FNA of the thyroid and swollen lymph node which was inconclusive. I opted for TT in Aug 2010. It was a 10 hr surgery, with a knicked vocal chord. I ended up in ICU for 2 weks, as I had to learn how to swallow again.

This was followed by a high dose of RAI. when my TG was done, it came back as very high it is 1500. I started looking at all the websites about high Tg count and got worried more as people were talking abt high Tg count when they were talking abt it being in double digits. I am now beyond the point of worry and at the point of taking things as they come. can anyone comment would appreciate it

diane2h81's picture
diane2h81
Posts: 41
Joined: May 2010

I'm so sorry you had to go through such a hellish surgery.
TG is definitely something to watch. And you should take one thing at a time, sometimes that is the best way to handle things. But don't live a constant state of worry.
If your RAI was recently done your TG can still decrease.
Have you had a scan other than the full body done after the RAI?
Did your RAI scan show uptake?
If you haven't had your lungs checked (as you stated you where waiting) I would go ahead and do that too.
You may have this enemy of ours somewhere they didn't find at first. That is what I'm going through now, we are trying to find it.
Once located, either surgery, radiation or a trail.
I know this isn't easy or the best cancer to have. But fight. Fight for every scan out there until you find where this is. Fight for every treatment. And fight for good doctors.

nkongovi
Posts: 5
Joined: Jan 2011

Hi Diane,

Thank you for your encouraging words. My new Tg count is not in yet. I am waiting for my first CT sca