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What are people doing to beat stage 4 colon cancer

bruins1971's picture
bruins1971
Posts: 228
Joined: Nov 2010

Hello my name is Bobby Flaherty and at the young age of 38 I was diagnosed with stage 4 colon cancer. To say I was shocked is the understatement of the year. After years of misdiagnosed symptoms by my doctor I switched to another doctor who quickly sent me to a GI and they found a golf ball sized tumor in my colon. Two weeks later I was in surgery having it removed at which point they found it to be in 11 out of 14 lympth nodes as well two tumors in my liver. The tumors in my liver where big as one was the size of a baseball and the other half of that. I started chemo about 6 weeks after the colon surgery and to be honest it was no where near as bad as I thought it would be. I guess I remembered watching my mom's chemo when she was fighting breast cancer that spread to her lung and then to her pancreas. She was a fighter and fought cancer for 18 years before it finally took her. After 5 rounds of chemo I was headed to surgery to remove the tumors from my liver. By the grace of God the chemo had shrunk the tumors 40% and that was great news. Six weeks after that surgery I was back on chemo and that is where I am today. I just finished round 9 with only 3 more to go and then God willing I will be done and cancer free. I have 4 great kids ages 18,13,4 and 4 months so I need to get better for them and be here to raise them to become great people. Pray and support have done wonders for me and I could not imagine fighting this on my own. God has surrounded me with such great people and I feel in my heart that the cancer is gone and that I will be back to work living my life again hopefully in March of next year. I am hoping to help educate people on colon cancer and how to prevent this terrible disease. If anyone needs support I am here for you. Never give up hope no matter what the doctors tell you for they are do not have the final say only God above does.

With that said does anyone have success stories in beating this terrible disease? What foods are best for beating cancer?

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Congratulations for your success with chemo and surgery !Yes there are successful stories amnog us in beating the disease, l hope to be on the way too!.
Hugs.

Erinb
Posts: 295
Joined: Apr 2010

Welcome to the board! I'm not sure if what my husband is doing is working, but if we find out it is I will keep you informed. My husband is young also and he was diagnosed when our little girl was 8 months. Two years later and he is still fighting, but we were told no more children until he's chemo free for two years. I read that you have a four month old- did your doctors give you the same advice? Just curious- we might like to have another one some day.
My husband has done no sugar, or processed flour and has sat in a MWO chair a couple days a week this last two months (and chemo as well). So we'll see what his scan says...CT on Monday.
Erin

bruins1971's picture
bruins1971
Posts: 228
Joined: Nov 2010

Erin my wife was already pregnant a couple of months when I was diagnosed. We would like to have another but we will wait to see if I can get this cancer under control.

mukamom's picture
mukamom
Posts: 389
Joined: Oct 2010

was dx cciv two years ago at the age of 49. Drs have been very aggressive with treatments and sx. Been mostly on chemo for those two years with a few breaks for sx. Was NED for three months last year. He had cyberknife last week for the one tumor in his liver and will find out in a few weeks if it got killed.

There are quite a few folks here survivors for years. Some have turned to alternatives, juicing, vegan diets and seem to be very successful with these. Cruise thru this board and you will find LOADS of info and much needed support from people who have been there and done that.

Sorry you had to come here. Cancer sucks but the people here make it suck less.

Prayers to you and your family

Angela

Friendinpenn's picture
Friendinpenn
Posts: 64
Joined: Oct 2010

Bobby we share someting very much in common as most of us do here...

I just started on this site last month and it has really been like a friend to me....People who truly understand and care ...

And I've learned so much here as well...

You appear to be strong and have so much to live for like me....

I wrote not long ago that after my severe reaction to oxiplatin the next day i split a whole truck load of firewood and stacked it all a few days later...

Again, Best of luck in your journey to complete recovery!

FriendinPenn

Annabelle41415's picture
Annabelle41415
Posts: 4409
Joined: Feb 2009

Just wanted to welcome you to the board and let you know that you now belong to a wonderful family. We are here to help you anyway we can. There are many success stories on this board and feel you will beat this as well. Glad that you are tolerating the chemo well. Keep us informed.

