Jan 25, 2011 - 6:53 am
Husband was initially dx'd with advanced stage4 primary HCC w/mets to the pelvic bone, last Sept 2010. There is no cirrohsis, or hepatitis underlying. However, after almost two months of testing, and my constant persistance, a def. dx's was finally made.(should it have taken this long???) First, he received targeted radiation to the pelvic bone, as it was causing him alot of pain. Then he began the Nexavar on Nov.23,2010. Since then his quality of life has become next to nothing. He has lost over 35 lbs, his tongue is so raw, he cannot eat, he is extremely weak. (His hair is gone too, but we expected that part.) The onc. has tried halfing the dose, and even taking him completely off for a few days at a time. But when he goes back on it, all of these horrible side-effects come back almost immediately. We are told the Nexavar is the only hope he has, but it's making him sicker than the cancer itself it seems. I'm really scared, and worried that the chemo is gonna end his life b4 the cancer does. Please Help!