Dec 26, 2010 - 10:03 pm
Hey everyone, haven't posted in a while.
A brief history:
Diagnosed 10/09 with EC - stage 3. Had chemo & radiation and did not opt for surgery at the time. The cancer came back and had Ivor Lewis in June of 2010. I had follow up chemo which my last dose was 6 weeks ago (6 doses every 3 weeks, started 6 weeks after surgery).
Barium swallows and CAT scans look clean now (Yeah!). My oncologist and GI doc do not consider me cancer patient anymore.
I am still a stricture patient though.
I am on my 3rd stent due to scare tissue from the surgery and we are trying to figure out a long term solution (I am only 35 after all!).
The issue that I am facing is a complete lack of energy. It is not quite as bad as my worst days of radiation but not far off. It is different from when I was anemic as well (I have good color, not dizzy, etc). I am taking in enough calories to maintain my weight although I am under weight (I am 5'6" and only weigh 132 right now. I should be 145-50).
I have been taking vicodin at prescribed levels (3-4 a day) since my surgery in June for stents, abdominal pain, etc. About 2 weeks ago my wife and I decided that it was time to move off of the vicodin since I have no more pain and talked with my primary care physician. They suggested I start stepping down my dose and I did to the point that I am on 1 a day now and should be to zero soon.
My issue is that my decline in energy seems to be directly related to taking less vicodin. It seemed to give me energy. Also, I am very snappy now and I don't have as much of an appetite as I did before.
I don't want to take the vicodin any more but need the energy and could use the appetite.
Has anyone else run into this or something similar?
I don't know if I should talk with my primary, cancer, GI, or surgeon and this because I don't know what it is related to.
Any help is greatly appreciated.