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For Kimba and all who have scans coming up

luv2cut1's picture
luv2cut1
Posts: 287
Joined: Oct 2010

Kim,

Just to let you know thoughts and prayers are with you and Mark on Mark's scan this week, and to everyone who has scans coming up. Pat's scan is Wednesday and I know how stressed out I am. Here is to NED!

Myka

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Myka,

PLEASE don't tell me he has a scan (which type?) Wednesday and has to wait until after the weekend for results. When will you get the results? Hoping for a good report for Mark and Pat and me (CT and PET on the 15th - results on the 19th) and anyone else with scans coming up. Let us know.

luv2cut1's picture
luv2cut1
Posts: 287
Joined: Oct 2010

Pat has PET/CT on 10th - results on the 12th. Luckily, we don't have to wait until after the weekend. Kim, when does Mark get results? Pam, we are DEFINITELY keeping you in our thoughts and prayers on 15th and 19th and look forward to hearing the NED results on the 19th! How long out of treatment are you? Is this your first scan?

Keep us posted.

Myka

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Myka,
I'll be eight months out when I get the next round of scans. Pre-treatment, CT and PET showed primary tumor at base of tongue and two enlarged nodes (one enlarged,one really big). Three months out, tests showed no tumor/no activity for the former primary site and formerly huge lymph node. Formerly enlarged lymph node was showing up as still enlarged, but reduced in size - PET activity at the node was greatly reduced - doc said he thought there was every chance that the cancer there just hadn't finished dying yet, but would - activity level at the node could be considered to be within the normal range, but elevated, so we're doing a wait and see on it.

Glad you all don't have to wait too long for results, Myka.

Wondering - do any of you have to follow any pre-scan dietary restrictions? I mean, other than the no food or drink for a few hours. I do not, but have seen folks post that they do.

Do Well.

Jimbo55's picture
Jimbo55
Posts: 572
Joined: Jun 2010

Good vibes to Pam, Pat & Mark on your upcoming scans, we need to hear about 3 more NED's!!

I don't understand why there is such a delay in getting the results of the scan. They have to know their patients are so anxiously awaiting the news. I had my latest CT scan last week and had the results in 1 hour. It has been that way for each scan that I have had. Cheers

Jimbo

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

I know, Jimbo - the last time I had scans done, the tech let me know the deal "OK, they'll have the reports within 24 hours". At the time, I thought "OK - next time I'll get the results appointment two days after the scans". Completely forgot all about that until tonight. Results in an hour would be a dream. Do well.

luv4lacrosse's picture
luv4lacrosse
Posts: 1409
Joined: Jul 2010

You and your family are in my prayers. here's to yet another successfull NED. Be strong, the waiting must be very frustrating.

Mike

Pumakitty's picture
Pumakitty
Posts: 653
Joined: Mar 2010

My prayers and thoughts are with all of you.

Katt

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

Thank you for remembering and Thank you for the well wishes. I am sure you and I are feeling the same things as this week approaches. Like I said in earlier posts, I am mostly unaware of the the degree of anxiety I contain on a day to day basis, until I read something here (usually good NED reports) and then all this emotion comes spilling out. Today, I am extremely touched and feel less alone by your post. Only people here really know what these days are like.
My best to you and Pat on Wednesday.
Mark's scan is on Tuesday and I have no idea what to expect in terms of hearing results. Marine has been treated at the same place, so I will tap into his data base for an answer. Mark does not meet with his ENT surgeon until 2 weeks after the scan. I imagine someone will let us know something before that.
Taking a deep breath,
Kim

Kent Cass's picture
Kent Cass
Posts: 1747
Joined: Nov 2009

All will be well, Kim- too soon after treatment for anything to show. That's the typical way it is, and I hope and Pray you and Mark will find this is true.

As for the wait on the results- my experience is that the wait is further proof of how unknowing some in the C-med community can be in regards to what we actually live with. I usually have to wait at least 4-days before I get a call from a Nurse to set an appointment for the ENT to give me the results. I have never forced the issue, but the wait they have me go thru does tell me a lot about how well they can relate to what it is like to have H&N C. And I've only had good results- so, "Hey, Doc, don't you think I'd kinda like to know everything is okay as soon as possible, instead of living with the significant possibility that my C is back for so many days?" Yeah.

kcass

luv2cut1's picture
luv2cut1
Posts: 287
Joined: Oct 2010

Hi Kim,

Please know I am thinking of you and Mark for tomorrow. I certainly hope you don't have to wait two weeks for the results! Can't wait to hear NED!

