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30+ years Brain Tumor Survivor

Toshy's picture
Toshy
Posts: 23
Joined: Jul 2010

Adding my support and encouragement :) and looking to compare notes with others like me

I was diagnosed when I was 7 in 1977. It was inoperable as it was on my brainstem (Astrocytoma on floor of 4th ventricle). I had radiation treatments in late 70's, chemo in early 80's. A couple of years after stopping chemo. I was told the tumor no longer showed up on the CT scan. Later MRIs continued to be clear.

I was told later I had been given 6 months to live and within a month or two it was 6 weeks... Although mine has been a hard life I'd say, it's been a very happy one!

KathiM's picture
KathiM
Posts: 7948
Joined: Aug 2005

...and here I was proud of my 'long' 6 year's journey...

Mine was rectal cancer, 6 months to live I was told, as well...at 6 months, not only was I not dead, but I started treatment for my second primary cancer...breast!

Hugs, Kathi

carkris's picture
carkris
Posts: 4529
Joined: Aug 2009

So glad you are both here!

Carrie King's picture
Carrie King
Posts: 48
Joined: Sep 2010

Your post was just what I need today! !

What awesome encouragement for us all. We were also told "inoperable" and now it is gone after two of those "inoperable" surgeries :)

HollyID's picture
HollyID
Posts: 940
Joined: Dec 2009

Wow!! What a great thing to read, today!

How do you think things have changed since 1977??

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