Kim

immbeloved's picture
immbeloved
Posts: 37
Joined: Oct 2010

i have stage 4 colon cancer with mets to 3 lymph nodes and ovary, surgery removed all the cancer the surgeon could get, then, whammo, pet scan revealed 4 large liver lesions. i am on folfiri and avastin now, finished 1st round yesterday. my goal is to have liver resection but i don't know if that will be possible.

alternatives include essiac tea, baking soda and maple syrup, juicing, colonics, vegan diet and others i'm sure. i'm sticking with the chemo route and just trying to eat a little better although i took care of myself just fine and got it anyway. the way i see it, life ain't worth livin' if i have to eat raw vegetables and get coffee enemas for the rest of my life.

my children are 21 and 18 so at least i basically got them raised, you are not alone on this board having young children, that makes it so much more important to fight.

keep in touch.

amber lyons

bruins1971's picture
bruins1971
Posts: 228
Joined: Nov 2010

I sure hope that the chemo shrinks your tumors down to a size where they can be removed. Chemo did help mine to shrink 40% so I am sure it will help you as well. There is a test that can be done to show if your tumors will except or reject the chemo. I think it's called a Kras test. Have you had this done? My tumors where large with one on each lobe of the liver. Where are yours located on the liver. My surgeon told me it's not about how big they are but how many tumors you have as to determine if you can have successful surgery.

immbeloved's picture
immbeloved
Posts: 37
Joined: Oct 2010

well i'm not sure, the report did not specify, i know enough about the surgery to realize that location is a major factor due to all of the blood supplies to the liver. after 4 rounds ,will rescan and will be able to plan according. i am going to new york in late feb. with my son's school chorus group, may try and get in to Sloan-keetering while there., i have not had the Kras test.

amber

geotina's picture
geotina
Posts: 2071
Joined: Oct 2009

Just wanted to jump in and say Welcome to the Board. Post away with any questions you may have.

I really don't have any advice, just stay the course, listen to your body, listen to your docs, don't put off appointments, scans, etc.

Lots of people on here take lots of supplements. Since you are in active treatment, be sure to not start anything without letting your oncologist know what you are doing and taking and make sure you understand why you are taking something. Some see a naturalpath regarding supplements. If you have any questions regarding supplements, start a new discussion and someone with experience will be on to answer.

Take care - Tina

AnneCan
Posts: 3693
Joined: Oct 2009

Hi Bobby,

Welcome to this forum. It sounds like you have been through a lot + have a great attitude; that will get you far. I had two colorectal tumours, had chemo + rads, was going to have surgery but they found out I had spots on my liver. I am on folfiri + avastin + have not had surgery to remove the tumours. The 2 CRC were not detectable after 4 treatments of chemo; + the ones on the liver have shrunk/stabilized. I try to take it one day at a time.

Are you a Boston Bruins fan?

bruins1971's picture
bruins1971
Posts: 228
Joined: Nov 2010

Yes I am a Bruins fan but just an overall Boston sports fan for that is where I am originally from.

AnneCan
Posts: 3693
Joined: Oct 2009

Toronto Maple Leaf fans at our house; we live just outside of Toronto.

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Hi Bobby,

Welcome to the board- a great place as a resource for ideas, answers to questions, and just overall support!
I was just a bit older than you at my stage 4 diagnosis- I had just turned 41, but I think it was in me for a few years, as I also had symptoms that went undiagnosed. My husband and I have three kids- ages 17, 15 (in 3 more days), and 10. They definitely give you a strong reason to live and want to fight this, don't they?!
You have a great "go get em" attitude, and that's what this takes!

So far as foods for beating cancer, I'd check out two books... "Nature's Cancer-Fighting Foods" by Verne Varona and "Anti Cancer A New Way of Life" by David Servan-Schreiber. I got both of these on amazon.com.

Best wishes,
Lisa

bruins1971's picture
bruins1971
Posts: 228
Joined: Nov 2010

Hey Lisa what is your status now?

maglets's picture
maglets
Posts: 2441
Joined: Jun 2006

Welcome Bobby....another stage 4 colon to liver survivor here...actually 2 bouts of liver mets and 2 resections....

I am caurrently ned after finishing oxy and xeloda in the spring of 09....

welcome to the forum....

Like Anne....I am Canadian....WELCOME

msggie

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

word for Canadians you teach me the other day?.
Hugs.

