Dec 12, 2010 - 12:58 am
Hi folks. 3 days out of the second esophageal dilation and things are good. I am swallowing a little better than before and will know more in a few days once the sores from the procedure heal and I can take this throat out for a real test drive. I'll keep you posted. However, it looks like I'll be keeping that date with Dr Feng, GI Man, for removal of the g-tube next Wednesday. Yay!
There is one thing annoying me (which is a euphemism for the fact that it really scares the **** out of me). Prior to the procedure the really great surgeon Dr G and I were discussing why I'm not getting a 6 month PET/CT followup (had one in June, NED). The healing from these procedures is likely to produce false positives, so wait for them to heal. Then he adds, and I quote, "plus if you have distant mets, well, you're dead." I kid you not.
I don't want to spend any time on Dr G's bedside manner. He's a good guy and knows I like it real, so I can't blame him for giving it to me that way. I get that distant mets is not good prognosticating factor and I feel like the buzzkill guy to even bring it up here, but with whom else can I share this and get some decent. reasonable feedback?
I did some research (like I never did this before, right?) and cannot find papers that fit my case close enough to guess what my prognosis is. I'm obsessing about it, I know, and I'm really annoyed. But hell ARGH!!! WTF???
Anyway, can you guys help me get my head around this? I'll have a PET/CT in a month or so (looking forward to dancing, feathers, pogo sticks, eeeeeeeeeeee and all the rest) making this rant a bit moot, but I'm restless!
Thanks for your time.