Jan 24, 2011 - 4:01 pm
Hello , im usually on the head and neck.
My wife who is Fancini Aneamic and after 4 surgeries the last year and another 3 in previous years , has finally had to succumb to the "no choice" of radiation, which is considered life threatening. This is because Fanconi patients who are prone to malignancies and bone marrow failure, have problems in cell repair. So kill off enough good cells and you kill off the person simplistically put!
I am fearful, as her physical starting point is compromised too by multiple throat surgeries, including Lung surgery for squam a year ago.
Our last PET SHOWED Squamus cc of hypopharynx+ a spot at the place of previous opp where her asoph was removed except for a small join now to the stomach. Stomach has been lifted up into the -chest area.(after gastric pull up). Also spot on Lung (cosidered a recurrence of scc from previouse opp)
We will now have Radiation of throat and down to aesoph area-planned for FEB 14.I know this is going to be difficult, i pray shell be strong. Shes walking, talking , and working as much as she can.
I have been with her for every breath of her 14 year battle. Every meeting, checkup, surgery and heartfelt moment. All this ws surgery based. Now its obvious to me that this time the scenario is different.Both for her and for me. I got to maintain my job , run the home, be at her side and logistically seems impossible. In a previous post i asked about rad effects and remedies you use/d. I want to add the following.
I want practical advice of how i am to organize myself for the comming "inquisition":
I know too that all the scenarios i plan for might be nothing near to reality and perhaps i should be more humble. Yours Clear B.