AnneCan
Posts: 3693
Joined: Oct 2009

CANUCKS?

pepebcn's picture
pepebcn
Posts: 6352
Joined: Aug 2010

Here is another Canadian mafia member Bobby !, LOL.
( but they are good people)LOL..

AnneCan
Posts: 3693
Joined: Oct 2009

See how much you are learning from this board?

lisa42's picture
lisa42
Posts: 3663
Joined: Jul 2008

Hi again Bobby,

My status is that I am fighting it/doing chemo at the moment. My dx was 3 yrs, 3 mos ago. I have had a couple of times of 3-4 months of chemo break, but I've been fighting it most of the time. Don't want to discourage you in any way by hearing that, though- not everyone has to do this & of others that have had it come back again, I think most have had longer breaks than I have. I'm still strong though and in pretty good health, overall. The weird thing is that I always used to get lots of colds and flus before fighting cancer & since then, I've had colds just 4 times, which is amazing for me. I happened to have tonsillitis last week, but a z-pack of antibiotics knocked it out pretty quickly. I still function as busy mom of three- I'm not going to let this stupid cancer get in my way totally!

Take care and keep strong!
Lisa

chicoturner's picture
chicoturner
Posts: 285
Joined: Apr 2009

Hi Bobby, welcome on board. You sound like a wonderful father, one those little ones will be so proud of! I think you will some of everything here. Lots of difference kinds of battles, but a lot of tough people! I am old enough to be your Mom and I was dx with stage 4 cc in 3/08. I have done all the chemo avail to me (KRAS mutated) at this time, but know there is new stuff in the works. I have small, and very tiny spots all over both lungs and am not a candidate for any surgery. I am currently working with UCSF in my 2nd clinical trial. I am very healthy....(except the crap that shows up on scans) work as a preschool teacher and just stay very busy! I have 1 grandbaby, today is her 3rd bday and a new baby boy grandson due in Jan! I am truely bless and plan to stay that way!! Keep up the good fight! Jean

Kathleen808's picture
Kathleen808
Posts: 2319
Joined: Jan 2009

Hi Bobby,

You have been working hard and it sounds like your're in a good spot. My husband was diagnosed in January 2009 and after 32 rounds of chemo (Folfox 6 then folfori + Avastin) he is NED (no evidence of disease).

There is a great book called Anticancer and another Beating Cancer with Nutrition that you may want to look into. Also exercise, aspirin and Vitamin D have been shown in studies to reduce the chance of reoccurance. Check out Dr. Heinz Leinz blog by googling "Dr. Lenz C3" He's a leading doctor on colon cancer at USC. He is very research based in his writing.

Best to you.

(PS Hubby is from Boston)

Aloha,
Kathleen

Luv2lunch
Posts: 257
Joined: Aug 2010

Hi Bobby,
We just wanted to welcome you to the board. My Mom has rectal cancer and is living with a colostomy. She is 79. I was really scared at first but when I found this board, it was like a Godsend. There is no question that you will not get some response to here. I feel so blessed to have found this site. I hope it will help you the way it has us.
Best wishes and prayers to you and your family.
Linda and Ellie

JoyceSteele's picture
JoyceSteele
Posts: 146
Joined: Nov 2010

Hi Bobby:

You have come to the right place. I just joined the forum less than a month ago and already have been comforted, inspired and encouraged. I have Stage IV, inoperable with mets to liver. Have had 6 mos of Folfox w/Avastin and then 6 months off with Avastin only. Felt wonderful and the break was fantastic. My CEA level has just started climbing slowly so may be back on chemo soon; this wonderful family got me through a lousy afternoon earlier this week. :) My Oncologist is very optomistic and says I'm going to be here for a long time with all the options. So glad you have such a positive attitude.

Take care, I will keep you in my prayers. Joyce

PhillieG's picture
PhillieG
Posts: 4683
Joined: May 2005

is probably not the best food for beating cancer but it's an attention getter. I see that you are a sports fan judging by your name and the references to golf balls and baseballs. Thankfully you left out basketball. Maybe you can beat the cancer with a slam dunk?

