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My brother was just diagnosed with Stage IV Stomach Cancer...has already spread to Liver

erict072
Posts: 9
Joined: Jan 2011

My brother is 41 years old and was just diagnosed with Stage IV Stomach Cancer that has spread to his liver and possibly his pelvis. He's had a hard life, suffering from Lupus @ age 9 which lead to kidney failure and 10 years on Dialysis. In 2000 I donated a kidney to him. He developed diabetes some five years after the transplant and sufferred the occassional seizure. Needless to say our entire family is devastated as cancer was never on the radar. The above will tell you that he's a fighter, but we're all very aware of the odds we're up against. We've found a very caring Oncologist in Sarasota, Florida who is considering treatment with the drug Herceptin. We know what he has is not curable as things stand today, but we're hoping that we can buy a little more time for him...you never what medical breakthroughs tomorrow may bring. Any advice and/or prayers are very welcomed.

Thanks for listening,

Eric

Tina Blondek's picture
Tina Blondek
Posts: 1561
Joined: Nov 2009

Hello Eric and welcome to you your brother and your family. You are a wonderful brother for posting this. Wow...he has been through a whole lot in his only 41 years. This is all new and a shock for all of you. The shock will wear off soon. His stomach cancer may be treatable through surgery, the liver....not so sure. I have heard of this treatment herceptin. It is very well known, and very good. He may not be curable today, but he is treatable, which may shrink tumors enough for surgery. One day at a time. Get him to Florida fast and start these treatments. Let us know how he is doing. I was a caregiver for my dad. He lost his battle with esophageal cancer that went to his liver in March 2010.
Tina in Va

worried for a friend
Posts: 2
Joined: Jun 2011

I have a friend with diagnosis of gastric cancer one month ago. She is 35 years old and she is the mom of two babies. This is a sad story, but the worst is she cannot eat solid food because the tumor is blocking the pilorus, and doctors have sent her to her home with liquid diet. She only drink the third part or less of the amount she need to consume, and she is very skinny and weak. I am worried about the criteria of doctors, because they say the parenteral feeding is "feeding the tumor", and this is the reason because she is only with liquid diet. I would like to talk with an expert to knos if this is true or maybe is just the excuse of doctors to avoid the cost of the parenteral feeding.
I will appreciate your comments

dustmagnet7
Posts: 27
Joined: Oct 2010

Feel free to say that a cure for the cancer is statistically improbable, but there is always hope. I was daignosed a year ago with stage 4 stomach cancer that spread to my intestines and omentum. My original diagnosis was about a year to live. I'm pleased to say that I am cancer free today and plan on staying that way. I realize it can still come back, but I refuse to give it a chance. Stay strong and keep your brother fighting!

Eric Grush
Posts: 10
Joined: Jan 2011

It is good to hear your story dustmagnet7, and I like your point: Never say not curable. We may face some tough odds, but there is always hope. I was diagnosed with Stage 4 stomach cancer three months ago.

erict072
Posts: 9
Joined: Jan 2011

Things are not going well for him. He's lost a lot of weight and he's essentially shut everyone out...except my mom. He's afraid, hurting both physically and emotionally and alone and based on his previous medical history, I can't rule out that he no longer has fight left in him. I feel completely helpless..I thought I saved his life ten years ago with the kidney transplant and now this. He cancelled his PET scan...fearing what the results might be. I know I need to be there for him, but I struggle to find the things to say. Just needing to vent a little.

Eric Grush
Posts: 10
Joined: Jan 2011

erict072,

I don't know what to say, other than that my prayers are with you and your brother. I'm a similar age and the same stage (IV). I also sometimes feel like shutting people out and not fighting -- he may just need some space and time to process things for now. Things may change with time.

erict072
Posts: 9
Joined: Jan 2011

Having it done today. Eric, feel free to shoot me a private message and let me know how you're doing. Any and all information you could share with me would be GREATLY appreciated.

neverquit
Posts: 221
Joined: Oct 2010

Glad to hear that your brother changed his mind about the PET Scan. My prayers are with you.

erict072
Posts: 9
Joined: Jan 2011

PET scan came back better than expected. We were afraid it would show mets to the pelvic bone based on the preliminary CAT. PET showed no mets to the pelvis or bladder. There were lesions on the liver, but we knew that (largest was 1.5 cm...not sure what that means in terms of the cancer). We'll take this news as a small victory.

neverquit
Posts: 221
Joined: Oct 2010

That is good news. I am praying for your brother that he wins this battle. Keep the faith and I wish you victory.

erict072
Posts: 9
Joined: Jan 2011

Unfortunately, My brother has decided to forego any further treatments. He seems much more resolute in his decision. He hasn't changed his diet either. I know he's had a hard life, but I feel utterly dissappointed in this decision and I hurt for him and my parents. I truly believe my brothers perceived lack of hope is deadlier to him than the cancer. For those of you battling this disease, please don't lose hope and continue to fight even in the most dire of circumstances.

erict072
Posts: 9
Joined: Jan 2011

It's about my brother's battle in Sunday's edition of the Tampa Tribune: http://www2.tbo.com/content/2011/mar/20/BANEWSO1-the-illness-comes-second/life/

He's not long for this world...please keep him in your prayers.

have2believe
Posts: 135
Joined: Dec 2010

I will keep him in my prayers. He is such a wonderful person and through everything, knows that cancer does not define him. I wish your brother, you, and your family much strength. Please keep us updated and thank you for shareing the article.

neverquit
Posts: 221
Joined: Oct 2010

I read the article about your brother; he is an amazing person. May your brother, you and the rest of your family get a miracle!

idedona
Posts: 7
Joined: Apr 2011

Sometimes its better not to do chemo. chemo can spread the cancer faster and give your brother a poor quality of life. look into doing integrated treatments. he may really like it. i know it's easier for me to say because i'm not the one with cancer but your brother has to try to be optamistic. he should say i will beat this and he will.

