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Aggressive Digital Papillary Adenocarcinoma with lung metastases

Margo12
Posts: 29
Joined: Jun 2010

I have posted elsewhere on this cancer (a type of sweat gland cancer). This is my diagnosis and I am seeking others who may have experience with this entity. I am always looking for the experience of others: treatments, cancer centers that may have particular expertise etc. etc. If you or someone you know/ care about has or had this condition, I would appreciate hearing from you. Happy and Healthy New Year to one and all!

Beckymarie
Posts: 358
Joined: Aug 2009

Margo...an update on my friend, he was encouraged to have radiation on the finger and area where the tumor/cyst was originally found. He has declined to do this as did not seem to be any real benefit to doing this. He will be followed up by his oncologist and take a wait and see approach. Hope you are doing okay and wish you a peaceful and hopeful New Year.

Margo12
Posts: 29
Joined: Jun 2010

Thanks for your reply - hope all will go well for your friend. Happy New Year!

Beckymarie
Posts: 358
Joined: Aug 2009

Margo,

Checking in to see how you are doing?
Becky

JuliaM82
Posts: 2
Joined: Feb 2012

Hi Margo,
My friend has this exact same diagnosis, with lung metastases and all. He got it last week, in Seattle. He goes in for biopsy/amputation of the finger on feb 15th. How are you doing?

Cover1
Posts: 3
Joined: May 2016

My husband (age 50) was diagnosed with digital papillary Adenocarcinoma with Metastases to the lungs.  His oncologist started him on chemo right away!  Radiation was out othe question...studies have shown radiation causes this cancer to grow.  After 8 months the tumors are stable with no growth or spreading.  I would like to hear how others are doing.

thank you!

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