Wow, what a week. Just got released from a 6 days stay in the hospital. Did not expect that one. Here's what happened.
At the onset of week 6 of treatment, my pain was becoming pretty intense. My whole underside was one big open wound. Sunday night as I walked about the house I literally was leaving a trail of blood in my wake. So Monday morning I refused to go to another radiation treatment without first talking with doctor. My husband was also upset because he didn't feel I was getting strong enough pain meds. Doctor took one look at me and gurney was called to take me upstairs for admittance. Doctor said I had a "severe and rare reaction to radiation", and that my "burns were extreme". In addition I developed a neuropenic fever, and was placed on antibiotics. Then, as if that's not enough, my blood pressure tanked for about 2 days. As my white cells slowly begane their climb upwards from last dose of chemo, my red cells were falling fast, and I ended up with a 2 pint blood transfusion.
They say that treatment for anal cancer can be pretty brutal and they weren't kidding. First 3 days of hospital stay we were dealing with affects of radiation, last 3 days we were dealing with affects of chemo. But I made it through to the other side and am home now. Hemoglobin and hematocrit number are still low (9.5 and 28, normal is 12-16 and 30-35)but doctors confident my body can continue to make good cells. Wound Care specialist at hospital really helped me with my area, and I am 75% better in that regard. Still on low doses of oxycodone, but off morhphine. It was a bad experience, and one I hope no one else has to go through. But reading all the posts, we all have had our challenges during this cure. The bottom line is that we are cured, and if not, certainly in the process.
My next dilema is to determine whether I should finish out treatment, I have 3 radiation zaps to go before admitted in hospital. I really don't want to as I have already started the long road back, and don't want any backwards steps. I'm so scared of the pain coming back. Doctor said I reacted severely to radiation so wouldn't it be safe to say that my tumor did too? We meet tomarrow morning to discuss my plans. Any insights anyone?
Just glad to be home,
(P.S. If anyone wants to read my blog in depth, I have a sight at Caring Bridge http-//www.caringbridge.org/visit/darceehosman
Please feel free to visit, I've been writing my story here from the beginning.)