I am just doing what the breast cancer board is good at doing and that is posting a new thread because jumping around get confusing. I am looking for any information on sarcomas especially but interested in any of the arm bicept area.
I am interested to hear about the symptoms, the diagnosis before truly knew it was cancer and how long it took for doctors to finally biopsy and look to find out exactly what it is.
I am 50 with new tumors in my arm one actually was in lymphnode but they biopsied and benign but the huge one they won't biopsy because he says can't see on MRI though I read report and they area comes back inconclusive. I am 14 year breast cancer survivor of stage 3 with 11 out of 21 nodes and as it turns out had one of the worst forms of aggressive breast cancer with far less rate of survival than they thought back then since I was apart of a study they did back then so they could learn.
They believe a fat cyst or lympoma nothing to worry about but the last time around had they checked the fibrous cyst they didn't worry about I might not have had to go through all I did and left with the fall out though lucky I manage to live pretty good.
I was diagnosed with several arthritic conditions, several nerve disorders and pain riddled at times now all fall out from treatments. Mastectomy, chemo coctail and radiation and I was just that sensative that I got everything you could get almost as side affects. Oh well I have done very well till now and these new lumps are terrible causing all kinds of pain numbness and physical inability but yet they don't want to biopsy this mass or take it out. Oh yes found out my shoulder is screwed and need surgery so this will force them to make sure I do not have any form of a sarcoma or the new orthopedic surgeon probably won't touch me.
My last cancer did not fit the criteria for invasive ductil carsinoma. If any of you are in pain there are things we can do and seeing a very good Pain Specialist is an amazing thing. My GP did nothing for me though he was there to see me and take care of me through my treatments. I begged him to send me back to cancer clinic 3 years after finishing treatments because my quality of life was terrible hardly able to work. All he could think to give was antidepresants and they almost made things worse adding migrains to the mix something I never had before then. I knew it was NOT anxiety that they think we all suffer. I know my body and know it that well that this time too I feel like somethin is terribly wrong and they all look at me like I am crazy and how could I think I could have breast cancer or cancer again. I was totally offended when the old oncologist asked me several times why I thought it could be breast cancer. I laughed in her face and said that the chances of it being breast cancer were slim since I had done all I could to minimize the return of it with the treatments I accepted as my fate. It baffles me when I know friends of mine who have had no less than 24 bipsies on her breast a second time around because they doctor just didn't like what he saw though it had already come back benign. She is now being treated for breast cancer in both breast instead of just the one that had come back stage 1 they also found tumor hiding under that suspect area that didn't show up on any of the scans.
It is totally not comforting and I have no faith in the system and don't know why I have to kick up a fuss because I need to know what it is they may not but I do this time around.
thanks for reading and adding anything you can.