Myka

rozaroo
Posts: 667
Joined: Apr 2010

My thought's & prayer's are with you both!
God Bless
Roz

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

I am trying to keep anxiety at bay...but had dreams last night of all kinds of lighted things floating around in Mark's body. So what I try to keep out of my mind during the day seems to find its way in during the night. Spent some time awake with my heart pounding.
I don't know when we will know what's what. Techs aren't supposed to comment during scans. Mark's appt. with his ENT is not for 2 weeks. We will enjoy each day as we always had...right?
Thanks again for you well wishes for today. Mark's biggest complaint: not being able to eat until noon.
Kim :)

JUDYV5's picture
JUDYV5
Posts: 392
Joined: Jun 2010

Waiting is always the worst. You will be in my prayers.

MarineE5
Posts: 762
Joined: Dec 2005

Hi Kim and Mark,

I hope Mark treats himslf to a nice big Milkshake next door at Micky D's, I do.

I also hope everything goes well for both of you today and his Scan will be NED.

My Best to Both of You and Everyone Here

dennis318's picture
dennis318
Posts: 349
Joined: Feb 2010

Mark and Kimba, Good Luck Today, and everyone else, I wanna see some positive reports tonight, Had to ask Kim, how Much weight has Mark Gained back, after his chemo and rads, i can't put any weight on, we could pass as cousins, and that looks like one of my sweaters. ...lol..God Bless Everyone today, I'm going to struggle to work a few hours before fatigue sets in, (4) hours..Dennis....

Kimba1505's picture
Kimba1505
Posts: 557
Joined: Apr 2010

You and Mark COULD pass for cousins...and in your present picture you remind me of my cousin's husband.
Mark hit 179-180, and now has dropped back to mid 170's. It is amazing how hard it is for him to put the weight on and keep in on. I would say he has put on about 10 pounds since the end of treatment. He is eating a good full diet, and throws in an Ensure now and then. But stays around the same weight.
Marine, I just spoke to Mark, no immediate feedback from the scan, but he was on the street outside of Penn headed for food somewhere. :)
He plans to just wait until he sees the ENT in two weeks for results. If it is bad news, might as well stay in denial for a while. If it is good news, it will still be good news in two weeks.
Love to you all!!!
Kim

PattyNC's picture
PattyNC
Posts: 65
Joined: Oct 2006

I'll be praying hard for great news for you.

Be strong & god bless
Patty

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Mark's a better man than I am when it comes to waiting for scan results - I'll be whining every day for the four days I'll have to wait next week. Guess this just means you'll have to give me your good news after I give you mine. Do well.

mixleader
Posts: 267
Joined: Oct 2010

This Saturday, the 13th is my PET/CT scan. This is the first scan since the surgery/rads and I am plenty nervous. Then, of course, the waiting for the rest of the weekend will be nerve wracking until I get the results next week. Here's wishing and praying that all of us come up with clean scans. Go, NED!

pattyanny's picture
pattyanny
Posts: 532
Joined: Jul 2009

Wishing and praying for all who have scans this month! I am praying fervently! God bless!
Patty

Pam M's picture
Pam M
Posts: 2194
Joined: Nov 2009

Gimme and N! . . . . you've got it down. Do well Saturday. Do you know when next week you'll get the results?

hawk711's picture
hawk711
Posts: 531
Joined: Jan 2010

All the best for good results. I have a PET in december. My doctor says the "hot" area will continue to shrink as the body heals itself from all the radiation and cancer. I too am hopeful for you and all of us for more "NED" results. I just found out what NED meant a couple minutes ago....too funny.
Think good thoughts, they help. a positive attitude is worth more than any drugs for sure.
My thoughts and prayers are will all who have PET's coming up....
Steve

mixleader
Posts: 267
Joined: Oct 2010

Hi, Pam. No, I don't know exactly how long it will take to get the results, but I am pretty sure it will feel like months. I am hoping for Tuesday or Wednesday and I strongly suspect I am going to be on pins and needles until then.

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