legs hurt

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mollyz
mollyz Member Posts: 756 Member
edited March 2014 in Breast Cancer #1
Legs hurt really bad but no swelling they feel like I've exercised you know how it feels when you've worked out really hard and your legs feel over worked. I'm on taxotere and have 3 more treatments.
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  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #2
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    I had the same problem. And
    I had the same problem. And believe it or not, some light exercise usually helped. I 'walked' pretty slowly on the elliptical most days, only for 20 to 30 minutes. Some days, I couldn't even do that. Elevating my legs also helped sometimes.

    I hope you feel better soon. Take care.

    Hugs,

    Linda
  • pinkflutterby
    pinkflutterby Member Posts: 615 Member
    #3
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    Gabe N Abby Mom said:

    I had the same problem. And
    I had the same problem. And believe it or not, some light exercise usually helped. I 'walked' pretty slowly on the elliptical most days, only for 20 to 30 minutes. Some days, I couldn't even do that. Elevating my legs also helped sometimes.

    I hope you feel better soon. Take care.

    Hugs,

    Linda

    My legs do that sometimes
    My legs do that sometimes too, kinda feels like the flu? Putting my legs up helps me.
  • aysemari
    aysemari Member Posts: 1,596 Member
    #4
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    I can relate!!!!!
    I was on taxotere and carbo, Herceptin. My legs were my biggest complaint.
    Pain, just like you described and later on swelling as well... I looked like I had
    elephant legs. My joints still hurt but I have been taking Glucosamine for joint
    health and it really worked for me.As a matter of fact I ran 5K yesterday for
    the first time since I started chemo.

    It WILL get better!

    Hugs,
    Ayse
  • mollyz
    mollyz Member Posts: 756 Member
    #5
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    aysemari said:

    I can relate!!!!!
    I was on taxotere and carbo, Herceptin. My legs were my biggest complaint.
    Pain, just like you described and later on swelling as well... I looked like I had
    elephant legs. My joints still hurt but I have been taking Glucosamine for joint
    health and it really worked for me.As a matter of fact I ran 5K yesterday for
    the first time since I started chemo.

    It WILL get better!

    Hugs,
    Ayse

    thanks Ladies
    I was really beginning to worry about nothing I use to exercise but i really stopped in July after being so sick from that chemo,my son has been telling me to walk on the treadmill it's been holding t-shirts at night so when i have a hot flash i just reach get another LOL. @Linda don't you have surgery coming up? MollyZ
  • Rague
    Rague Member Posts: 3,653 Member
    #6
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    Potassium?
    How are your potassium levels?
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #7
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    Rague said:

    Potassium?
    How are your potassium levels?

    Damn .. chemo therapy and its lovely side efforts .. yes,
    this is typical and common. Leg cramps or what I like to call -- leg jerks. At times I would cry in the evenings, as I was unable to relax or get comfortable - it did not matter where I layed down, or sat up .. the jerks and pain was extreme. Advil worked, but not always.

    As I recalled .. place two or 3 unwrapped soap bars between your sheet and mattress pad -- this works in allievating leg cramps and spasms.

    I am sure some of he other WARRIORS have other helpful tibits.

    Strength and Courage

    Vicki Sam
  • dbhadra
    dbhadra Member Posts: 344 Member
    #8
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    yep
    yep, I have that too - just started my taxol treatment last week and legs ache - have been using extra strength tylenol as I have had a number of biopsies and been told not to use advil right now due to potential bleeding...

    yes, it feels kind of like flu...general achiness (don;t know how to spell that!) but seems especially focussed in the legs and sometimes the lower back...also,,,and this is really bizarre...my ovaries hurt! Kind of twinges...has anyone else had that? I think that I would be going into menopause after all this treament...I;m 44.

    Laura
  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #9
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    Rague said:

    Potassium?
    How are your potassium levels?