iliana

idedona
Posts: 7
Joined: Apr 2011

my brother 34, was also just recently diagnosed with stage 4 stomach cancer which spread to his liver. we are looking to send him to germany where he will have a chemo sensitivity test done to see which chemo drug is most effective on him then he will have a combination of IPT and hyperthermia. The success rate is very high there. hope everything goes well with your brother.

iliana

erict072
Posts: 9
Joined: Jan 2011

My brother is coming to the end of his battle with gastric cancer. We're asking our family, friends and anyone so inclined to please consider inundating him with cards, letters or words of encouragement. His address is: Luis Torres 8801 Hunters Lake Drive #1237, Tampa, FL 33647. Please consider posting this on your FaceBook Walls so he can move on surrounded with love. Thanks.

neverquit
Posts: 221
Joined: Oct 2010

Erict072. Your brother is very, very lucky to have you on this journey with him. I wish you both peace, love and a miracle. And if Luis must move on, I wish him freedom from pain and suffering. I hope he meets my husband Mike (passed 1/23/2011 from gastric cancer also) on the other side and that Mike shows him the ropes (as I know he will). I just sent a card to your brother and hope it serves to encourage him. Many prayers and hugs.

erict072
Posts: 9
Joined: Jan 2011

Today I held my brother as he breathed his last breath. Thank you to everyone who has sent their thoughts, prayers, cards, etc.

Faithful_Angel's picture
Faithful_Angel
Posts: 88
Joined: May 2011

I am so sorry for your loss I know it's never easy and I am facing the same thing with my father sometimes soon. Know that he is at peace now, I know it's not real comforting for you right now having to deal with your own grief but know we are here for you anytime you need.

jlpearce
Posts: 1
Joined: Aug 2011

I am so sorry to hear of your loss.

Me and my two sisters lost our mother 5 weeks ago to stomch cancer. It just helps me with my griveing to let it out. My story is a little differnt and we are still trying to understand how it all happend...

Here's my mothers story and I will try and keep it as short as Possible short,

About a year ago my mother was having trouble with her Stomach and went to the doctors on a number of occasions to find out what was going on. After running test the doctor concluded it was stomach ulcers and she was given treatment and things did tend to settle down for a few months “they didn’t go away they just settled down”. Then the symptom’s started getting worse again. She wasn’t getting any answers from that particular doctor so about 4-5 months ago she went to another doctor.

This new doctor also run her tests and was basically treating her for reflux and fatigue and some other symptom’s “which are all signs of stomach cancer” and she just gave her somack for the reflux. 4 months went by and nothing improved so she went to another doctor with problems with her breathing. The doctor took chest x-rays and said it was pneumonia gave her some puffers and antibiotics and sent her home. He just said if you feel you need to go to hospital go!! 5 Days went by nothing changed and her breathing got worse so she went to the hospital.

Upon being admitted to hospital they again took more x-rays found nothing and she was getting worse, they then did a ct scan and found lumps in her left lung and which they said was interstitial lung disease. She was supposed to fly out that evening but the hospital decided to keep her there “so angry with them” and gave her two lots of dye and ct scans looking for blood clots???? No blood clots were found.

Finally they decided to declare it a medical emergency and she was supposed to fly out at 8.00 pm. The plane left Melbourne at 7.00 pm and had difficulties and returned to Melbourne at 9.35 pm. 2 and a half hours in the air when the fight only takes an hour to get here???
Then they dispatched another plane and it arrived here in Mildura at 1.15 am and took mum back to Melbourne and she arrived at melbourne at 3.15 am. She was then put in an ambulance and driven to the Geelong hospital. She didn’t arrive there till 5.30 am when the drive only takes 50 mins???? Another hour missing!! So much for a medical emergency. She died within 30 minutes of arriving.

She died with no one by her side! No one to hold her hand and hug her and she died not even knowing what she had.

She was taken to the coroner’s office and an autopsy performed and what the pathologist said to me was she had stage 4 stomach cancer that had spread to her lungs. He told me she had a very large growth in her stomach and her lungs were riddled with cancer!!

We were shocked and have no idea how in the hell this has happened?

How have they missed this in this day and age and the cancer being that advanced? She was on her death bed and they still missed it?

How can a doctor take x-rays and send her home saying its pneumonia when her lungs were riddled with cancer?

How could the hospital keep her here for 4 days when she could not breathe and they had no idea what it was?????

Why wasn’t she transferred to a hospital that has the right equipment to have diagnosed her???

How can a doctor 4-5 months ago not find this when she had all the symptom’s of stomach cancer??

Our world has been completely shattered! We had no idea mum had cancer. Our mother was one of the most beautiful persons this world will have ever had known! She was such a well respect lady. We had organisations close for the day of her funeral. There were even parts of the Deakin university that closed for the day. We are at a loss as how this could happen to such a beautiful person? We didn’t even get to spend quality time with her and say our good bye's.

She left behind me and my 2 young sisters 21 and 16 and two grandchildren.
For those of you that are suffering from stomach cancer keep fighting. But Please Please make sure you have your orders in affair.

Make sure you have a will and funeral insurance. Make sure you discus how u would like your funeral done with your family. Don’t leave your family with what we have had to go through. Mum had nothing and we still can't grieve properly.

I’m not saying give up! Just make sure u and your family are prepared for the worst.
All the best and our thoughts and prayers are with you all.

The Pearce family.

not giving up
Posts: 1
Joined: Aug 2011

Anyone out there have any ideas where to find current/radical treatment for advanced linitis plastica? My mom was recently diagnosed so we are just beginning this battle and are looking for any information- very hard to find!

Thank you all!

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