I have not beaten it (yet) and it surely have not beaten me. I've been stage IV colon cancer since 2004 when I was 46. No symptoms, no family history, caught it with routine physical. I'm currently in treatment and never got to the "all clear" or "NED" status but that doesn't mean that one can not live a good, quality life while still living with cancer. It's down to a node here and there in my lungs now after having it in the liver (60-70% removed), gallbladder, a few lymph nodes, small section of colon, and lungs. So while I did my 12 rounds of cancer, it did not clear up everything as hoped. It did get the majority of it though and I've just been on a continual protocol that has been successful and not too troublesome so there is live after cancer and live with cancer.

I think that trying to eat as many fresh veggies (in season if possible - you can't really expect to find a good peach in February can you?) and watching the sugar and processed foods are a good start. I'm really not well versed in nutrition, there are many on here who are. There are also some who take a more holistic approach and I'm sure they will chime in.

I know what you mean about having great kids and the need to be there for them. I think they have been the greatest motivation for me throughout this 6+ year journey. There are a bunch of people who are cancer-free. There is also a long-term survivor forum that may have some helpful stories in there.
-p

tootsie1's picture
tootsie1
Posts: 5016
Joined: Feb 2008

Hey, Bobby.

I want to welcome you to the board. I'm sure that some of our Stage 4's will chime in with lots of things that will be helpful for you.

*hugs*
Gail

christinecarl's picture
christinecarl
Posts: 543
Joined: Sep 2009

I am sorry about your diagnosis. I was diagnosed stage III B almost 2 yrs ago, just weeks after turning 40, I am happy to say I am cancer free today and doing well. So I can not speak to the stage 4 part. But I really like your attitude and I too believe faith has helped lift me up when I felt very alone. You will find a lot of support here. I love the Boston Bruins too :)

clazarre's picture
clazarre
Posts: 2
Joined: Nov 2010

Hi Bobby,
It's great to know other young adults are out there dealing with this disease. Diagnosed July 11, 2007 when I was living in New Zealand--American ex-pat and had been living there since 2005. stage 2 tumor in sigmoid colon. Got it resected. Within two months, found grapefruit sized tumor in ovary. Bloody colon cancer had spread--skipped a stage and went straight to 4. Removed ovaries. Then onto Oxaliplatin, leucovorin and 5fu. Then it became obvious it was recurring again. Left to go back to the states. hard time. NZ docs gave me 3 years to live. I've been here two years and I've got this thing under control. five abdominal surgeries later, another round of chemo--Ironotecan and Avastin, and now just Avastin and I'm healthy and stable. Still there, but I'm living nicely with it.
Exercise, take a baby aspirin every day. Focus on anti-inflammatory stuff like fish oil, baby aspirin, lots of green organic veggies, flaxseed (I sprinkle it in my oatmeal). Organic local dairy products, eggs. Walk, laugh, spend time with friends who make you feel great about yourself. Do things that get you outside of your head like working with others who need you. My second graders make me laugh, sigh and put everything in perspective. I never think about cancer when I'm with them or when I'm walking my sweet lab around the hiking trails. And establish one time a week or every two weeks where you see a professional social worker or counselor who specializes helping young people face life-threatening illnesses. That's my two cents gleaned from three years of living in this brave, crazy, scary world of cancer management limbo.

annad723's picture
annad723
Posts: 45
Joined: Nov 2010

Hi Bobby,

So happy to read your post. My name is Anna and I too am a Stage IV colon cancer patient. I was diagnosed in Dec. 08 so it's just about 2 years. Have been on various different chemos the whole time. Am involved in a clinical trial now. The nice thing about the trial is that it's oral medication. So glad not to be in a chemo room every week for 4-5 hours.

Have had success so I focus on that. I feel amazingly well and can't believe I'm a stage IV cancer patient. I agree to never give up because only God does have the final say. I know I cannot be cured but I hope to be managed and be here for my husband and 2 sons.

I get another scan on Wed. Am very scared about it as unfortuantely my CEA count has been on the rise. When diagnosed it was 2800 and had been down to 2 for the last few months. Last blood work showed it had risen to 10. So we'll see. I am not a candidate for surgery has I havel multiple mets on both lobes of liver. The colon cleared up immediately.

I don't really have any advice as to diet. I was very careful about what I ate prior to cancer. Whole grains, fruit, etc. etc. Gym five days a week and then boom Stage IV cancer. So forgive me if I don't buy into the food, exercise connection. I can tell you that since I got cancer I kind of eat whatever I want and have gained 30lbs. Oh well.

