Jan 10, 2011 - 12:21 am
Friday started out bad. He was still throwing up, still in a lot of pain, so I called hospice and they had the doctor stop by. The doc changed his meds around (stronger pain and anti-nausea), and the home health aide came Friday. He started cleaning with out me asking - I'm in love :)
Saturday ended up ok. His friends came to visit after all. He started to nod out a lot and was sleep "sitting" like sleep walking sitting down. So I called the nurse on call to check because this is a new thing. Because of his meds, he will nod out, so i just gotta keep an eye on him.
Today, Sunday, started unbelievable. I wake up and he's down stairs. Said he slept in the recliner all night, felt great, give him money he'll go to the store. We live on top of a steep hill, so I'm like sure ok, let me get dressed. So we went together to the deli and came back up. After that he's been out for much of the day. I'm starting to see that he's better in the mornings. Maybe tomorrow we can tackle a shower ha ha :)
Skipper - Pat is better at home. He's still able to get around, but when the time comes I'll ask for the help I can get. I'm his everything and his only family. I can't say I'll be able to do everything, but i would rather take care of him than have someone else do it. Since he had his voice removed and his voice wasn't strong for months before, he hasn't literally yelled at me for over a year. He can still yell at me with an EL its all in the facial expression. We're having good time for the most part - that's what I wanted for him in the first place.
I used to be a HHA for a quadrapalegic so some stuff I know how to do. I'm so protective it's not funny. He gets lots of kisses from me and always a good night kiss when I go to bed.
People he's lost track of are coming out of the woodwork. He knows so many people that he's lost touch of I might have to put up a billboard in Times Square! I don't mind making the phone calls, Barbara, depending on where the person lives almost as good as a visit. Hate being translator sometimes, hard on the person on the other end.
I'm taking things day by day. And finding the bright spots in each one.