Oct 21, 2010 - 5:38 pm
My 31 yrs old son was diagnosed with HCC last February 2009. He also have Hepatitis B. He had 4.7 cm tumor and another one but less smaller.He had liver resection on May 2009, but because he have Hepatitis B he is no longer a candidate for liver transplant as what the oncologist said the cancer will keep on coming back. True enough the cancer came back after 5 months of liver resection. He had TACE October 2009, January 2010, February 2010 and May 2010. Last September 2010 his oncologist inform him that there is nothing else they can do as his cancer keeps on coming back and at present he have two 6.8 and 5.7 tumor on his liver and they cant give him more Chemoembolization because his liver will not be able to take it. They said they are sorry because they overloaded his liver with chemo to get rid of his tumor and he cant have a clinical trial anymore because his liver function is not good. And also the cancer spread to his lungs. They refer him to palliative care to make him feel comfortable and painless. We knew that the 4th Chemoembolization was so bad because his skin and eyes turned so yellow, liver was so damaged from the Chemoembolization. At present he have ascites and we have to go to the hospital to drain him, but because the ascites keeps on coming back they put a shunt? or a permanent tube so he or the nurse who comes by can drain him every now and then. His condition right now is yellow skin and eyes, ascites, swollen feet and of course the tumor on his liver and lungs. He is on Neuropathic treatment right now taking at least 18 natural pills and they gave him a mild dosage thru IV of vitamin C. I am not giving up on my son and so with him, he said even his chance is 1% he still will not give up. He is very strong spiritually and full of hope. As a mother I will not give up on him, day and night I have been searching on internet for second opinion...some of them at the beginning I thought are good like some Alternative treatment in Mexico but after I inquire they keep on calling and rushing us and asking for downpayment.Im thinking of John Hopkins and they sent me the form to fill up and the Second Opinion Doctors will review his case according to his latest MRI,Ultrasound and blood works for his liver function. Can anyone please share with me your experience or your case or if you know any hospital? John Hopkins will take at least a month to review, I hope my son can wait that long.