Stay strong Bobby. I'm always encouraged when I read about other people doing well. We have to support each other because only we understand what's going on.

I also hesitate to tell you I'm a die hard NY Yankee fan. Will you still be my friend??

Lots of love and hope-----------Anna

sfmarie's picture
sfmarie
Posts: 605
Joined: Aug 2009

Thank you for posting and sharing your story. More people need to hear about survivors like yourself. You have a great story, great attitude and it just brought tears to my eyes.
Giants fan!
Marie

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

Hi Bobby and welcome. I don't post often anymore but wanted to correct one thing you said. You said: "There is a test that can be done to show if your tumors will except or reject the chemo. I think it's called a Kras test."

KRAS has both wild and mutant 'types'. The test is done to see if you are KRAS positive because a couple of chemo drugs do not work on KRAS mutant tumors. Only a couple of drugs, not all chemo. 45% of all colon cancer patients are KRAS mutant. Mine was and so was Lisa's.

I was Stage III and had surgery/ chemo. I've been cancer free for just under 2 years now. I do the following:
A Aspirin (325 mg daily)
B Better diet with NO red meat
C Calcium
D Vit. D 3 (6,000 IU's daily)
E Exercise
F Fruit Pectin (Modified Citrus Pectin has been shown to prevent recurrence and shrink liver tumors in mice. Do a websearch. I bought mine off Amazon and took it for about 6 months after chemo ended.)
Prayer and Faith. Friends who pray for me. Laughter. Healthy lifestyle. Keeping busy.

Good luck and may God bless!
Diane

Nana b's picture
Nana b
Posts: 3041
Joined: May 2009

Dx. November 2008, stage IV, mestasis to the liver. Last chemo august 2009, been NED since. I do watch what I eat and I take many supplements. I think diet is very important!!

And attitude is everything!

ForBenandSophia
Posts: 10
Joined: Nov 2010

Hey all of you fellow supporters,

My name is Erin and I just joined yesterday. My husband Steve age 47 was diagnosed with Stage IV colon (one tumor in cecum) that has spread to the peritoneal cavity. He has done 8 rounds of chemo responding extrememly well (CEA at 3.5). We are scheduled for the HIPEC surgery with Dr. ALexander at Univ of MD Cancer Center in 3 wks. traveling from Florida. Has anyone had this procedure or similar characteristics in that you have /had one tumor in Colon but are at Stage IV b/c it has spread but contained to abdominal/peritoneal area. Like may of you children ages 10 and 8. We are fighting hard but need a little more help! Thank you for any feedback!

Scared to death,
Erin

AnneCan
Posts: 3693
Joined: Oct 2009

You have come to the right place for help + hope. I haven't had this procedure but I know a few members have; I hope they will come on to help you.

ForBenandSophia
Posts: 10
Joined: Nov 2010

Hi Anne,

I am still new at exploring this website. Anyway you could forward me to someone who had this procedure. I saw one person give the name Crow71 for the procedure, but how do you contact them? Thamk you for responding. You look great in your picture and hope you are still doing well! I need to post our family photo. You would never believe my husband has been so sick.

Sincerely,
Erin G.

AnneCan
Posts: 3693
Joined: Oct 2009

You can either start a new thread or send him a private message. To send a PM, go to "new message" and start.

sfmarie's picture
sfmarie
Posts: 605
Joined: Aug 2009

Also search for jenhopesandprays, she also had this done and I believe is now NED> She had HIPEC with Sugarbaker.
Hugs,
Marie

ajhein81
Posts: 1
Joined: Apr 2013

Hi Erin,

 

My father has done 2 sessions of chemo (2nd was today) and is considering the HIPEC surgery. He has a very similiar type of cancer that your husband has. So we are wondering how the HIPEC surgery went? Please let us know when you get a chance.

Thanks Erin,

 

Andy

Eltina21's picture
Eltina21
Posts: 174
Joined: May 2010

With GOD all is possible. Your faith and positive attitude will see you through. Have a wonderful Thanksgiving.

