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Clearblue
Posts: 188
Joined: Apr 2010

Hi
In my despearte search for info regarding F.A. treatment i came across Tomotherapy Radiation treatment. Does anyone have any personal knowlege re this?
Clear

hawk711's picture
hawk711
Posts: 528
Joined: Jan 2010

Wish I did, but never heard of it before, anyone else ????

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

yes, I wish I had the availability of Tomotherapy. I have been privileged to watch a friend go thru a treatment and have the tech' explain how it works.

The short version is Tomotherapy is it is very accurate and uses program along with scan to be able to work around some things so it reduces the side effects and long term side effects.

For example when they did mine 14 years ago they radiated the whole neck area and I lost taste and saliva glands. With the new equipment they will pinpoint the cancer and work around the things not connected to the cancer. I have watched several friends have the Tomotherapy Radiation and have taste and some saliva.

Clear, this is a good thing if your needing to have radiation

John

miccmill's picture
miccmill
Posts: 248
Joined: May 2010

Glenn had Tomotherapy as well as Charle (Irishgypsie).

We are lucky to have a Tomo machine here in Rochester NY.

It's the newest, best way to deliver IMRT radiation therapy.

Like John said, this would be a good thing if you are able to get it.

TheDane's picture
TheDane
Posts: 27
Joined: Oct 2010

I am at Cancer Treatment Centers of America and YES, thank god, they have the Tomo-Therapy machine.
It really is THE most up to date and sophisticated - and I service PET scanners and CT's for a living so I know what I'm talking about!

It makes a 3-dimensional map of your neck, head, and shoulders, and the computer adjusts the beam strength according to what is in its path at any given moment. It also can shrink the beam size down as small as a couple millimeters wide. AND a "pre-scan" makes sure everything is in perfect alignment EVERY time you get a treatment.
This is all to minimize the dose given to critical tissue or tissue that really doesn't need much dose at all.
People who get their treatment on a Tomo-Therapy machine will experience less damage to things like salivary glands, the thyroid, teeth and jaw bone, etc.

Bottom line: it's beam is more like a laser-pointer than say, a flashlight.

If you or someone you know is going to have radiation therapy - I strongly urge you to find a facility that uses this bad boy!

I just finished treatment #11 out of 35 today. So far so good.

Cheers!

~Dane

Hondo's picture
Hondo
Posts: 5927
Joined: Apr 2009

Glad to hear the Tomo-Therapy is working well for you, please keep us posted on your progress

Clearblue
Posts: 188
Joined: Apr 2010

Hi, i have just sent your stuff off to our " never have more than 8 minutes" Onco team".
Hondo i hope you get some relief and are able to finally have change regarding your Jaw.

Dane, can i have the names of the Docs, Oncologists treating u with this.

jUST READ THE "10 YEAR SURVIVAL RADIATION AND EFFECTS".How totally backwards that the developement of treatmnet is such that people are subjected to such barbaric forms of treatment.

CLEAR

Clearblue
Posts: 188
Joined: Apr 2010

1there a reason, beyond availablitiy,that people dont have this technology.?
2Howcan i fnd which Hosptls have this equipment and use it
Clear

TheDane's picture
TheDane
Posts: 27
Joined: Oct 2010

Here is the Company's index of installed systems:

http://www.tomotherapy.com/centers/index

~Cheers!

fisrpotpe's picture
fisrpotpe
Posts: 1344
Joined: Aug 2010

TheDane, thanks for this link. Very help full.

John

TheDane's picture
TheDane
Posts: 27
Joined: Oct 2010

The Tomotherapy machine is pretty new, and I'm sure it is very expensive.

I looked at the Company's index of installations - more than I expected. (See my post right above this one.)

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