Dustmagnet7 and other survivors who have been posting your experiences, your openness and willingness to discuss what you have been through/are going through is very helpful.
My husband was diagnosed with stage IV with mets to the bones on 6/21/10. He is only 54, was in great shape and had no symptoms until it was too late (about 4 weeks before he was finally diagnosed). It is really good to know that there are people who are making progress with their fight.
My husband could barely eat anything and went from 185 to 123 lbs. with little hope. His Oncologist is a fighter who does not believe in the odds (unlike the first Oncologist he saw who said my husband had no hope had only 2 to 4 months without chemo and 6 months with chemo). His new Oncologist did the targeted molecular therapy and thus did 6 rounds of Cisplatin/Taxotere and 5-FU. He was able to start to eat better again (about 1/3 to 1/2 of what he used to be able to eat) and got his weight back up to 140 lbs. His PET Scan and CAT scan improved along with the Endoscopy results and the blood marker levels. He actually started to fell like maybe he was going to beat the odds.
He got an extra two weeks off from chemo so the Oncologist could see what the latest molecular targeted therapy results were and to allow my husband to gain more weight before his next round of chemo (she was changing the chemo because although one marker dropped, the other two were not dropping). In just those two extra weeks off, my husband started not to feel very well and his nausea is back (Zofran not working as well). The Oncologist started his new chemo last Tuesday (I/L/5-FU) and it made him sick as a dog (nausea/diarrhea) and left him no appetite. He is still eating though (because I am such a pain in the neck) and is being able to keep his weight fairly stable, but this change in how he feels has been a blow to his spirits. We are praying that the new chemo gets him feeling better with improved results on the blood markers. It is unbelievable how quickly this cancer acts. I agree, no one should have to go through this.
Some questions I have that hopefully someone can answer:
1) How many of you are doing juicing or any other diet change that you feel is being helpful?
2) Has anyone had those "hiccups" or diaphragm spasms from the chemo? If yes, any idea what can hep to stop them? The Oncologist had no real answer on this issue.
Thanks in advance and best wishes to all of you.