Peace and Blessings,
Karen

bruins1971's picture
bruins1971
Posts: 228
Joined: Nov 2010

Amen, Amen I say to you for with God all things are possible. I know not everyone believes in God and to each his own and I totally respect everyone's decision to choose what they believe. I however choose to believe that the Lord above who died upon a cross for my sins will heal me of this disease. I am so thankful for all that has happened to me since I was diagnosed. I have found the Lord ten fold and so far my treatments have been much easier than I expected. I am looking forward to knocking out these last 3 treatments and then we will see where I stand when I get my petscan sometime after my last chemo...

Hooley's picture
Hooley
Posts: 156
Joined: Aug 2012

God continue to bless you.  Way I look at it, we are in a win/win situation! Xxxoo 

Godcanheal
Posts: 1
Joined: Dec 2010

I think that your post has been the most hopeful thing that I have read in the last three weeks. My fiance was diagnosed with stage 3c colon cancer about three weeks ago and I have just been praying and having faith but to really hear someone who beat it has been very uplifting.
Thanks

herdizziness's picture
herdizziness
Posts: 3492
Joined: Apr 2010

It's best if you don't pull old posts up, and comment on them until you are around long enough to find out if that person is deceased as is the case with Bobby. 

It's much better to post a new subject then to comment on old threads.

Wishing you luck on your exam.

Sonia32's picture
Sonia32
Posts: 1069
Joined: Mar 2009

My heart just felt sad when i saw this thread resurface

PatchAdams
Posts: 272
Joined: Nov 2011

Wish CSN had a way to warn people when they pulled up old posts that this 'post is old and many of the op's may no longer be with us'.  Actually, I wish they could put a red banner across the blue box of each member we know is deceased.  Hurts so much to see Bobby's post after his pain filled death. 

 

Trubrit's picture
Trubrit
Posts: 1709
Joined: Jan 2013

Who would we contact? 

It breaks me heart to see pictures of these good people who have passed. Some of them so very young. 

I do not blame this on the new poster. I myself just went ahead and posted to an old thread this very morning.

I still think that post can be accessed, just blocked from posting. For some people, its heartwarming to see those old faces, for others its a heartbreaker. 

 

Nana b's picture
Nana b
Posts: 3041
Joined: May 2009

I like the Blue banner idea!  

John23
Posts: 1832
Joined: Jan 2007

 

Can anyone imagine what would happen if a “blue banner” (or any identifier) of death would do, if it was mistakenly placed on someone that remains quite alive?

 

These older threads can be “locked” automatically after a preset time period has elapsed, preventing anyone from posting to them. They would be available to be read, but not posted to. It’s a simple fix that every forum software that I know of, has built into it. I have suggested this “fix” many times, without the CSN IT team doing a thing about it.

 

It’s not “heartbreak” of seeing the old posts from the departed, but the sadness that a newcomer must feel, that the one they have a question to, or support for, is in vain.

 

Go here and protest; tell them to “lock down” old threads: http://csn.cancer.org/contact

 

Best wishes,

 

John

 

mikemcd's picture
mikemcd
Posts: 4
Joined: Apr 2013

 

WHAT TO EAT?  I think I know your answer.  I have a rectal cancer tumor that I can feel with my finger. Sounds strange, but I have been studying it in great detail. I want to live.  Anyway, I can feel my tumor, completely.  When my tumor gets angry (active) it puts off ACID (tested with litmus paper) which feels like it wants to burn into my gluteus maximus.  Also my tumor "outgasses" (what I have researched to be hydrogen sulfide gas) when it is in this active phase.  It merrily bubbles the undifferentiated goblet cell mucus in my colon. (feels like tingling) Cancer wildly eats Sugar.  PET scans use radioactive sugars to find tumors in the body. Tumors can not eat "Ketone Bodies" The thing to do is go on a Ketogenic Diet. This is how they actually treated cancer before fluorouracil was invented in 1957.  Eat NO SUGAR. EAT NO CARBOHYDRATES. Take a sugar lowering drug, like metformin, or insulin. When I do this, my tumor "Goes To Sleep". stops outgassing, stops burning, takes about 2 hours. When I have that candy bar, it reawakens! Burns and bubbles like mad. This happens in about 20 minutes. Every time.  If you want to starve the thing, lower your blood sugar below 80. That's my advice.  Good Luck.  Mike

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