It has been about one year since I finished treatment. I had taxol and carbo and radiation both external and brachytherapy internally.
Last December shortly before my last chemo I had my first "attack" of what I would describe as having a rectal spasm or colon spasm.
The pain starts out tolerable and then escalates to unbearable and lasted about 30 minutes and the pain was a 10. I almost called 911.
Within 2 days of my 3 month check up ( which included a digital rectal exam) this pain came back. I told my gyn onc about it and she didn't seem to know what it was.
Since then I have had another 4 attacks and just recently again told the nurse practitioner about it and have an appointment with colo-rectal surgeon ( she had done my post treatment colonoscopy- ok except for a flat non cancerous polyp which was removed). Has anyone experienced this type of attack?
It doesn't seem to be related to eating or bowel habits.
The pain will come on even when I am sleeping. It is so intense that I can't even stand as I get faint and the only relief I get is by deep breathing and moaning in pain and praying for the 30 minutes to an hour to pass.
I think it is damage to my vagal nerve or something due to radiation.
Thank you for any experience or reading you have done on this topic.