    I only have bad bad leg and foot cramps at night
    but I asked Dr if eating bananas would help..she said yes... seems to be working..
  • monica811
    monica811 Member Posts: 10
    #10
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    Legs Hurt after treatment or after shot?
    Hello. I just had my first of the four treatments of taxol yesterday. So far I feel OK this morning. Not sick and all. I go back this afternoon for that $6000 shot for my white count. I think that shot is as bad as the chemo. Are you taking the shot? My onc. nurse says it will make everything but you butt whole hurt! Ha. It really has been just making me a little weak. I have been working out all through this up until I found out last week at labs that my red count was down to 8.8. It was up alittle yesterday to 9.1 so we did the tazol treatment. I plan to spend some time on the treadmill today, I hope, before that nasty shot.

    Has your eyelashes and eyebrows fell out yet? I am not ready for that! I am just wondering when that happens?

    Good Luck, Mollyz. It looks like we might be finishing this out together. Did you have surgery of any kind?

    Have a blessed Day!
  • dbhadra
    dbhadra Member Posts: 344 Member
    #11
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    monica811 said:

    Legs Hurt after treatment or after shot?
    Hello. I just had my first of the four treatments of taxol yesterday. So far I feel OK this morning. Not sick and all. I go back this afternoon for that $6000 shot for my white count. I think that shot is as bad as the chemo. Are you taking the shot? My onc. nurse says it will make everything but you butt whole hurt! Ha. It really has been just making me a little weak. I have been working out all through this up until I found out last week at labs that my red count was down to 8.8. It was up alittle yesterday to 9.1 so we did the tazol treatment. I plan to spend some time on the treadmill today, I hope, before that nasty shot.

    Has your eyelashes and eyebrows fell out yet? I am not ready for that! I am just wondering when that happens?

    Good Luck, Mollyz. It looks like we might be finishing this out together. Did you have surgery of any kind?

    Have a blessed Day!

    legs were better yesterday
    @Monica: are you are taking TAC or just taxol? do you have it every week or every three weeks?

    Since mine is weekly taxol I don;t have to take Neulesta (spelling - that $6000 shot that makes everything hurt!) right now. I'm going for bloodwork today and would see how my counts are. I think/hope they should be fine as it;s only my 2nd weekly treatment. If not they would give me another medicine, not Neulesta but some other name I forget right now.

    Once I start the FEC after 12 weeks of the taxol weekly(so around March) I would probably have to do the Neulesta, which sounds like not fun.

    Hair hasn;t fallen out yet; they said about 3 weeks after starting so we'll see. My wig and turban are ready to go! Did you get your wig yet? I just sent the bill to my insurance company yesterday, $400, hope they will pay it!!! My policy says it is covered as long as I have the doctor's prescription, which I also sent a copy of.

    Last night my legs were hurting again, so took 1 ES tylenol and 1 adivan and slept really well. Past two nights (Tues and Weds) my sleep was really disturbed because of the legs hurting and general feeling that I could not get comfortable. Adivan is good! Anti-nausea AND makes me drowsy! :)

    Wishing everyone a good day!
    Laura
  • mollyz
    mollyz Member Posts: 756 Member
    #12
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    monica811 said:

    Legs Hurt after treatment or after shot?
    Hello. I just had my first of the four treatments of taxol yesterday. So far I feel OK this morning. Not sick and all. I go back this afternoon for that $6000 shot for my white count. I think that shot is as bad as the chemo. Are you taking the shot? My onc. nurse says it will make everything but you butt whole hurt! Ha. It really has been just making me a little weak. I have been working out all through this up until I found out last week at labs that my red count was down to 8.8. It was up alittle yesterday to 9.1 so we did the tazol treatment. I plan to spend some time on the treadmill today, I hope, before that nasty shot.

    Has your eyelashes and eyebrows fell out yet? I am not ready for that! I am just wondering when that happens?

    Good Luck, Mollyz. It looks like we might be finishing this out together. Did you have surgery of any kind?

    Have a blessed Day!

