AS CLOSE TO NED AS POSSIBLE!

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luv2cut1
luv2cut1 Member Posts: 288
edited March 2014 in Head and Neck Cancer #1
Hi all,

I want to thank each and every one of you for your well wishes and prayers this week. Pat had his scan on Wednesday and got results today. He has CLL also, so he will never get a complete NED, but it appears that there is NED for the head and neck cancer! We feel so lucky and so blessed and I thank you tremendously for this board. Good luck to Kim & Mark, while waiting for results, Pam M and pattyanny on the 15th, mixleader tomorrow and Hawk711 in December. Good luck also to all of those who have scans that I do not know the date of. I think of all of you always whether you have a scan or not. And Hondo, please know I will be thinking of you at Mayo on the 18th. I hope so very much that it is not cancer and that they can get to the bottom of the pain. I am hopeful that since they did not find cancer at MD Anderson, that it truly is not cancer, and whatever is causing the pain can be treated.

Kim - I have no idea how you are dealing with the waiting! Pat would do the same thing as Mark, but luckily our doctors' appt was made sooner. I was a complete and total wreck yesterday - it did not help that I had downtime as I created all kinds of horrible scenarios in my head. Good luck with the waiting, know I am thinking of you and can't wait to hear the good results of NED!!!!!

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  • Jimbo55
    Jimbo55 Member Posts: 590 Member
    #2
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    Great Results
    So good to hear of another NED. Congrats, you must be stoked!! One question, what is CLL? Cheers

    Jimbo
  • luv2cut1
    luv2cut1 Member Posts: 288
    #3
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    Jimbo55 said:

    Great Results
    So good to hear of another NED. Congrats, you must be stoked!! One question, what is CLL? Cheers

    Jimbo

    CLL
    CLL is chronic lymphocytic leukemia. Pat has had it since 2000 - no treatment yet. It is not curable, except maybe with bone marrow transplant, but it is pretty treatable. It can cause enlarged lymph nodes with some activity on PET, so Pat will probably never get a completely clean scan.

    Thanks for your interest.

    Myka
  • rozaroo
    rozaroo Member Posts: 665
    #4
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    luv2cut1 said:

    CLL
    CLL is chronic lymphocytic leukemia. Pat has had it since 2000 - no treatment yet. It is not curable, except maybe with bone marrow transplant, but it is pretty treatable. It can cause enlarged lymph nodes with some activity on PET, so Pat will probably never get a completely clean scan.

    Thanks for your interest.

    Myka

    Myka
    I am happy to hear that Pat's scan has come back NED! I wish you all my best & will keep you all in my prayer's.
    God Bless
    Roz
  • Glenna M
    Glenna M Member Posts: 1,576
    #5
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    Wonderful news!!!
    So happy to hear the wonderful news!!! Now you both have something else to be truly thankful for this Thanksgiving.

    Relax and enjoy life now and celebrate the NED.

    Stay strong,
    Glenna
  • Irishgypsie
    Irishgypsie Member Posts: 333
    #6
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    Glenna M said:

    Wonderful news!!!
    So happy to hear the wonderful news!!! Now you both have something else to be truly thankful for this Thanksgiving.

    Relax and enjoy life now and celebrate the NED.

    Stay strong,
    Glenna

    :)
    Great NEWS!!! BIG HUGS ALL AROUND!!

    Charles
  • sweetblood22
    sweetblood22 Member Posts: 3,228
    #7
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    Irishgypsie said:

    :)
    Great NEWS!!! BIG HUGS ALL AROUND!!

    Charles

    Good news.
    I am always so happy to read posts like this! So thrilled for you both. :)
  • adventurebob
    adventurebob Member Posts: 691
    #8
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    Yes!
    That is great news. Thank you so much for sharing. I love reading news like that.

    Bob
  • Hondo
    Hondo Member Posts: 6,636 Member
    #9
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    Hi luv2cut1
    Glad to hear the good news, oh how I love the NED thing.

    Thanks also for the kind words, I will be OK not matter what they find. As I go I go with my friend and savior who has guided me all these years
  • Scambuster
    Scambuster Member Posts: 973
    #10
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    Good News ..
    ...for Pat. Very happy for you.

    Scam
  • rozaroo
    rozaroo Member Posts: 665
    #11
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    Scambuster said:

    Good News ..
    ...for Pat. Very happy for you.

    Scam

    Congratulation's!
    I am so happy for you & your family. All my best!
    Roz
  • Kimba1505
    Kimba1505 Member Posts: 557
    #12
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    rozaroo said:

    Congratulation's!
    I am so happy for you & your family. All my best!
    Roz

    Check it off!!
    Myka, I am one of those who likes to check things off the "things to do" list. You and Pat can check off: "Close to NED/First PET! I am very happy for the both of you as you celebrate that milestone and see the list get shorter, and perhaps add new things...positive things. Enjoy.

    As for our waiting...knowing that Mark does not want to pursue the results until his appointment is so very typical of him, that waiting does not create anxiety in me. He does not look or act like a man with cancer; but he did not at the time of diagnosis either. I will take the two weeks of "denial" if that is what it is. But I do feel most certain, that on THAT day, the Wednesday before Thanksgiving, when we have the appointment, my anxiety will sky-rocket. Until then, I will just live every day in the moment.
    My Best to All here,
    Kim
  • luv2cut1
    luv2cut1 Member Posts: 288
    #13
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    Kimba1505 said:

    Check it off!!
    Myka, I am one of those who likes to check things off the "things to do" list. You and Pat can check off: "Close to NED/First PET! I am very happy for the both of you as you celebrate that milestone and see the list get shorter, and perhaps add new things...positive things. Enjoy.

    As for our waiting...knowing that Mark does not want to pursue the results until his appointment is so very typical of him, that waiting does not create anxiety in me. He does not look or act like a man with cancer; but he did not at the time of diagnosis either. I will take the two weeks of "denial" if that is what it is. But I do feel most certain, that on THAT day, the Wednesday before Thanksgiving, when we have the appointment, my anxiety will sky-rocket. Until then, I will just live every day in the moment.
    My Best to All here,
    Kim

    Thanks, Kim. Pat and Mark
    Thanks, Kim. Pat and Mark sound a lot alike. Like Mark, Pat would have no problem waiting. Like Mark, Pat does not look or act like a man with cancer. I am SOO glad you are not anxious. It know it really doesn't do any good, I just can't help it sometimes. I really thought I was doing better this time, until he actually had the scan.

    It is actually not Pat's first PET - it is his 4th. He is 14 months out from treatment, 17 months out from recurrence. I was much more anxious this time because it had been 7 months since his last checkup.

    I look forward to getting your NED post! It will be a wonderful Thanksgiving for all of us.

    Myka

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