Oct 17, 2010 - 4:41 pm
My name is Vicki and this is my first post. I'm asking for advice for my husband John, 57, who was diagnosed with Stage IVa tonsil cancer in July. He found a lump on right side of neck in June, was sent to ENT who ordered a CT that confirmed mass in one node. In July had surgery to scope throat area and tonsil was removed. Biopsy showed 0.8 cm squamous cell carcinoma of right tonsil nothing on tongue or in adjacent tissues. End of August had surgery for modified neck dissection and removed 38 nodes; only one showed cancer and was 4 cm. We've talked to 3 radiation oncologists and 1 chemo dr; half are saying we could just monitor due to fact cancer was small and only one node and no tissue invasion. We feel it's too risky to just monitor so have started process for radiation treatments. Got fitted for mask and are waiting for treatments to start. Not sure about chemo; since several are saying we could just monitor we were wondering if radiation treatments would be enough?
We are looking for any advice or tips you could provide as to what we could to prior to the treatments to prepare his body for the effects of radiation and possible chemo (such as taking AHCC or other supplements). Is the Caphosol rinse something that our doctor can prescribe to help with the mouth sores that the radiation causes? It looks like it is still in the clinical trial stage.