    @monica
    Hello,I had fec(5-FU,Epirubicin,Cytoxan that was my cocktail) in the summer that was rough on me so so sick even with the meds.I had the neulasta shots i didn't have any problem with them every one is different then I started taxotere in October didn't lose all my eyelashes or eyebrows they thinned out, but i can't say that about the hair it came out after the 2nd treatment in the summer, I had a radical mastectomy in June 2010 left breast.thanks monica.hugs MollyZ
  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #13
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    monica811 said:

    Legs Hurt after treatment or after shot?
    Hello. I just had my first of the four treatments of taxol yesterday. So far I feel OK this morning. Not sick and all. I go back this afternoon for that $6000 shot for my white count. I think that shot is as bad as the chemo. Are you taking the shot? My onc. nurse says it will make everything but you butt whole hurt! Ha. It really has been just making me a little weak. I have been working out all through this up until I found out last week at labs that my red count was down to 8.8. It was up alittle yesterday to 9.1 so we did the tazol treatment. I plan to spend some time on the treadmill today, I hope, before that nasty shot.

    Has your eyelashes and eyebrows fell out yet? I am not ready for that! I am just wondering when that happens?

    Good Luck, Mollyz. It looks like we might be finishing this out together. Did you have surgery of any kind?

    Have a blessed Day!

    M.onica .. $6000 shot is alled Neulasta -- pretty sure
    please ask your Oncologist about the listed side efforts of this very expensive shot, and see if he/she suggest. I guess what I meant to state is that many of us WARRIORS who were given this same shot during our chemo therapy treatment - experienced flu like symptoms for several days after this shot.

    Be safe .. and let us know how you are doing.

    Strength and Courage,

    Vicki Sam
  • carkris
    carkris Member Posts: 4,553 Member
    #14
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    VickiSam said:

    M.onica .. $6000 shot is alled Neulasta -- pretty sure
    please ask your Oncologist about the listed side efforts of this very expensive shot, and see if he/she suggest. I guess what I meant to state is that many of us WARRIORS who were given this same shot during our chemo therapy treatment - experienced flu like symptoms for several days after this shot.

    Be safe .. and let us know how you are doing.

    Strength and Courage,

    Vicki Sam

    When I was on taxol I did
    When I was on taxol I did not require the neulasta shot?????
  • mollyz
    mollyz Member Posts: 756 Member
    #15
    Options
    VickiSam said:

    Damn .. chemo therapy and its lovely side efforts .. yes,
    this is typical and common. Leg cramps or what I like to call -- leg jerks. At times I would cry in the evenings, as I was unable to relax or get comfortable - it did not matter where I layed down, or sat up .. the jerks and pain was extreme. Advil worked, but not always.

    As I recalled .. place two or 3 unwrapped soap bars between your sheet and mattress pad -- this works in allievating leg cramps and spasms.

    I am sure some of he other WARRIORS have other helpful tibits.

    Strength and Courage

    Vicki Sam

    @vickiSam
    I have heard of this and i will be trying it tonight,I have chemo tomorrow if they're not behind we've had 8inches of snow here in s.c. and my kids have been out of school all week. W O W Hugs MollyZ
  • mollyz
    mollyz Member Posts: 756 Member
    #16
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    Rague said:

    Potassium?
    How are your potassium levels?

    @Rague
    I don't know,I have the blood work every week but no one says anything about my Potassium only my wbc and rbc should i ask for my potassium to be checked?
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #17
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    mollyz said:

    thanks Ladies
    I was really beginning to worry about nothing I use to exercise but i really stopped in July after being so sick from that chemo,my son has been telling me to walk on the treadmill it's been holding t-shirts at night so when i have a hot flash i just reach get another LOL. @Linda don't you have surgery coming up? MollyZ

    Yep. Surgery is on Friday.
    Yep. Surgery is on Friday. Thanks for remembering.

