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6 Week PSA----YES!!!

ejn's picture
ejn
Posts: 64
Joined: Jun 2010

Just got my first PSA results back post op and it is undetectable. The nurse called me so I did not ask for the exact number but I know what the answer would have been. I'm very happy and relieved. Now I just need to find the hyperlink to download the application for the Zero Club. I hope it will be ok to pay the initiation fees and dues with a post dated check.
Ed
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Age 53
Pre OP PSA: 1/2008=5.9, 2/2010=6.0 (free=9%)
Biopsy, 4/10/2010 This was my 2nd Biopsy. The Uro put me out and took 36 samples. 3 samples positive 1%, 2%, 2% no evidence of perineural invasion. T1c

Dx April 2010
Gleason: 3+3=6
CT Scan: Neg
DaVinci: 8/11/10, Dr David Bryan, SSM DePaul-St Louis
Post Op Path:
Gleason 3+3=6
Tumor involves left lobe only
Tumor constitutes less than 5% of gland volume
No vascular or neural invasion detected
No capsular invasion detected
Distal urethral margin of resection free of tumor
Proximinal urethral margin of resection free of tumor
Radial margin of resection free of tumor
Seminal vesicles uninvolved by carcinoma
TM stage T2a (unilateral less than 1/2 of one side), NX, MX
ALL Margins uninvolved
Extra Prosatic extension: Absent

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Ed, that is great news. I hope the good numbers continue to stack up for you.

lewvino's picture
lewvino
Posts: 1006
Joined: May 2009

Welcome to the 0 club. It feels great doesn't it?

Larry

chitown
Posts: 90
Joined: Mar 2010

Looking at your stats you must have been told the lifetime recurrence is less than 3%. All the best. Rest easy now!

CharlieG's picture
CharlieG
Posts: 67
Joined: Mar 2010

I am about 1 month behind you. Still just 3 weeks out...

I get my blood drawn at the end of this month and see the Dr for a follow up on 11/10.

Hope I can follow in your footsteps!

griff 1
Posts: 114
Joined: Jun 2010

so what did they say about your blood test or is it to early. i hope the big fat zero for ya. griff

CharlieG's picture
CharlieG
Posts: 67
Joined: Mar 2010

I am not sure if they will call me or wait until my appt on 11/10. I presume that I would get a call if it were bad news? One might think the other way around wold be better...

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Sheesh, Charlie, give THEM a call. They work for you. Why put yourself through all this uncertainty? Just call the nurse and say, "hey, what was my PSA reading???" I sometimes think medical staff forget how important any little tidbit of information is to us and they may think "no news is good news" but we know better. We want the news NOW.

lewvino's picture
lewvino
Posts: 1006
Joined: May 2009

The only problem with calling is they can read the test to you wrong. It happened to me about 4 months ago. When I mentioned this to my Doc he said that is why we don't like you calling in. Nurses and Doctors can make mistakes!

THe mistake they made for me was she didn't tell me the less then sign....She said Oh your PSA is .1 when it was actually <.1

Larry

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

You know, Larry, I thought of you when I responded to Charley's post and all the agonizing you must have gone through when you were given misinformation. Now, when I call in I make the nurse be very explicit when she reads me the numbers and then I read them back to her and question whether I got it right. But you know, at the end of the day these guys work for us and we shouldn't have to be worrying about whether or not the nurse can't read a standard lab report or not. If we call, they should give us the right numbers and we shouldn't have to be filled with anxiety about wondering whether they are going to call or not. It's not like its a job interview or anything.

lewvino's picture
lewvino
Posts: 1006
Joined: May 2009

I agree with you Kongo. Unless one has had a cancer diagnosis I don't think they understand the anxiety we can go through wondering with each test as to what is next for us.

On a different note....I had a small tumor removed from my neck this week. My wife is working on becoming a Surgical 1st assist. One of the doctor's she is studying under is the doctor that removed this small tumor. When I told him who I was he stated "Oh, you should have had your wife come in with you, she is really good and I would have let her remove the lump for you." My response was Doc, I don't want my wife anywhere near my throat holding a knife in her hand!

Larry

Kongo's picture
Kongo
Posts: 1167
Joined: Mar 2010

Good story, Larry. Hope you enjoy a speedy recovery from your recent surgery.

mrspjd
Posts: 693
Joined: Apr 2010

Definitely call for test results (why wait for them to call?) AND at the same time, request that a copy of the actual printout of the lab results be faxed and/or mailed to you that day so that you can confirm the oral reading with the written result. Best case scenario, "waiting-for-test-results-anxiety" is relieved for the time being. Worst case scenario, doc may get on the phone; however, BEFORE you meet face to face with the doc, you have time to gather your thoughts, research your options, put your questions together and be better prepared to have an intelligent/informed discussion with your doc about what comes next.

CharlieG's picture
CharlieG
Posts: 67
Joined: Mar 2010

6 weeks down and 39 years to go.

BRONX52
Posts: 156
Joined: Apr 2010

Great news---here's wishing you a zero each and every time ! To an outsider, wishing you a zero must sound strange. But to a fellow pc brother it's music to the ears !! good luck and continued success----Dan

griff 1
Posts: 114
Joined: Jun 2010

that is great i had to wait for the 3 month test and got it today and zero. great huh? for some reason my dr. does not do a 6 week test he says its to early for a good reading. i hope you are doing good. griff

ejn's picture
ejn
Posts: 64
Joined: Jun 2010

Thanks everyone, I am doing great. Been camping and fishing, remodeling basement and tomorrow I am getting back on my dirt bike. Life is good.

Ed

jminnj's picture
jminnj
Posts: 129
Joined: Nov 2009

Congratulations!!! This is great news!! Wishing you all the best on your journey
Joe

JR1949
Posts: 230
Joined: Jun 2009

Congratulations Ed on zero PSA. You are now an official member of the Zero club.
May you continue to be a member.
JR

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