Jan 10, 2011 - 4:23 pm
Is there anybody who has had more than 3 lung surgeries for metastatic synovial sarcoma? I have just received word that my cancer has returned in my right lung with one of the spots being 1.3 cm in the pleural cavity and another spot being 6 mm just adjacent to that area. I am very concerned about having another surgery and was wondering what options I have.
I was first diagnosed with synovial sarcoma in May of 2004. It was originally in my left hamstring and surrounding tissue. I also had a benign bone tumor in the femur in the same area, and so a surgery was scheduled to remove much of the femur and have it replaced with a cadaver bone and steel rod. All of the hamstring was removed with clear margins. Three years later, my first spot was detected by a routine CT scan. I have since had two more surgeries to remove one or two spots at a time, and now I am faced with a fourth.
I have been absent from any sarcoma related website for the past several years, but after reading so many of the survivor entries and caregiver questions, I felt compelled to get back on. We're in this together, and what I need from you may be what someone else needs from me. Hang in there.