    Hugs,

    Linda
  • Gabe N Abby Mom
    Gabe N Abby Mom Member Posts: 2,413
    #18
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    monica811 said:

    Legs Hurt after treatment or after shot?
    Hello. I just had my first of the four treatments of taxol yesterday. So far I feel OK this morning. Not sick and all. I go back this afternoon for that $6000 shot for my white count. I think that shot is as bad as the chemo. Are you taking the shot? My onc. nurse says it will make everything but you butt whole hurt! Ha. It really has been just making me a little weak. I have been working out all through this up until I found out last week at labs that my red count was down to 8.8. It was up alittle yesterday to 9.1 so we did the tazol treatment. I plan to spend some time on the treadmill today, I hope, before that nasty shot.

    Has your eyelashes and eyebrows fell out yet? I am not ready for that! I am just wondering when that happens?

    Good Luck, Mollyz. It looks like we might be finishing this out together. Did you have surgery of any kind?

    Have a blessed Day!

    Ask about claritin for the
    Ask about claritin for the Neulasta, have them check with the pharmacist. I believe it is what the manufacturer recommends for the pain.

    I know it is recommended for the Neupogin, and it really helped me.

    Hope this helps,

    Linda
  • monica811
    monica811 Member Posts: 10
    #19
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    dbhadra said:

    legs were better yesterday
    @Monica: are you are taking TAC or just taxol? do you have it every week or every three weeks?

    Since mine is weekly taxol I don;t have to take Neulesta (spelling - that $6000 shot that makes everything hurt!) right now. I'm going for bloodwork today and would see how my counts are. I think/hope they should be fine as it;s only my 2nd weekly treatment. If not they would give me another medicine, not Neulesta but some other name I forget right now.

    Once I start the FEC after 12 weeks of the taxol weekly(so around March) I would probably have to do the Neulesta, which sounds like not fun.

    Hair hasn;t fallen out yet; they said about 3 weeks after starting so we'll see. My wig and turban are ready to go! Did you get your wig yet? I just sent the bill to my insurance company yesterday, $400, hope they will pay it!!! My policy says it is covered as long as I have the doctor's prescription, which I also sent a copy of.

    Last night my legs were hurting again, so took 1 ES tylenol and 1 adivan and slept really well. Past two nights (Tues and Weds) my sleep was really disturbed because of the legs hurting and general feeling that I could not get comfortable. Adivan is good! Anti-nausea AND makes me drowsy! :)

    Wishing everyone a good day!
    Laura

    Taking Tazol
    Hello Laura,

    I took the red devil stuff the first four treatments and now I think that I am taking Taxol. I have a treatment every other week with a shot the next day. I can already feel my neck and back starting to hurt from todays shot. I only have three more treatments so i am hanging in there. My hair started falling out around day 15. I could not stand it anymore so I had my head shaved on day 19. Good Luck with all of that. It is kind of hard to get used to.

    Hugs, Monica
  • monica811
    monica811 Member Posts: 10
    #20
    Options
    VickiSam said:

    M.onica .. $6000 shot is alled Neulasta -- pretty sure
    please ask your Oncologist about the listed side efforts of this very expensive shot, and see if he/she suggest. I guess what I meant to state is that many of us WARRIORS who were given this same shot during our chemo therapy treatment - experienced flu like symptoms for several days after this shot.

    Be safe .. and let us know how you are doing.

    Strength and Courage,

    Vicki Sam

    Flu like symptoms are right
    Flu like is exactly right. I already feel the shot that i had today. My onc. nurse says to take Aleve. Atleast with the Taxol, I am hoping that I do not suffer from the nausea as bad as the first four treatments.

    Thanks for your responses.
  • Angie2U
    Angie2U Member Posts: 2,991
    #21
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    mollyz said:

    thanks Ladies
    I was really beginning to worry about nothing I use to exercise but i really stopped in July after being so sick from that chemo,my son has been telling me to walk on the treadmill it's been holding t-shirts at night so when i have a hot flash i just reach get another LOL. @Linda don't you have surgery coming up? MollyZ

    Exercising might help. What
    Exercising might help. What does your doctor say to do? I eat bananas and since they are high in potassium, that has helped me. A potassium supplement might help too, but, check with your oncologist first. Hoping you feel better.


    Hugs, Angie

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